Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Livid. Nearly Glutened!

sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator
sandsurfgirl
Posted

I was at Sprouts and there were samples of barbecue sauce. The label said gluten free but I went ahead and read ingredients because of my other food intolerances.

It said on the label "contains wheat" and in the ingredients it listed soy sauce with wheat in it!!!!

I started to cry. If I had eaten it based on the gluten free label I would be sick for a week. I just got over being glutened the 2nd of July right before I had a big party to attend and then on 4th I threw a party sick as a dog.

The company is Mamma's Best. If you feel like sending an email to them go to

www.mammasbest.com for their contact page.

The email is mammasbest4u@yahoo.com

It took a lot for me to keep it professional because I'm so angry. But I think it's a good idea for them to get more than just my email informing them of the dangers of false gluten free labeling. Unbelievable!

If they want to put gluten in their sauce, more power to them, but don't label it gluten free then! Grrrrrrrr

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Did you mention this to the store manager? I would think the store would not want to carry something that is labelled improperly.

psawyer Proficient
psawyer
Posted

And this should serve as a reminder that, in the United States, there is STILL no regulated definition of what "gluten-free" means. It means what the company wants it to mean.

Under FALCPA, there was supposed to be a definition in place by 2008. It is stalled, and it doesn't look like it will be in the regulations any time soon. :angry:

kareng Grand Master
kareng
Posted

And this should serve as a reminder that, in the United States, there is STILL no regulated definition of what "gluten-free" means. It means what the company wants it to mean.

h

That's freedom of speech and protected by the Constitution. ;)

(A joke)

ravenwoodglass Mentor
ravenwoodglass
Posted

And this should serve as a reminder that, in the United States, there is STILL no regulated definition of what "gluten-free" means. It means what the company wants it to mean.

Under FALCPA, there was supposed to be a definition in place by 2008. It is stalled, and it doesn't look like it will be in the regulations any time soon. :angry:

Yea and we also have to keep in mind that once the rules are in place they will likely allow items that test out at less than some defined percentage to carry a gluten free label. I personally would just be happy if they required gluten ingredients in any form or amount to be listed. It is likely, I fear, that items like soy sauce that test out at under that percentage will be able to be labeled gluten-free.

rdunbar Explorer
rdunbar
Posted

I saw some "gluten free" cookies at the health food store the other day, and on the back of the package it said "processed in a facility containing wheat" and it listed xantham gum as an ingrediant, which i understand contains trace gluten.

I thought of e-mailing the company and asking them, "just what the deuce are you fools up to?" but figured i did'nt want to be a gadfly; after reading your post, I'll consider contacting them, and tell them that their product could be harming people, that they should either find a wheat free facility or stop exploiting the name 'gluten-free'! and lose the xantham gum!!

kareng Grand Master
kareng
Posted

it listed xantham gum as an ingrediant, which i understand contains trace gluten.

Where did you hear this? Xantham gum is used in a lot of gluten-free baking recipes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I saw some "gluten free" cookies at the health food store the other day, and on the back of the package it said "processed in a facility containing wheat" and it listed xantham gum as an ingrediant, which i understand contains trace gluten.

I thought of e-mailing the company and asking them, "just what the deuce are you fools up to?" but figured i did'nt want to be a gadfly; after reading your post, I'll consider contacting them, and tell them that their product could be harming people, that they should either find a wheat free facility or stop exploiting the name 'gluten-free'! and lose the xantham gum!!

I don't really think that company did anything wrong. Some of us are able to handle stuff that is processed in the same facility, I am not one of them. Since it is not required that companies put that on the label I would be grateful for the warning. Is xantham gum made out of a gluten ingredient or is it a CC issue?

psawyer Proficient
psawyer
Posted

Xanthan gum is defintely not a source of gluten.

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

I went straight to the store manager right away and she not only pulled it off the shelves, she sent the sample lady home. Sprouts doesn't want to hurt their reputation for being a good celiac resource.

I emailed Sprouts corporate office.

The company emailed me back and said that the soy sauce they use is Kikkoman and it contains less than the 20ppm recommended and that's why they consider it gluten free. I'm skeptical and dubious. Why even take the risk saying gluten free when it contains soy sauce with wheat. They're messing with our lives. Just make your gluten BBQ sauce and cut out the celiac market or make one with no dubious ingredients.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,989
    • Most Online (within 30 mins)
      7,748
    Cappynan
    Newest Member
    Cappynan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...