Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At Summer Camp And Just Need To Vent

polarbearscooby

Recommended Posts

polarbearscooby Explorer
polarbearscooby
Posted

So I'm at Summer Bible camp with my little sister right? (She has medical needs and needs a family member with her to take care of them) And I had to pack my own food. I'm ok with that. I don't wanna eat anything cooked in a kitchen full of wheat by teens. But I hate that I have to take away my sisters time playing to rush back to my room (Not staying in the dorms) and cook some food and wolf it down (burning my tongue in the process) and hurry back to the lessons/games/w.e with everyone else.

I hate this.

I hate being gluten-free in the moment....

That is all

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MissyJoy Rookie
MissyJoy
Posted

I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

kareng Grand Master
kareng
Posted

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

polarbearscooby Explorer
polarbearscooby
Posted
  • Author

I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

Thanks :) I really did just need to vent before I exploded... It sucks that she's not getting the 'dorm experience' but at least she's here. Right now I'm gonna rush and eat lunch....

AHHH

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

It is great that you are there for your little sister. I know it is difficult for you but the fact that your are taking her needs before your own says a great deal about your character. You are to be commended, give yourself a pat on the back.

As to the questions, yea they are likely a bit annoying but if you answer them simply, "I have celiac and can't risk being sick while I am here" and people ask more detailed questions it may be because they suspect they may have it or a family member or friend does. You don't need to give them a course in 'Celiac 101' just give them the name of this website and tell them they can come here for more info because right now you want and need to be with your sister.

polarbearscooby Explorer
polarbearscooby
Posted
  • Author

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

ravenwoodglass Mentor
ravenwoodglass
Posted

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

I am so glad you are there for this other little girl. You will surely be a big help for her, she must feel so sad and isolated.

Funny the way things work out sometimes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

That's great news! Good for both of you to know there is someone else there with the same issues.

lucia Enthusiast
lucia
Posted

Oh, that's such a great story! She'll probably remember you her whole life, and your presence will make having this disease a lot more comfortable.

As a kid, my ex-boyfriend used to go to "diabetes camp" (actually Camp Joslin after the Boston diabetes center), where all the kids were diabetic. I think it is important for kids to meet others who have the same issues they do.

I googled "camp celiac" out of curiosity, and it turns out there are such things for celiac kids too!

Open Original Shared Link

TaniaR Newbie
TaniaR
Posted

I completely agree being gluten-free is the biggest pain in the ass, esp. when you just want to eat in a hurry and that is just never an option. Im sorry your having a rough time :(

polarbearscooby Explorer
polarbearscooby
Posted
  • Author

Yeah she's having a really tough time and feeling very alone right now

And the bread everyone made today didn't help

If I had known they were gonna do that I would have brought stuff to make my own...

I didn't even go in the room it was horrible

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,079
    • Most Online (within 30 mins)
      7,748
    Kassie S
    Newest Member
    Kassie S
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Has anyone found Ozempic affected their symptoms?

      By Wheatwacked · Posted

      Could be the Ozampic is masking your expected symptoms.  Like an analgesic masks pain.  Qzampic slows digestion to lower the rate glucose enters the intestine to slow its effect on glucose level.  It seems it might also slow down the gluten entry into the intestine, reducing its trigger level for the antibodies.  Ultimately the damage from gluten is the same, just not as fast so the pain is less.  Sourdough bread has less gluten.  Ozampic siows its entry.
    • Wheatwacked
      Options - 7 year old boy - Helicobacter pylori and serology

      By Wheatwacked · Posted

      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
    • Wheatwacked
      On the cusp of facing a new life of managing a life with Celiac Disease

      By Wheatwacked · Posted

      Hello @MHavoc, thank you for your question and welcome to the clinic. First, has the contstipation abated with the GFD? If your are pursuing further diagnostics you must continue to eat gluten. Each lab has their own reference range for their test, but they indicate an H for high.  Typically anything above 11 is considered positive. Mild chronic inflammation (gastritis) can interfere with intrinsic factor for B12 leading to low B12 causing low MCHC (anemia). So what is causing your gastritis?  A high tTG IgA level generally indicates potential gastrointestinal problems most commonly associated with celiac disease.  Although the biopsy is the Gold Standard for diagnosis, not finding damage in the biopsy does not rule out Celiac Disease. It means they did not find damage where they looked.  The small intestine is over 20 feet long. Many here have been blood positive and biopsy negative, it just delays the diagnosis until you have enough damage to find and fit their diagnostic profile. The Ttg-iga is not only sensitive (90%) but highly specific (98%) and won’t show positive until the damage is severe.  It is estimated that 40% of first degree relatives of diagnosed Celiacs have undiagnosed Celiac Disease, so your sister is a big risk factor in whether you have it. Are You Confused About Your Celiac Disease Lab Results?  This article explains it better and is quite readable. Celiac Disease can cause deficient vitamin D.  Low vitamin D compromises the immune system.  Any other symptoms? liver enzymes?  Recent cold or flue? Celiac Disease and the malabsorption it causes through vitamin and mineral deficiencies can elicit symptoms not usually associated with Celiac Disease. Case in point maybe your gastritis and anemia.  
    • MHavoc
      On the cusp of facing a new life of managing a life with Celiac Disease

      By MHavoc · Posted

      As with most of the people that come here, I have questions and need perspective/info from this wonderful community.  Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work.  One of things she wanted to test for is Celiac Disease due to my sister having celiac disease since a young child. Here are my test results: MCHC = 31.4 so considered slightly low TISSUE TRANSGLUTAMINASE AB, IGA = 78.8 H So with that result, I was scheduled for an endoscope for confirmation of celiac disease, but I am very confused with the results: Diagnosis 1. Duodenum, biopsy: -No pathologic alteration. 2. Stomach, biopsy: -Mild chronic inflammation with reactive epithelial change -H. pylori not identified on immunostained section. -No intestinal metaplasia or dysplasia I am now scheduled to meet with a GI Specialist from the Celiac team, but that won't be until after the New Year.  I would appreciate thoughts about the biopsy report to understand whether it confirms the celiac disease as was indicated by the blood test results. I have been gluten free for two weeks and it is a very difficult adjustment for me as an older 50+ person.
    • Vozzyv
      Weird Symptoms

      By Vozzyv · Posted

      Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings. 
×
×
  • Create New...