Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergy Testing


butterfl8

Recommended Posts

butterfl8 Rookie

So I went to the allergist to inquire about allergy testing for both foods and environmentals, and was told to think about what foods I wanted to be tested for. (uh, isn't that his job???)

Ok, so anyway, I have been avoiding soy, and just challenged it to be sure. Yep, heart racing, pounding, stomach hurting a bit.

Cumin is really evil.

I'd like to throw in corn, potatoes, rice.

Does anyone have any other suggestions? Something makes me salivate, and get really hungry, and I haven't been able to pinpoint that yet. I'm just hoping the testing will narrow that down a bit.

Thank you for any input!

-Daisy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Do you mind sharing what cumin does to you? I'm curious because cumin is on my avoid list because I tested pos. to it but haven't reintroduced it yet. I know sometimes reactions are hard to describe.

Our first allergist was like yours and didn't believe in his own tests much. I just asked for the top 8 or 10. Wasn't helpful. They dismissed kiddo's reaction to wheat. 2nd allergist gave us a list of about 100 and asked us to check all foods that we routinely ate. We have a fairly vaeried diet so ended up checking about 80 each. Those are what we got tested for and I'm glad it was done that way. I had NO idea that I could be allergic to the 26 that I reacted to. I could not have come up with that list on my own. When I eliminated all of them I felt remarkably better. That's what convinced me that there was something to this and that I needed to take the journey. I've been reintroducing them one by one. Still got quite a few to go. Reaction to individual ones weren't so strong but at least the total sum was making a significant impact on how I felt on a daily basis.

sa1937 Community Regular

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

missy'smom Collaborator

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

Both allergists did skin testing. One was not helpful and the other was very so I wonder if there was any difference in the tests or not. I haven't asked yet. The results of the first time I was allergy tested(skin) everything came back neg. too. With this new set and elimination/challenge my symptoms have been primarily GI but a little mouth or other with a couple. I am recognizing that many of them give me this feeling of pressure and inflamation in the GI tract that I didn't have when I was not comsuming them. All was blissfully and strangely calm for the 4 weeks without. It was SO strange to not feel anything after a meal!

Yes, I would find an allergist who believes in eliminating foods even if you don't have an anaphalactic reaction and one who routinely runs large food panels.

StephanieL Enthusiast

If you take any allergy/antihistamines prior to testing it can cause false negatives. Allergy testing is NOT 100% accurate. Skin or blood! The only true test is an allergy trial. Many Dr's don't do these. Testing can give you an idea. Food logs can be really helpful too! Listing foods, times eaten and any reaction you feel you may be having. Good luck in your search!

GFinDC Veteran

Nightshades, tomatoes, potato, peppers, carrots, turnips, soy, dairy, oats, garbanzo beans, fruits, all the top 8 food allergens, celery, corn.

butterfl8 Rookie

Okay, now that I'm back!!

Missy's mom, cumin makes my stomach cramp up. Just feels like my stomach is turning inside out. My coworkers were telling me to go home all day! Not fun. The more I had, the worse. Just a little seemed to be less cramping, but still enough to avoid. :blink:

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." <_< The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? :angry:

StephanieL: Yep, I'm not looking forward to stopping my happy allegra, and flonase, and benedryl. It will be a miserable few days, but hopefully answer a few questions!

GFinDC Thanks! Those are great suggestions!

Any more?

-Daisy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



butterfl8 Rookie

GFinDC, did you find out you were uh, coffee intolerant (I love my coffee!!!) through testing or elimination? I wonder because I know if I avoid it for a few days it bothers me to go back to drinking it, but only for a day or two. Once I readjust to it, we get along again, and I can wake up in the morning. . . mostly. :P So if I were to eliminate coffee, then challenge it, I would seem to be reactive to it. I just wondered.

Thanks!

-Daisy

sa1937 Community Regular

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." dry.gif The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? mad.gif

I'll admit that I don't have a clue about allergy testing. Obviously the RAST test I had was not the right one. I'll be anxious to hear how everything turns out for you.

Is the Dr. you're seeing an allergist?

butterfl8 Rookie

The Dr. is an ENT, who was recommended by my GP. His office does allergy testing, which is handled by this one nurse. Unfortunately, I'm quiting work in three weeks to go back to school and get my master's, or I would look for a different Dr. Insurance coverage will run out at the end of August.

-Daisy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,478
    • Most Online (within 30 mins)
      7,748

    MomofCeliackid
    Newest Member
    MomofCeliackid
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order a celiac panel consisting of, at the very minimum, these two blood antibody tests: total IGA and tTG-IGA. Please do not attempt to limit your gluten intake before the blood draw is taken or you will invalidate the testing. Incidentally, celiac disease is often misdiagnosed as IBS.
    • Jaylan
      Hi there!  I’ve recently been tested for celiac disease, along with other autoimmune diseases. My symptoms started back in 2018 with joint pain in my knees. Since then, it has progressively worsened. I now have joint pain in both knees, elbows, and sometimes my shoulders. The pain is almost unbearable. I feel so stiff in the mornings, and this stiffness can last the whole day. I also experience swelling and warmth around those areas.   Other symptoms include IBS (diagnosed at age 16), restless legs, chest pain, tiredness, miscarriages, bloating, and sharp pain on the right side of my stomach. In the past, I’ve also had problems with a vitamin D deficiency, and my serum folate levels recently came back very low.   My question is: How likely is it that I have celiac disease?    
    • Rebeccaj
    • jimmydee
    • robingfellow
      The Celebrity brand Luncheon Loaf (found at dollar tree, distributed by Atalanta Corporation) is gluten free according to the distributor. I emailed their customer service line for information on the ingredients, and they contacted the vendor and followed up with me that the "starch" ingredient I was worried about is corn and potato. It should be safe.
×
×
  • Create New...