Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten-Free


firefightersgal

Recommended Posts

firefightersgal Apprentice

I have been spending a lot of time in doctor's offices lately trying to figure out what is wrong with me. I thought that my issues were independent of each other, but now it looks an awful lot like Celiac.

I had an appointment with my doctor yesterday to look at my out of control 'eczema'. The day before, my husband worked for someone (not his usual day to work). One of the other firefighters was talking about how his children were very recently diagnosed with Celiac. My husband thought that their symptoms sounded eerily like mine, so he called and asked me to do some research on it. I was surprised to find all of my health issues listed as symptoms.



  • I have joint pain and weakness. I was tested for RA, but did not show the markers in my blood.
  • I have a horrible rash that has been plaguing me for over 2 months.
  • I have been battling infertility for almost two years and suffered one miscarriage. (My hormone levels are all normal, but I am not ovulating without the assistance of Clomid). My daughter was concieved over 4 years ago with no trouble.
  • I sometimes have stabbing gas pains and a reoccuring ulcer

.

My doctor didn't seem overly enthused that I brought information in, but he did test me for celiac disease. He confirmed that my eczema is now accompanied by Dermatitus Herpitaformus. He told me that I could try a gluten-free diet, regardless of my test-result, so I did.

I'm glad to have found this group. I've already learned a lot and I've only been on here for a few minutes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You have DH and he said you "could" try a gluten free diet? Dumb doctor. DH is a positive marker for celiac disease. Not every celiac has DH, but everyone with DH has celiac. If you have DH you SHOULD remain completely gluten free.

K8ling Enthusiast

WELCOME!! We all have had experiences with doctors who make us wonder why they are doctors...it sounds like you just had one. DH is FOR SURE Celiac. Ugh

Like i said, welcome to the club, and we are all here to help!

firefightersgal Apprentice

WELCOME!! We all have had experiences with doctors who make us wonder why they are doctors...it sounds like you just had one. DH is FOR SURE Celiac. Ugh

Like i said, welcome to the club, and we are all here to help!

Thanks very much for validating what I had read before--that DH=Celiac. My doc was thinking that I might have hepatitis, but I have no risk factors for it. I'm anxious to get my blood test back, but I have been gluten free for 2 1/2 days and will continue to do so.

butterfl8 Rookie

Well, ditto K8ling and Tiffany, Dumb Dr! Welcome...To feeling a million times better. Reoccuring ulcer? That was me too. My Dr. and I both said that was due to my particular life stresses. Now we know better! Same stresses, only I either am dealing with them better; or, I'm not poisoning myself with gluten and therefore feel like a new woman. (And I'm not treating them by eating bagels. . . oops)

In any case, clean out your house as much as you can, free yourself of all gluten, including beauty products, and enjoy feeling better. Welcome to the forum! (Smart hubby too! Aren't they the best?)

-Daisy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,264
    • Most Online (within 30 mins)
      7,748

    Toni Martine
    Newest Member
    Toni Martine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The short answer is if it hurts, don't do it. Yogurt may help sooth your gut and repopulate it with benificial bacteria.  I prefer whole milk yogurt because it is not processed and the no fat yogurt is processed dehydrated milk powder with guar gums and water added to make it mouth feel like fat.  Especially in early healing there may be other foods you cannot tolerate for a while.
    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
    • Celiacsugh
      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
×
×
  • Create New...