Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do I Ask At A Restraurant?


Googles

Recommended Posts

Googles Community Regular

I am going out with friends on Tuesday night. This is the first time I've gone with friends since I've been diagnosed. I'm really worried about getting sick. I haven't been glutened for a couple of months now and I want to keep the stretch going. What should I do to make sure that my dining experience is as safe as possible? We'll be going to a restaurant with a gluten free menu, but it doesn't feel like that is enough. What do I need to do? Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I am going out with friends on Tuesday night. This is the first time I've gone with friends since I've been diagnosed. I'm really worried about getting sick. I haven't been glutened for a couple of months now and I want to keep the stretch going. What should I do to make sure that my dining experience is as safe as possible? We'll be going to a restaurant with a gluten free menu, but it doesn't feel like that is enough. What do I need to do? Thank you.

I would announce upon arrival that I am a gluten free diner, and that I would like a waitperson who is celiac knowledgeable. If you are not happy with the answers that that person gives you upon ordering (now this is depending on what kind of place it is, of course) ask if you can talk to the chef to find out what is safe for you to eat (because so many of us have other things we cannot eat as well.) Do not be afraid to go into detail about how your meal will be prepared and served - clean grill or clean pan, clean salad bowl, etc. And then it's up to the Gods - may they shine upon you! :D

Skylark Collaborator

With a gluten-free menu, I just explain that I'm very sensitive and ask what they do to prevent cross-contamination.

GlutenFreeManna Rising Star

If they have a gluten free menu I ask for it as soon as I walk in the door, before being seated. If they don't have a clue what the gluten free menu is or can't find it, then RUN (or ask to speak to a manager if you are determined to eat there). Some places do have to go in the back and print it off the internet for you, like at Red Robin (they update the info every month). For that place I bring my own copy and make sure it is up to date. Even when carrying my own gluten free menu in, I alert the hostess that I will be ordering off the gluten free menu. When the server comes to take our drink order I also alert him or her that I'm ordering off the gluten free menu and I ask questions about how a specific item is prepared (I decide what I want before going in).

Having questions about a specific item makes it a little easier than just asking "what do you do to prevent cross contamination?" So for instance, if I'm ordering a burger and fries I point to it on the gluten-free menu and say, "Are your burgers made on the same grill as other burgers that have the wheat seasoning I need to avoid? Do you cook your fries in the same oil as any other food that is breaded?" Etc. I ask when everyone is ordering the drinks so that the server has a chance to go in the back and ask questions if he doesn't know the answer and our order is not held up by him checking with the kitchen. Then when I order I repeat that I'm ordering off the gluten free menu and to please be careful, pause to give them plenty of time to write down gluten free. If they don't write gluten free first, then I say the words gluten free again with my order: "I'd like a burger with no bun and no seasoning, so gluten free, use a lettuce wrap in place of the bun to make it gluten free, <Pause to give them time to write> and fries with no seasoning, so gluten free." Let them take it all down and then if they don't repeat it back to you, ask them if they would repeat it back to make sure they got it right.

One last tip: While ordering and interacting with restaurant staff, always remember your manners and use the words, "please and thank you" a lot. We are putting our health in the hands of others when eating out. Our need to ask lots of questions while ordering *could* be very annoying if done wrong, so it's important to be as polite as possible. It's also a good idea to go at a time/day when it is not very busy. You will have more of your server's attention and the cooks are less likely to mess up your order because they are being bombarded with orders. At a really good place the manager will come over to ask you how things are or to assure you that they will be taking the utmost care with your order. At first I didn't like having to ask so many questions when dining out. I have never been a picky eater and I don't like drawing attention to myself, but now I have come to realize at the good places we get VIP-type treatment. The manager always asks how our dining experience was if not while we are eating, when we are on the way out the door.

I hope you have a good first experience. It does take some time to learn (or at least it did for me) what to ask. But once you get the hang of it it's not that bad.

Kay DH Apprentice

I am going out with friends on Tuesday night. This is the first time I've gone with friends since I've been diagnosed. I'm really worried about getting sick. I haven't been glutened for a couple of months now and I want to keep the stretch going. What should I do to make sure that my dining experience is as safe as possible? We'll be going to a restaurant with a gluten free menu, but it doesn't feel like that is enough. What do I need to do? Thank you.

I've been gluten-free since getting the flu last September and the start of GI symptoms. I've probably had DH for a few decades, but never diagnosed or tested, other than a negative Celiac Panel two years ago. I've been completely gluten-free since Jan (it takes a while to find out every place the nasty molecules lurk). I am very sensitive to CC. If you have fries, make sure nothing breaded can fall into the dedicated fryer. If you have salad and it comes with bread crumbs then hid some of them under the lettuce before you send it back (D from a waiter that just removed the croutons); when I called the manager to mention the problem, she asked if I got sick from eating the bread sticks. ONLY eat at the restaurant if it is safe. There is an amazing lack of knowledge about Celiac; even if you have the dining card and mention how sensitive you are, waiters are busy and tend not to listen. Be very courteous and thankful, your health is in their hands. Most of the times I've gotten sick from eating out were from gluten-free menu establishments. When I eat at a restaurant and don't get sick, I contact the management later to thank them and the wait staff. Call the restaurant before you go, preferably at a non-busy time, and talk to the manager about options. You might want to keep the meal simple so you can track down the problem if there is CC. It can be good to eat something before you go to dinner, so you won't be hungry. All of this sounds a bit anal retentive, but with Celiac anal retentive can be good.

jackay Enthusiast

It may be helpful to explain that wheat, rye, barley and oats and anything that comes into contact with them make you extremely sick. Even if you may be able to tolerate oats, it still may be helpful to include them. Too many people have no clue what gluten is.

Googles Community Regular

Thank you all for your wonderful advice. I don't know exactly where we are going to go, or when because it depends on when my friends get back from the amusement park. But we are going out on a tomorrow night, so hopefully it wont be too busy. I'm going to suggest a couple of places, but they get to pick since they are paying. I'll let you know how it goes. I don't think I've ever been so nervous about going out to eat before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

If you don't go to a place with a gluten free menu, then my advice above (just repeating gluten free) will not work. You will need to talk to the manager or the chef. The safest thing at most places would be a plain salad with no croutons, no won-ton strips, etc and no dressing. Bring your own dressing or ask for just olive oil on the salad. Ask that the people preparing your salad change their gloves prior to handling the lettuce and ask that it be mixed in a clean bowl away from any food with crumbs. If they do not know what gluten free means, explain that you have an allergy to wheat, rye and barley (which includes all bread and pasta) and you need them to take these requests seriously (and yes I know that it is not really an "allergy" but that word usually makes people take more precaution). Another thing that is usually safe would be a plain baked potato. Grilled meats could be safe, but then you need to ask about marinades (nothing with soy sauce), seasonings and cc on the grill. Steamed veggies same thing as the meat, you have to ask how they are cooked and about any seasonings.

Good luck!

Googles Community Regular

Thank you all for your good information. Sadly my friends' plans changed so we are not going out. I will keep this all in mind for next time I go out to eat (whenever that might be.)

sandsurfgirl Collaborator

Bummer your plans got cancelled.

I ditto what others said. If they have a gluten free menu I tell them I'm very sensitive. Can they make sure it's a clean pan, clean grill or whatever.

If they don't have a gluten free menu I talk to manager never ever a server. Then I ask them to help me figure out what to eat.

Tell them not only wheat, barley and rye, but that soy sauce often contains wheat as do salad dressings and marinades. Or if it's marinated in beer. One place thought I could eat the chicken until I mentioned the soy sauce. There was soy sauce in the marinade. Most places can do a piece of grilled meat with only salt and pepper on it and clean the grill or make you a hamburger in a lettuce wrap.

If you are nice they will go out of their way for you. I've had managers go and get lists of ingredients for salad dressings for me and bring out tubs of stuff for me to read.

Once I have scoped out a restaurant then I just order the same thing when I go there.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

    2. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

    3. - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

    4. - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    5. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,571
    • Most Online (within 30 mins)
      7,748

    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.