Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Reacting To Coke?


precious831

Recommended Posts

precious831 Contributor

I don't drink much soda but I admit I do like a Coke every now and then. Well it seems I'm reacting to this as well. I tried one over a week ago and tried again today just to see. Anyone else reacting to Coke like they've been glutened? Please no posts telling me I shouldn't be drinking this anyway, I know that. I am not addicted to soda.

Just checking! Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lischro Apprentice

I drink diet coke every once in a while- I've only noticed that it increases my bloating and sometimes causes me to feel "gross" for lack of a better example.

What kinds of symptoms are you having??

kayo Explorer

It could be a reaction to the HFCS. The extra fructose load can cause IBS symptoms like gas and bloating. Some also react to the caramel coloring which is derived from corn. If you have issues with corn that could explain it too.

I miss Coke but have found that a Diet Pepsi now and then is pretty good. I also like the sodas with cane sugar like Hansens or Jones.

ravenwoodglass Mentor

I'm fine with Pepsi but can't do Coke.

Ahorsesoul Enthusiast

Love Coke and Dr Pepper but hate the taste of Pepsi. No problems with them (so far!).

Zeb Rookie

I love regular (non-diet) Coke. I have one just about everyday. Does Coke cause intestinal problems for me? Without a doubt, YES. However I notice that when I lay off the Coke my bowels return to "normal." I think it's all the sugar in it because if I drink Coke Zero I usually don't have a problem. I was wondered the same thing earlier today and did a Google search and found that Coke is gluten free. So go figure on that one.

Zeb Rookie

By the way, I do not like the taste of Pepsi. I will avoid restaurants that serve Pepsi instead of Coke.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast

It could be a reaction to the HFCS. The extra fructose load can cause IBS symptoms like gas and bloating. Some also react to the caramel coloring which is derived from corn. If you have issues with corn that could explain it too.

I miss Coke but have found that a Diet Pepsi now and then is pretty good. I also like the sodas with cane sugar like Hansens or Jones.

Just want to say that I too cannot drink regular soda's (because of fructose load) but am fine with diet coke or pepsi. Thanks for mentioning Hansens I haven't tried it and will now. Aspartame is fine for my fructose intolerance but the diet sodas with splenda will wreak havoc everytime!

jerseyangel Proficient

Another soda that uses cane sugar is Boylans--my favorite. I can't tolerate artificial sweeteners, and won't use anything with HFCS.

Janelee63 Newbie

It could be a reaction to the HFCS. The extra fructose load can cause IBS symptoms like gas and bloating. Some also react to the caramel coloring which is derived from corn. If you have issues with corn that could explain it too.

I miss Coke but have found that a Diet Pepsi now and then is pretty good. I also like the sodas with cane sugar like Hansens or Jones.

I also like Hansens...Also...Coke from glass is typically made with cane sugar. Coke in bottles/cans is made with high-fructose corn syrup. Check it out...I think this might be true on other sodas also.

precious831 Contributor

It could be a reaction to the HFCS. The extra fructose load can cause IBS symptoms like gas and bloating. Some also react to the caramel coloring which is derived from corn. If you have issues with corn that could explain it too.

I miss Coke but have found that a Diet Pepsi now and then is pretty good. I also like the sodas with cane sugar like Hansens or Jones.

Thanks everyone! I don't think I'm sensitive to corn but yeah perhaps that's it. I was thinking of caramel color.

My symptoms were sort of similar to glutening(but milder). Except no swelling of the joints, so far that's all I noticed. But the same familiar bloating, cramping, headache etc.

I don't like the taste of diet anything.

Where can I get Hansen's or Jones?

precious831 Contributor

Another soda that uses cane sugar is Boylans--my favorite. I can't tolerate artificial sweeteners, and won't use anything with HFCS.

Where can I find Boylans?

sandsurfgirl Collaborator

My reaction is a weird one. I used to love Coke, Pepsi and Barq's root beer. Now they all taste like soap and chemicals to me since I went gluten free. The first time I tried soda again after diagnosis I got it from a machine at a fast food place. I thought they had run chemical cleaner through the lines and not rinsed them.

But I tried it at a couple more places and then from a bottle at home and it all tasted like soap and chemicals. Then I tasted my son's Sprite and same thing.

I can drink the all natural Hansen's sodas and they taste normal to me. I only have one once in awhile but it's the only one I even attempt to drink now.

jerseyangel Proficient

Where can I find Boylans?

I get it at Whole Foods.

kayo Explorer

I'll have to check out Boylans. I have found Hansens at my regular supermarket, Trader Joe's and Whole Foods (WF). WF had the largest variety of flavors. Hansens ginger ale is really good, very gingery. We used to be able to get Jones at our regular market but they don't carry it anymore. Now we get it at WF.

Hubby and I once splurged and ordered a case of coke from Mexico where it is made from sugar and not HFCS. It was SO good and refreshing. It came in glass bottles. I'll have to pay attention to that tip, thanks.

Splenda kills me. Stabbing, shooting, sharp pains in my abdomen. I use a bit of 'sweet n low' or Stevia in my tea and I tolerate that ok. I'm not crazy about using fake sweetners but need to limit my amount of sugar.

precious831 Contributor

I'll have to check out Boylans. I have found Hansens at my regular supermarket, Trader Joe's and Whole Foods (WF). WF had the largest variety of flavors. Hansens ginger ale is really good, very gingery. We used to be able to get Jones at our regular market but they don't carry it anymore. Now we get it at WF.

Hubby and I once splurged and ordered a case of coke from Mexico where it is made from sugar and not HFCS. It was SO good and refreshing. It came in glass bottles. I'll have to pay attention to that tip, thanks.

Splenda kills me. Stabbing, shooting, sharp pains in my abdomen. I use a bit of 'sweet n low' or Stevia in my tea and I tolerate that ok. I'm not crazy about using fake sweetners but need to limit my amount of sugar.

We used to get those Mexican Cokes too in a bottle, they're pricey. But I can't remember if I reacted to that, I'll have to try it again.

Funny thing, I don't react to Sprite. I'm fine with it.

Thanks for all the ideas everyone! I'll look for the suggestions. I mostly drink water and roibois tea but a little variety is all a need once in a blue moon.

ravenwoodglass Mentor

Funny thing, I don't react to Sprite. I'm fine with it.

I don't react to Sprite either. If I have no choice but to get a Coke product that is the one I go to.

Roda Rising Star

For me it doesn't matter what kind of soda I drink diet or regular they all will bother me. I don't tolerate the carbonation very well. I do splurge though and drink a sprite every now and then.

RachelisFacebook Apprentice

I'm allergic to caramel coloring. Coke is a definite no-no for me. As others have stated, it could be the HFCS in it.

  • 6 months later...
SMayberryScott Newbie

I know this is an old thread, but it might still be helpful if someone comes across it. Coke products are listed as gluten free because they meet the Codex standard of less than 200 parts per million (ppm). However, the FDA which does not have official regulation of foods to be labeled as gluten free as of yet, recommends 20 ppm for those suffering from Celiac disease or gluten intolerance. I was beginning to have some gluten-like symptoms recently (not a stomach ache, but skin issues and diarrhea) and couldn't figure out what could be causing it. I truly believe it is the Coke. I, for the first time since being diagnosed, was not pregnant anymore, and was once again enjoying caffeine products and drinking 1-2 Cokes a day. I only quit them 4 days ago and am already noticing a difference.

Here is a link to an article that explains further on the Coke/gluten issue: http://www.glutenfreeclub.com/articles/caramel.html

The article is dated 2007, so there is probably more recent information, but none that I could find quickly.

fumbling mom Rookie

My reaction is a weird one. I used to love Coke, Pepsi and Barq's root beer. Now they all taste like soap and chemicals to me since I went gluten free. The first time I tried soda again after diagnosis I got it from a machine at a fast food place. I thought they had run chemical cleaner through the lines and not rinsed them.

But I tried it at a couple more places and then from a bottle at home and it all tasted like soap and chemicals. Then I tasted my son's Sprite and same thing.

I can drink the all natural Hansen's sodas and they taste normal to me. I only have one once in awhile but it's the only one I even attempt to drink now.

BevMo (Beverages and More, if you have the chain) also carries Hansens and Boylans...and other cane sugar based sodas.

K8ling Enthusiast

After I gave birth to my son the first thing I asked for was a 4 pack of Boylans LOL

Looking for answers Contributor

I get my husband the "natural" coke from Costco in glass bottles (I think they make it in Mexico), but it contains real sugar not HFCS.

  • 7 years later...
sabino Newbie
On 7/29/2010 at 1:54 PM, precious831 said:

I don't drink much soda but I admit I do like a Coke every now and then. Well it seems I'm reacting to this as well. I tried one over a week ago and tried again today just to see. Anyone else reacting to Coke like they've been glutened? Please no posts telling me I shouldn't be drinking this anyway, I know that. I am not addicted to soda.

 

Just checking! Thanks.

I'm now having the same problem with Coke. I'm going next week to see my Doctor to see what the problem is.

cyclinglady Grand Master
1 hour ago, sabino said:

I'm now having the same problem with Coke. I'm going next week to see my Doctor to see what the problem is.

Hi Sabino!  

Many celiacs have intolerances to other things like lactose or corn.  Most Coke does contain corn syrup.  You could be reacting to the other ingredients as well.  I can assure you that Coke is gluten free.  Consider avoiding it for a while until you feel better and then test.  

Welcome to the forum!  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,356
    • Most Online (within 30 mins)
      7,748

    Deb powell
    Newest Member
    Deb powell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Matt13  I understand where you're coming from.  Seemed I was reacting to all sorts of foods there for a while, but a low histamine Paleo diet really helps.   We make histamine in our bodies as a useful  neurotransmitter (causing alertness), and also as a response in the immune system.  Histamine is made and released by Mast Cells.  Mast Cells can become hypersensitive to stimulus and release histamine easily, like having an itchy trigger finger.  Mast Cells need Thiamine Vitamin B 1 Benfotiamine in order to NOT release histamine.  Mast Cells that do not have sufficient Thiamine release histamine easily and at the slightest provocation.   Plants and other animals make histamine, too.  By removing high histamine foods from the diet, more histamine can be removed from the body.  We need Pyridoxine, Vitamin B 6, Vitamin C, Cobalamine, B12, and Thiamine B1 to make Diamine Oxidase, an enzyme that breaks down histamine.  If we don't make sufficient DAO ourselves, DAO supplements are available over-the-counter.   Removing Nightshades (tomatoes, potatoes, eggplant and peppers) was very helpful.  Nightshades contain alkaloids that cause Leaky Gut Syndrome wherein large molecules of food can pass through the walls of the intestines into the bloodstream, traveling to other organs and structures where they promote inflammation.   After a few days on the low histamine Paleo diet, the Autoimmune Protocol diet, I started feeling better.  My diet was really restricted, but I felt so much better, I stuck with it.  Eating foods that were easy to digest and low in histamine allowed time for healing.  After a few weeks, I was ready to add one food at a time (two week period) back into my diet.  I had setbacks when I ran into a food my body didn't like, and had to go back to the start, but it was worth doing.  Celiac is a marathon, not a sprint.   Blood tests are not accurate measurements for various B vitamin deficiencies.  Vitamin levels in the bloodstream are different from the amount stored inside cells inside organs where they are utilized.  You can have symptoms of a deficiency yet have "normal" blood levels.  The best way to test for a B vitamin deficiency is to take it and look for health improvement.  B vitamins are easily excreted because they are water soluble.  Malabsorption in Celiac can affect all the vitamins and minerals our bodies need, not just one.  Do talk to your doctor and nutritionist about supplementing while healing.  
    • Morgan Tiernan
      A little late to the party in terms of seeing this and responding to it, so apologies! But I wanted to responds as this sounds exactly like my experience. I had covid, followed by shingles, followed by strep… that unlucky bout of infections is what lead me here with dermatitis herpetiformis. I was also self diagnosed in the beginning and turns out I was absolutely right! Currently waiting for biopsy confirmation though. In terms of swollen lymph nodes, I get this when my rash is present. Mostly in my neck and they’re a lot more swollen if I’ve been cross-contaminated with gluten and when the rash is at its worst!   
    • knitty kitty
    • knitty kitty
      Welcome, @Morgan Tiernan, The best thing to clear my dermatitis herpetiformis is to take Niacin, Vitamin B 3, the form called nicotine acid, the kind that causes flushing of the skin.  Flushing Niacin clears my skin quickly.   Yes, the flushing might seem really strange, but it opens the tiny capillaries in the surface of the skin which helps remove the antibodies that gather in those pustules.  The flushing lessens the longer Niacin is taken, but still works at keeping the blisters away.   Be sure to take a B Complex and Benfotiamine, a form of Thiamin , Vitamin B 1.  Covid, shingles and other infections like strep throat deplete our Thiamine quickly.  Having frequent infections can indicate low Thiamine.  We have a higher metabolic demand during infections, physical trauma or surgery, emotional and mental stress, and while physically active like dancing.    Thiamine has anti-virus and antibacterial properties.  The eight essential B vitamins work together.  Taking Benfotiamine in addition to the B Complex is safe and nontoxic.  Excess B vitamins are easily excreted because they are water soluble.  New Celiacs are often low in vitamins and minerals due to malabsorption.  Vitamin D can help calm the immune system.  Following a low histamine Paleo diet , like the Autoimmune Protocol Diet by Dr. Sara Ballantyne, a Celiac herself, is also very helpful.  Steroids lower histamine, but the low histamine AIP diet is safer.   This research may be old, but Flushing Niacin does work!!! Nicotinic acid therapy of dermatitis herpetiformis https://pubmed.ncbi.nlm.nih.gov/15412276/ P.S. Wearing natural fibers helps my dermatitis herpetiformis.  Synthetic fibers keep sweat next to the skin, causing further irritation.  Natural fibers wick moisture away, keeping skin dry and exfoliated.
    • Morgan Tiernan
      Hey @Rogol72! thanks for your very helpful response. Those videos are great and super educating! I’ve forwarded them to my family members too as often it can be very difficult to explain to those around you just what you’re going through. Though, I’m fortunate that they’re super supportive and keen to help me get to the bottom of the problem. Interesting how you mentioned soaps and shower gels irritating too! Is it better to rinse off the sweat straight after exercising just with some cool water? Additionally, is minimising soap in those areas during showering helpful too? Or is there a particular soap that may be helpful! I have some more questions about dapsone too, if you don’t mind me asking. As mentioned in my response to Trents, I take prednisolone for when I am glutened or when my symptoms become too unbearable. With oral steroids it’s usually a 4 week dose as I have to reduce my dose to slowly come off them. How long can you take dapsone for? Can it impact your immune system in the same way as oral steroids (I have to be super careful I don’t pick up any infections whilst on my steroids as my immune system is compromised.) Yes, I’m from South Wales in the UK. Though my grandfather is Irish, explaining my surname (very well spotted!)
×
×
  • Create New...