Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have I Been Glutened?! And What To Do!


lvpriest

Recommended Posts

lvpriest Apprentice

Hey everyone,

First off, thank you so so much for your incredibly supportive and insightful responses to my last post (being frustrated!) I've come back from the brink of disappointment to know I know my body better than any one else, and gluten is simply not my friend.

So I have been gluten free now for 2 weeks, and been properly trying to for the last week. Everythign has been going really well - been making my own lunches, uber careful when out...until Sunday morning.

Boy and I had the following for brekkie:

- Coffee (black filter for me, brought from starbucks)

- 2 eggs, pan fried with smoked slamon and pepper (mine fried in oil, his in butter - I'm avoiding dairy too)

- Cherry tomatoes

- A piece of gluten free toast with a drizzle of olive oil

- Grape juice diluted with water

I felt ok immediately after. About an hour later, I was out and felt really light headed, light limbed, all over the place. Then came nausea and all the time complete brain fog. Bought a lemonade to try and settle my nausea, and ate an apple.

Then about 2 hours later (still feeling foggy and out of it) I came over really really hot.

It's now well over 24 hours since that breakfast and I am feeling awful! Ulcer on my tongue, stomach so incredibly round and bloated, no appetite, feeling nauserous, headache, stabbing pain in abdomen, really fatigued, tired, running nose...have I been glutened??!?! Maybe some cc with the toaster (really need to sort this out!)

I read that the glutened 'effect' can be worse if you're accidentally glutened when you've been cutting out, rather than if you gluten yourself when you're still actively eating it - in which cas you feel rubbish generally all the time!

If I have been glutened please, any advice on how I can feel better?! I am leaving for a 2 week holiday in 3 days and I don't want it to be ruined!

Thanks so much!

LP


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MommyStina Rookie

Everyone seems to be a little different, but it sounds like gluten could be the culprit. I also react within an hour of accidentally ingesting something, and the reactions do get progressively worse and stronger each time it happens. The pain, cramping, nausea, and fog hit me pretty hard too, so much so that I now have a prescription for an antinausea/antiemetic on hand for when I DO get glutened.

As far as how to feel better, everyone has something a little different. I am a big proponent of exercise, because it will help your body metabolize things faster. I go for a run or take to dog for a looooong walk. Eat pretty bland for a while (easy on grease,avoid dairy.... I stick to rice, fruit and veggies lightly steamed...raw gets me when I have had a reaction).

I also drink herbal tea and drink LOTS of water. This all seems to help.

Hope you are feeling better sooon!

heatherjane Contributor

Have you thoroughly cleaned your kitchen and/or made yourself a desingated area for your gluten-free dishes, cookware, appliances, etc?

If you are sharing a toaster that could definitely be the culprit. Toasters are nearly impossible to clean entirely. You need a separate one for your gluten free items.

Also, make sure you are using separate utensils for condiments, and replace any scratched cookware that may have prepared gluten-coontaining foods.

MommyStina Rookie

Everyone seems to be a little different, but it sounds like gluten could be the culprit. I also react within an hour of accidentally ingesting something, and the reactions do get progressively worse and stronger each time it happens. The pain, cramping, nausea, and fog hit me pretty hard too, so much so that I now have a prescription for an antinausea/antiemetic on hand for when I DO get glutened.

As far as how to feel better, everyone has something a little different. I am a big proponent of exercise, because it will help your body metabolize things faster. I go for a run or take to dog for a looooong walk. Eat pretty bland for a while (easy on grease,avoid dairy.... I stick to rice, fruit and veggies lightly steamed...raw gets me when I have had a reaction).

I also drink herbal tea and drink LOTS of water. This all seems to help.

Hope you are feeling better sooon!

ooops! I realized I only half addressed your questions....cookware can cause CC as can a shared toaster. We switched to a toaster oven and the tray is dedicated gluten-free. New pots and pans(if your current ones are nonstick or really scratched up) would be a great investment if possible.

cassP Contributor

i dont know about the dizziness- cause to me, it sounds like you had a pretty good breakfast- with protein.

but i do know about stabbing abdominal pains- which i ALSO get with too much fructose- (ie: grape juice, apples).

AND- if i drink too much coffee without a good protein meal- the acid will make me nauseaus.

but the dizziness??? maybe you were CC... ??

ravenwoodglass Mentor

If you haven't gotten a new toaster, yep IMHO you got glutened. When your feeling up to it go out and get a new toaster and do take the advice about things like pans and a new cutting board also.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    2. - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    3. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    4. - MI-Hoosier posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    5. - Sunshine4 replied to Sunshine4's topic in Related Issues & Disorders
      3

      Neurologic symptoms - Muscle Twitching and Hand Tremors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,253
    • Most Online (within 30 mins)
      7,748

    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
×
×
  • Create New...