Has Anyone Suddenly Lost The Use Of One Side Of Ther Body?

[Ahbee]

One afternoon I lost began to loose the ability to use my right side of my body. Within 2 hours I couldn't use my arm or leg. I was admitted into the hospital as a stroke victim. After many MRIs and 4 neurologists, no one had an answer. Many diseases were looked at. For 8 months I continued to go in and out of paralysis. After I was gene typed and diagnosed with gluten intolerance, I went gluten free. I have walked almost everyday since. Only if I mistakenly have gluten, high stress, or become ill will I have trouble. My doctor says I have MCI.(Mild Cognitive Impairment) I know this must have happened to others. I read an article in the Sacramento Bee about a 15 month baby who stopped walking until she was diagnosed with Celiacs. After she went gluten free, she began to walk again. Even if you have had a heavy leg, a leg that drags,or pain in your legs such as shocks of constant aching. I would love to hear from you. Ahbee

[txplowgirl]

Hi Ahbee,

I have always had problems with my lower back going into the back of my legs.

I can remember when I was in school and had to do phys ed. My lower back would suddenly start spasming then my legs would go numb and I would lose my balance and fall, could not walk from several minutes to an hour or so. Was always told I was faking to get out of phys ed. Making it up, lazy, etc.

Dr after dr, test after test, nothing could be found. Finally, after 40 something years was dx'd with fibro, then rhuematoid arthritis, then went gluten free. Wasn't untill after I went gluten free and eliminated the nightshade vegetables that that stopped.

[ravenwoodglass]

Yes, I was thought to have MS at one time. I lost use of my right leg to a great extent and had great difficulty with my hand on that side. I had electromylograms that were flat lined in my leg showing no nerve conduction. In my case it was a gradual loss that actually started in childhood. It did resolve for the most part after I was finally diagnosed celiac, I even had reflexes again after a couple years, but not before I had progressed to Canadian Canes and was told I would soon be in a wheelchair. I still have some issues with movement but for the most part I can walk normally and my hand may have a lag time but it is now useable.

[nora-n]

check out this website:

Open Original Shared Link

[Ahbee]

  On 8/4/2010 at 12:25 AM, nora_n said:

check out this website:

Open Original Shared Link

Thank you, thank you. I feel like I found the last piece to the puzzle of my ailments. When I began to read about Gluten Ataxia, I knew that it was describing exactly what has happened to me. I think I cried for an hour mostly from relief. After 4 neurologists and 1 doctor telling me it was in psychological, I felt now I have proof of the suffering I have been going through. Bless you. Ahbee

[Ahbee]

  On 8/3/2010 at 12:57 AM, txplowgirl said:

Hi Ahbee,

I have always had problems with my lower back going into the back of my legs.

I can remember when I was in school and had to do phys ed. My lower back would suddenly start spasming then my legs would go numb and I would lose my balance and fall, could not walk from several minutes to an hour or so. Was always told I was faking to get out of phys ed. Making it up, lazy, etc.

Dr after dr, test after test, nothing could be found. Finally, after 40 something years was dx'd with fibro, then rhuematoid arthritis, then went gluten free. Wasn't untill after I went gluten free and eliminated the nightshade vegetables that that stopped.

Thank you for your story. Doctors have treated me poorly and embarassed me by telling me to see a psychiatrist. My family kept me going and I found a doctor who believed in me. Yet still no answers until today. I had 3 replies and each gave me the answers I needed. Bless you. Ahbee

[Ahbee]

  On 8/3/2010 at 11:31 PM, ravenwoodglass said:

Yes, I was thought to have MS at one time. I lost use of my right leg to a great extent and had great difficulty with my hand on that side. I had electromylograms that were flat lined in my leg showing no nerve conduction. In my case it was a gradual loss that actually started in childhood. It did resolve for the most part after I was finally diagnosed celiac, I even had reflexes again after a couple years, but not before I had progressed to Canadian Canes and was told I would soon be in a wheelchair. I still have some issues with movement but for the most part I can walk normally and my hand may have a lag time but it is now useable.

Thank you for telling me your story. It has meant so much to me. I have also had to use a wheelchair and walkers. Since going gluten free I have been walking almost everyday. If I mistakenly have gluten I cannot walk. Sometimes my muscles bind up or my joints hurt too much to walk without a walker. But for the most part I am able to walk freely most of the time. My doctor says I have brain damage and I know that I do. I am having to relearn the simple things in life. It wasn't until I joined this forum that I found the answer to this mystery of sporadic ataxia. Bless you. Ahbee

[ravenwoodglass]

  On 8/7/2010 at 10:40 PM, Ahbee said:

Thank you for telling me your story. It has meant so much to me. I have also had to use a wheelchair and walkers. Since going gluten free I have been walking almost everyday. If I mistakenly have gluten I cannot walk. Sometimes my muscles bind up or my joints hurt too much to walk without a walker. But for the most part I am able to walk freely most of the time. My doctor says I have brain damage and I know that I do. I am having to relearn the simple things in life. It wasn't until I joined this forum that I found the answer to this mystery of sporadic ataxia. Bless you. Ahbee

I am glad you now know what has been going on. I never expected my movement issues to go away. Doctors made me feel like I was off mentally and one even told me I wanted to be sick. I had to relearn a lot also but it can be done. Stay strict with the diet and I hope you can heal as much as I did. I found a physical therapist to be quite helpful. You may want to see if you can get a referral to one.

[GlutenFreeManna]

Not nearly to the extent that you are describing, but I lost some use of my right hand. It would sporadically go numb like it had been injected with that stuff they give you for oral surgery. I could move my fingers, but I couldn't control the movements very well and couldn't pick things up or open things with that hand. I also had numbness on one half of my face, which led me to freak out and think I was having mini-strokes or something. I went to two different neurologists, had an MRI of my entire spine, several other tests and nothing turned up. I also had a doctor imply to me that perhaps I should see a counselor when I was unable to shake his hand (I couldn't control my grip). That was the beginning of the end for me with doctors.

[nora-n]

I do not know where my feet are, if I get glutened sometimes.

There are even a couple of forums for those with neurological issues from gluten, go to braintalk and scroll down to gluten sensitivity, and neurotalk, same thing. They have stored a lot of useful links from medical papers.

It might help you talk to doctors.

It might help the cause of more with gluten ataxia get diagnosed.

The subject is actually still controversial in medicine.

Even though they ahve identified which ttg antibody is responsible, it is ttg-6.

And antigliadin.

ttg-2 is responsible for celiac in the gut

ttg-3 is responsible for DH, celiac in the skin

[Ahbee]

  On 8/8/2010 at 9:49 AM, nora_n said:

I do not know where my feet are, if I get glutened sometimes.

There are even a couple of forums for those with neurological issues from gluten, go to braintalk and scroll down to gluten sensitivity, and neurotalk, same thing. They have stored a lot of useful links from medical papers.

It might help you talk to doctors.

It might help the cause of more with gluten ataxia get diagnosed.

The subject is actually still controversial in medicine.

Even though they ahve identified which ttg antibody is responsible, it is ttg-6.

And antigliadin.

ttg-2 is responsible for celiac in the gut

ttg-3 is responsible for DH, celiac in the skin

Hi Nora,

I don't know what ttg-6 is. I did go to braintalk. From there I have found out so much more information about my condition. I am extremely sentitive to gluten.. I can't even touch it without nightsweats. Gluten to me is like poison and I will never leave gluten free living. Ahbee

[Ahbee]

  On 8/3/2010 at 12:57 AM, txplowgirl said:

Hi Ahbee,

I have always had problems with my lower back going into the back of my legs.

I can remember when I was in school and had to do phys ed. My lower back would suddenly start spasming then my legs would go numb and I would lose my balance and fall, could not walk from several minutes to an hour or so. Was always told I was faking to get out of phys ed. Making it up, lazy, etc.

Dr after dr, test after test, nothing could be found. Finally, after 40 something years was dx'd with fibro, then rhuematoid arthritis, then went gluten free. Wasn't untill after I went gluten free and eliminated the nightshade vegetables that that stopped.

Hey txplowgirl,

I don't understand about doctors not knowing about Celiacs and it's many complications. I think now their telling us that our symptons are psychological and their way of saying "I don't know, but I am too proud to admit it. Easier to blame the patient." Ahbee

[Ahbee]

  On 8/7/2010 at 11:06 PM, ravenwoodglass said:

I am glad you now know what has been going on. I never expected my movement issues to go away. Doctors made me feel like I was off mentally and one even told me I wanted to be sick. I had to relearn a lot also but it can be done. Stay strict with the diet and I hope you can heal as much as I did. I found a physical therapist to be quite helpful. You may want to see if you can get a referral to one.

Hi Ravenwoodglass,

Even though I have been totally gluten free for 8 months, sometimes I still have trouble. My doctor says I will always struggle with my brain due to brain damage. For instance, when my cat was run over within minutes I was unable to walk and use my arm. My doc say its because my brain went back to it's old damaged pathways due to the shock. She says I am doing good building new neurotransmitters. But if I get too tired or over taxed I sure struggle. Ahbee

[ravenwoodglass]

  On 8/14/2010 at 11:41 PM, Ahbee said:

Hi Ravenwoodglass,

Even though I have been totally gluten free for 8 months, sometimes I still have trouble. My doctor says I will always struggle with my brain due to brain damage. For instance, when my cat was run over within minutes I was unable to walk and use my arm. My doc say its because my brain went back to it's old damaged pathways due to the shock. She says I am doing good building new neurotransmitters. But if I get too tired or over taxed I sure struggle. Ahbee

It does take a very long time for the brain to repair. It has taken me literally years to get to the point I am at now so don't give up hope. Progess has been slow but steady but every glutening set me back. It is hard to be patient and I struggle still too when I get over tired. One thing that did help me a great deal was a Physical Therapist. They can be helpful in retraining the brain and muscles. I can now walk down stairs without hanging on for dear life and going step by step, something I still couldn't do a little over a year ago. If you don't see a good one now see if perhaps your doctor can refer you to one. Not an instant cure by any means but mine was able to help me alot.

[Ahbee]

Hi Ravenwood,

It seems like I have periods of days that are good and bad. Even though I feel sure I gluten free, it's hard to understand why my bad days occur. I'm glad you said something about tireness. By afternoon it seems like I have lost my brain. My doc says no afternoon driving. If anything out of the ordinary happens, negative or positive, my brain shuts down and so do my leg and arm. Being tired or sickness, I struggle. It makes me feel better knowing your improvement over the years. Thanks, Ahbee

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