Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired Of Being Tired, Help.......


sandiz

Recommended Posts

sandiz Apprentice

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Skylark Collaborator

I was thinking the same thing about the cravings and nutrition. I used to crave fruit too. I would buy smoothies, V-8, and those heavy-duty Odwalla juices at the health food store and I usually felt a little better. Emergen-C was another thing I used to really like. I stopped craving fruit so much when I got onto my heavy duty mulitvitamin/mineral/trace element supplement. It's interesting as I think about it because I've been experimenting with taking less and I came home from Costco with a case of V-8. :lol: (Note to self: back to higher dose of vitamins!)

I bet you need to get on a good multivitamin/mineral. Fruits and veggies have lots of soluble vitamins and trace elements. Solgar makes really good supplements. I also need to take a couple capsules of double-strength fish oil every day to sleep well.

Also, you might want to get your thryoid checked. Lots of us have thyroid problems.

kaki-clam Enthusiast

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

I have been gluten free for nine months ( I mention this as it isn't much longer than yourself) and have the same problems with sleep. When I do sleep I have terrible scary dreams about people stalking me and/or trying to kill me, which pretty much means that the sleep I get isn't the deep kind that your body needs. My doc just put me on Kava Kava and 5-HTP both to help calm my anxiety and assist in sleeping. I went the sleeping pill route and it didn't work for me...but that doesn't mean you shouldn't give it a shot. Talk to your doc and see what s/he says about the sleep thing...life without sleep has been very rough. I have just started the other things so I will try to remember to let you know how they are working. If you find something that works for you I'd love to hear about it..and worse case...we can stay up all night together chatting :)

anabananakins Explorer

Tiredness could also be vitamin D deficiency. My iron and b12 were fine but my Vit D was terribly low - I scored 2 and he said it should be at least 50, optimum 70 and mine being so low explained why I feel like death warmed up. It puts you at risk of a bunch of awful things so worth getting tested.

RiceGuy Collaborator

I agree with the suggestion of vitamins, especially B12 and other B vitamins. All the suggestions so far seem worth considering.

I find I sleep way better now than I ever could before. Even after being gluten-free for quite awhile, sleep just wasn't something I'd get much of, and what little I got wasn't quality sleep. But since I started taking a sublingual methylcobalamin (active form of B12) tablet, I sleep quite well. I take 5mg about an hour before going to sleep, which seems to make it work even better. I think the sublingual tablet/lozenge type is better than the liquid, because it stays under the tongue far longer, allowing better absorption.

Hope you feel better soon!

sandiz Apprentice

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Thanks you for your post. I was diagnosed with IBS for over 10yrs. I do eat meat every day and starch, potatoe and rice. Canned fruit goes to work with me I have bananas, strawberries, blueberries, melons. Lately it is corn on the cob, being the season for it too, but that is my starch choice as of now. Iron and thyroid checked in Jan and was told everything was fine. I was taking vit D for my SAD in the winter time and thankfully this was the first yr I didn't get too depressed. Yes I have had scary dreams and vivid dreams, but also I wake because I am not feeling good or not go to sleep because I am not feeling good. This also puts a damper on your personal live.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,514
    • Most Online (within 30 mins)
      7,748

    PaulK
    Newest Member
    PaulK
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.