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Gluten'ed :(


firefightersgal

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firefightersgal Apprentice

I'm not exactly sure where I got a dosage of gluten, but it's quite obvious that I had some. I noticed yesterday that I had DH all over my back. Then, last night, I was unable to sleep because the backs of my legs were itching so bad. I also felt generally 'blah' yesterday. I feel more awake today, but I'm still itching. I'm guessing it will take a few careful days before it gets better. :(

On another note, I have yet to hear back from my doctor on my blood test results. I have a two-week follow up appointment on Friday, so I assume they are just waiting to tell me the results, then. How annoying. I hope, hope, hope that the blood test is positive, because I have a feeling my doctor won't take me too seriously unless it is.


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K8ling Enthusiast

If you have DH you have celiac. DH only comes with celiac. I hope you feel better!!!

Skylark Collaborator

Sorry you got into wheat. Must be awful to break out on top of feeling crummy. Like K8ling says, DH is celiac no matter what your blood test says. Also, a dermatologist can biopsy next to an outbreak of you want a firmer diagnosis.

GirlScout Newbie

sorry, a little off topic, new here... but what is DH? Thanks

firefightersgal Apprentice

I'm glad I have you all to tell me about DH=Celiac. I've read that here before, but I'm not sure what my doctor's take will be on it. He didn't seem overly thrilled when I came in with the idea of a potential diagnosis.

Side note: I hate that I spelled gluten wrong in the title of this post! I can't fix it and it's bugging me. So sorry :)

psawyer Proficient

DH refers to Dermatitis Herpetiformis, the skin rash manifestation of celiac disease.

BTW I fixed the title.

firefightersgal Apprentice

DH refers to Dermatitis Herpetiformis, the skin rash manifestation of celiac disease.

BTW I fixed the title.

Thanks for fixing my title! I knew that DH stood for Dermatitis Herpetiformis, I just meant that I appreciate that the folks here have validated that if I have DH, I have Celiac. :)


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    • Wheatwacked
      The short answer is if it hurts, don't do it. Yogurt may help sooth your gut and repopulate it with benificial bacteria.  I prefer whole milk yogurt because it is not processed and the no fat yogurt is processed dehydrated milk powder with guar gums and water added to make it mouth feel like fat.  Especially in early healing there may be other foods you cannot tolerate for a while.
    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
    • Celiacsugh
      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
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