Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New!


Cheryl-C

Recommended Posts

Cheryl-C Enthusiast

Hi there,

What a great site! I've been reading some threads here and I can see a lot of you are very well-informed. What a relief, considering how many shady websites there are out there.

So I've been doing gluten-free for about 3 weeks, with a couple of stumbles here and there. I've been sitting on the blood test because when my doctor gave me the forms I was out of work and couldn't afford the money to get it done. Now that I've taken gluten out of my diet, I don't want to have to start eating it again after finally starting to feel a bit better!

I'm wondering if anyone else has had sinus trouble related to ingesting gluten? I ate some ice cream today without thinking - it had cookie dough inside which, of course, is made with wheat flour. I didn't think anything of it until about 15 minutes after eating, I ended up with a wicked sinus headache, and also some stomach cramps. Has anyone else had this reaction?

Also - how long does it take for gluten to clear your system? Before cutting it out of my diet, I had a very unpredictable stomach, especially my bowels. Lots of pain, cramping, and sudden urges, some D though more often just frequent BMs. Since cutting out gluten, I've noticed my bowels have calmed down some, though not as much as I'd hoped. Any ideas on a timeline? (And yes, I know - forgetting to check labels will only set me back!)

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Hi, and welcome.

It took a couple months for my GI system to settle down. Longer for the mental/emotional problems from gluten to go away.

I don't get sinus trouble, but gluten will give me asthma problems sometimes. The inflammation it causes seems to go through my whole body.

cassP Contributor

ive had horrendous sinusitis off & on for the last 5 years... it would get better off gluten. ive only been 100 % gluten free for almost 5 weeks. i have had some sinus issues but it's been much better. i get an elevated congestion with dairy.. but the miserable allergy sinus headache i HAVE gotten- once with a Soy/Agave Nectar Miso gluten-free salad dressing... and recently when i made gluten-free Red Velvet Cupcakes.

it MUST have something to do with our stomach- i know it. i KNOW there are several more things that i should not be eating- but baby steps-

good luck.

mushroom Proficient

From reading posts on the board here, there does seem to be a strong relationship between gluten and sinus problems. And not just gluten. I find wine gives me a stuffy nose, not bad enough to make me give it up entirely because I need some things in my diet :blink: . My husband had constant sinusitis until he quit gluten. Allergies in the spring followed by sinus infections all summer. No more. And thank goodness because he was the loudest sneezer!!! :lol:

Cheryl-C Enthusiast

It's interesting that I'm not the only one with the sinus response, thanks for sharing your experiences. When I woke up this morning I still had the headache, though thankfully it wasn't as bad as it had been earlier.

My stomach/bowels, unfortunately, a bit of a different story. Nothing too horrendous, but still, I've had that uncomfortable gnawing feeling and some gas pains. Ugh. Another setback!

Thanks to all for the insight. I'm sure I'll have more questions - it's nice to know there's a place to come for answers!

bluebonnet Explorer

i was very prone to catching everything from the common cold to pnuemonia. i had pnuemonia 4x's over the past several years despite taking medications properly and doing everything the doctor said. i was so susceptable because my immune system was shot. haven't had a sinus infection yet this year ... thank you Lord! :) hopefully you will see an improvement!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

    2. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    3. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    4. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - pdm1981 replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,851
    • Most Online (within 30 mins)
      7,748

    Roselle
    Newest Member
    Roselle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
    • pdm1981
      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5 days. It was unbelievable. I had what would've been 4 years of testing back home done in 5 days. I went home at the end of 5 days and got my results a week later on a zoom call. EPI and rapid gastric emptying syndrome. I do have celiac disease but that wasn't the cause of my continued symptoms. Those people up there are great. Wouldn't that be amazing if all medical care was like that?  That's weird that the antibodies are that high. Hopefully it's not refractory celiac disease. Good luck.
×
×
  • Create New...