Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Young Adults In Dairy Denial D:

HSM

By HSM
in Meet Up Room

Recommended Posts

HSM Newbie
HSM
Posted

I have been eating gluten-free for over a year now, and although symptoms have improved, I am still sensitive to dairy. I have eliminated a large majority of the dairy from my diet, but am still consuming SOME yoghurt (plain),cottage cheese, natural chedder cheese and worst of all, the occasional bowl of ice cream

I tend to regret it within a few hours but I'm too stubborn to quit dairy all together

Is anyone else out there experiencing dairy withdrawls?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Absolutely! it's so hard- some dairy im ok with- small amounts of cottage cheese, ricotta, & butter. but cream, milk, ice cream, & aged cheese are hard on my system :(

i have to stop it or limit it, but im not ready yet <_<

so, ya i totally understand.

oh, also, i get GOAT milk yogurt at whole foods- and am fine with it. and Hemp milk with my gluten-free cereal- not bad.

HSM Newbie
HSM
Posted
  • Author

Absolutely! it's so hard- some dairy im ok with- small amounts of cottage cheese, ricotta, & butter. but cream, milk, ice cream, & aged cheese are hard on my system :(

i have to stop it or limit it, but im not ready yet <_<

so, ya i totally understand.

oh, also, i get GOAT milk yogurt at whole foods- and am fine with it. and Hemp milk with my gluten-free cereal- not bad.

I drink almond milk straight, and with cereal... It's quite good and one of the better milk alternatives (nutrition-wise)

I am sensitive to goat milk/cheese as well, but I have tried Soy cheese and it's not bad...just not the same :(

Have you tried the lacteeze (sp.?) pill? I've heard it helps but I am a little hesitant to try it

missceliac2010 Apprentice
missceliac2010
Posted

I drink almond milk straight, and with cereal... It's quite good and one of the better milk alternatives (nutrition-wise)

I am sensitive to goat milk/cheese as well, but I have tried Soy cheese and it's not bad...just not the same :(

Have you tried the lacteeze (sp.?) pill? I've heard it helps but I am a little hesitant to try it

I stay away from lactose as much as possible. On the internet somewhere I found a clear listing of how much lactose is in a variety of commonly consumed milk products. I have the list posted on my refrigerator. I totally avoid cow's milk (very high level of lactose) and ice cream (also high). I do however, eat cheeses and frozen yogurt with fairly good success with the help of Lactaid pills. The problem is remembering to take 2 before I eat the cheese or fro yo. My bf jokes that we need another sign on the fridge that says "Did you take your Lactaid yet?" LOL! If I take the Lactaid (and you can get cheap generic versions at Wal-Mart or Target), then I tend to be fine. If I forget, or take it after the first bite or two, forget it...it's a waste of time/money/energy. You must take it before your first bite to get it to work.

Good luck, and I highly recommend vanilla soy milk or almond milk for cereal, soy yogurt (still yummy) and Lactaid for anything else you dairy that you simply can't live without or are too stubborn to give up. (Yes, I'm a stubborn red-head...and I want my cheese and fro-yo dang it!) :0)

  • 1 year later...
SkylerGurl05 Newbie
SkylerGurl05
Posted

I'm lactose intolerant I diagnosed myself! I can not what so ever have milk! Like in some ice creams. Mashed Potatoes, have milk, green bean casserole.. But pretty much I can have cheese, yogurt.. I also take Lactaid pills 1pill if I want chocolate milk! Lol but like at thanksgiving I ate green bean casserole and totally forgot that it had milk in it about 20-30 mins later my tummy starts hurting so bad and I thought great it had milk in it... So I quickly take the Lactaid pill and my symptoms slowly go away!

Booghead Contributor
Booghead
Posted

I self diagnosed lactose intolerance before I was diagnosed with Celiacs. The only thing I avoid is milk. I am thinking I should probably cut it all out. And I have never heard of Lactaid pills? Can anyone explain? :P But before I stopped drinking milk I was feeling these severe withdrawals to drink it. And not just a glass but several. As soon as I cut if off for a free days it stopped. I still want an occasional drink but I ignore it and grab another glass of water... I drink LOTS of water.

  • 1 month later...
Nxsquid Newbie
Nxsquid
Posted

I can't give up cheese, no matter how much it makes my stomach hurt or how much my mom badgers me. I'm not a shining example, sorry xD

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

I can't give up cheese, no matter how much it makes my stomach hurt or how much my mom badgers me. I'm not a shining example, sorry xD

I'm SOOO with you. By comparison, giving up gluten was way easier then giving up cheese... and butter. I can give up all the other dairy... but not cheese and butter... period.

Skylark Collaborator
Skylark
Posted

I want milk in my coffee again. *whine* Don't even make me think about cheese. :(

I tolerated dairy for a while but right now it makes me feel ill and tired. I am off it strictly but not happy about it.

GFinDC Veteran
GFinDC
Posted

i eat Daiya cheese substitute instead. Daiya is soy free and dairy free. Not too bad really.

I wonder if coconut milk would be good in coffee? Maybe with a little cinnamon sprinkled on? :)

Skylark Collaborator
Skylark
Posted

i eat Daiya cheese substitute instead. Daiya is soy free and dairy free. Not too bad really.

I wonder if coconut milk would be good in coffee? Maybe with a little cinnamon sprinkled on? :)

That Daiya looks good but I'm avoiding starch in the hopes of healing my gut and tolerating dairy again. I'm really glad to know it's out there, though.

The best I've found for coffee is almond milk. Coconut milk isn't bad but it's kind of thin. Rice milk is thin too, plus it has starch. Soy milk tends to curdle if you like your coffee hot the way I do. (Plus I'm avoiding soy.) Hemp milk is awful, at least the brand I tried. It has a strong flavor that clashes with coffee.

revenant Enthusiast
revenant
Posted

Yeah have trouble with dairy, I sometimes go back and forth, have trouble staying off of it, it's really addicting! It goes right along with my intense sugar addiction and i also have a sugar sensitivity. Chocolate, oh my god... Chocolate...

Coconut milk is really good replacement. I find it's especially milk like in icecream, and you can even make it yourself at home with some cans of full fat coconut milk, or buy the coconut bliss brand. Has anybody tried home-made nut milks? Almond, hazelnut or cashew milk? I've tried almond milk but I didn't make it almondy enough so it tasted watery, but I hear it can be quite good made with a good blender.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

I used to be severely lactose/casein intolerant. I've been off gluten for a year and a half, and I gradually was able to tolerate ice cream, heavy whipping cream, and butter. Any aged cheeses, cheese, yogurt, half and half, etc, almost killed me. Now I can eat it all. :P

  • 2 weeks later...
Buffheart Apprentice
Buffheart
Posted

I first suspected lactose intolerance a few months ago but was too stubborn to eliminated it. You are talking to a person who used to drink 3-6 glasses of milk a day. That's in addition to the cereal, cheese, coffee creamer, etc. I've tried soy milk and rice milk as well as soy ice cream, but it's just not the same. It doesn't smell the same nor taste the same and I can never make myself stick with it for long, though I am still trying. Sigh.

Skylark Collaborator
Skylark
Posted

I finally figured out something good for coffee. Use the rich coconut milk that comes in a can, not the watered-down "coconut milk" beverage. B) I even found an organic brand that doesn't have any guar gum or other additives. It gets a little lumpy in the fridge from the coconut oil but it dissolves fine in hot coffee.

  • 2 weeks later...
pixiestargirl Newbie
pixiestargirl
Posted

Aside from having the worst time giving up cheese (or even cutting back; I eat it on a near daily basis), I'm a Starbucks barista so there are constant dairy temptations. I have a cane sugar sensitivity so I try to avoid the soy milk, and the Lactose free milk makes me gassy :(

Plus, I have a ridiculous weakness for whipped cream when I'm at work.

Argh!

  • 4 weeks later...
thecritter93 Newbie
thecritter93
Posted

Oh wow! This thread made me laugh so hard! I joined up just so I could reply!

My GP thinks I may be a Coeliac because I am bordering on being anemic. No matter what I do, I can't get my iron levels up!

Anyway, yeah I laughed cause this is so me! I was told that I was lactose intolerant as a baby/young child, but I eventually was able to tolerate dairy. I mean, if I had a milkshake/iced chocolate from The Coffee Club or something I'd feel really ill, but how often did I have them? I also had problems if I had a fair bit of chocolate.

Just recently, over Christmas, I was staying at my grandparents place for the week, and they have a crazy number of teas and coffee's. In one day we had 4 cups of tea, 2 coffees, two small bowls of ice cream and yogurt. I thought my stomach was going to explode!! Since then, I seem to be having difficulty with any lactose at all! Before I started the Coeliac diet, I was having the low fat Zymil milk on cereal which was much better. Recently I've been ignoring the whole dairy thing, and just having it anyway.. icecream (gluten-free gelato - I swear it has lactose!), iced coffees (on skim milk, no ice-cream/cream).. chocolate.. yogurt.. cheese.. OUCH!!! This morning my stomach feels as if it's just going to run away and leave me here - I wouldn't blame it actually!! :P

It's so good to know that there are other people who are like me, and keep messing up!

  • 5 weeks later...
desperateforhealth Apprentice
desperateforhealth
Posted

YESS! I miss dairy so much. But I quit it for good when I quit gluten almost three months ago. Today was the first time I have had chocolate in almost THREE MONTHS just because I never wanted to buy any that was dairy free, and then finally today I found some that my parents bought. It was beautifully delicious, I am still high from the endorphin.

I miss cheese the most though. :(

CassandraMajere Newbie
CassandraMajere
Posted

I have been eating gluten-free for over a year now, and although symptoms have improved, I am still sensitive to dairy. I have eliminated a large majority of the dairy from my diet, but am still consuming SOME yoghurt (plain),cottage cheese, natural chedder cheese and worst of all, the occasional bowl of ice cream

I tend to regret it within a few hours but I'm too stubborn to quit dairy all together

Is anyone else out there experiencing dairy withdrawls?

Ooh BIG time. When I cut dairy for the first time in 7th grade, I craved milk all the time. Though nowadays I've lost my taste for dairy milk because soymilk is so much richer and creamier, but other treats like cookies, ice cream, cheese, and pizza I miss bitterly. Whenever my friends are eating them around me and I'm not, I feel so deprived and like I'm sacrificing my soul.

mushroom Proficient
mushroom
Posted

I first suspected lactose intolerance a few months ago but was too stubborn to eliminated it. You are talking to a person who used to drink 3-6 glasses of milk a day. That's in addition to the cereal, cheese, coffee creamer, etc. I've tried soy milk and rice milk as well as soy ice cream, but it's just not the same. It doesn't smell the same nor taste the same and I can never make myself stick with it for long, though I am still trying. Sigh.

Try hemp and almond milk and coconut ice cream :)

Ninja Contributor
Ninja
Posted

I'm with you guys. I can't let go of the cheese. :(

  • 1 month later...
patz16 Rookie
patz16
Posted

Yeah, I was in denial about the lactose intolerance last week but I was getting very sick again so I was forced to get rid of it and now I feel a lot better because of it. When I have the cravings I try to remember the times in my life where I would have given anything up to feel ok again. It usually doesn't seem as bad after that. Plus imitation cheese is good too :) and some lactaid ice cream

anabananakins Explorer
anabananakins
Posted

This thread is helping psych me up to go dairy free. It seems so much harder than gluten free, but I've had two months straight of respiratory stuff and that coincides with a higher than usual for me dairy intake...it's time to give it a real try.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,954
    • Most Online (within 30 mins)
      7,748
    Godfather
    Newest Member
    Godfather
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Vaccines

      By Beverage · Posted

      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      Facial pain

      By trents · Posted

      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
    • Mnofsinger
      Facial pain

      By Mnofsinger · Posted

      Hi @CeliacMom502, As always, consult a medical professional on any advice you receive.  I experience have experienced this exact symptoms you're referring to and will receive them, typically after being accidentally glutened. I've recently been researching this (that's how I came across this posting), because I've been trying to nail down how long I've actually had the celiac genes "activated" or if I was just born with it. Now I wasn't diagnosed until 2023 with Celiac Disease, but not all these other health issues I've had previously point to it all connecting. In 2013 I ended up with Bell's Palsy that I had facial paralysis on one side of my face, where I couldn't even get a twitch for six months, but it took almost a year for "full recovery". I have now came to the conclusion that, because of the B12 vitamin deficiency caused by celiac disease (when not following a strict gluten free diet), caused me to have prolonged recovery from this, because the nerves were healing at a much lower rate> I'm not sure if your daughter has ever had Bell's Palsy, but ever since I have, some of my symptoms when I accidentally get glutened (including right now as I type this message 😄) include a migraine that goes across my eyes, and a shooting pain as you have described that will go across my left cheek and upper jaw, in addition to pain behind my left ear, and painful to the touch. Now, I did immediately go on a gluten free diet, and almost all these symptoms vanished after 3-4 months, but that time frame depends upon the "damage" already done previously.  Hope my situation helps even now this is now almost three years later from your message!  
    • Scott Adams
      Celiac-safe home for summer rental in Washington DC

      By Scott Adams · Posted

      It's nice to see celiac-safe options out there for guest homes.
    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      Your situation involves interpreting elevated Deamidated Gliadin Peptide (DGP) IgG levels, which can indeed be confusing without clear symptoms or additional diagnostic tools like a biopsy. Here’s a possible approach to help clarify your next steps: Understanding DGP IgG: DGP IgG is a blood test often used to help diagnose celiac disease, particularly in individuals with IgA deficiency. However, since you’ve confirmed you don’t have IgA deficiency, the focus should shift to other celiac-specific tests, such as tissue transglutaminase IgA (tTG-IgA) and endomysial antibodies (EMA-IgA), which are more specific for celiac disease. Elevated DGP IgG alone is not diagnostic of celiac disease but may indicate gluten-related immune activity. Non-Celiac Gluten Sensitivity (NCGS): You’re correct that NCGS does not typically show abnormalities in blood tests like celiac disease does. NCGS is diagnosed based on symptoms (e.g., bloating, fatigue, brain fog) that improve on a gluten-free diet, after celiac disease and wheat allergy have been ruled out. Since you don’t currently have symptoms, NCGS seems less likely in your case. Possible Next Steps: Monitor Symptoms: If you remain asymptomatic, it’s reasonable to continue eating gluten and retest after some time. This is because celiac disease can develop or become symptomatic later, and ongoing gluten consumption is necessary for accurate testing. Repeat Testing: Consider repeating the tTG-IgA test, as it is the most sensitive and specific for celiac disease. If this is also elevated, it strengthens the case for further investigation. Genetic Testing: If available, HLA-DQ2 and HLA-DQ8 genetic testing can help rule out celiac disease if negative, as nearly all celiac patients carry one or both of these genes. However, a positive result doesn’t confirm celiac disease, as these genes are common in the general population. Dietary Trial: If testing remains inconclusive and you develop symptoms, a supervised gluten-free diet trial might provide clarity. However, this should only be done after thorough testing, as going gluten-free prematurely can interfere with accurate diagnosis. Biopsy Limitation: Since a biopsy is not available in your town, you’ll need to rely on blood tests and clinical judgment. If your tests remain inconclusive but you develop symptoms, you may need to travel to a facility that can perform a biopsy for definitive diagnosis. In summary, if I were in your position, I would continue consuming gluten, monitor for symptoms, and retest with more specific celiac markers (tTG-IgA and EMA-IgA) in a few months. If symptoms develop or tests remain ambiguous, consulting a gastroenterologist for further guidance would be advisable. Always work with a healthcare provider to interpret results and tailor next steps to your specific situation.
×
×
  • Create New...