Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia Was Improving


bluebonnet

Recommended Posts

bluebonnet Explorer

for me, its been almost 14 years of dealing with insomnia. thankfully though i have noticed that i am sleeping better now a days (avoiding gluten since beginning of this year). i'm still unsure of what each night will bring (fall alseep quickly but wake up way too soon or not sleep at all or only a few restless hours). but its improving A LOT and it has taken me months to notice this difference. i waited and waited because others here reported insomnia will improve. i'm happy to say its a relief to get a good night's sleep (and more of them). :)

unfortunately though, if i eat gluten i don't sleep. i somehow came across gluten again yesterday (cc's happening quite a bit this summer!!!) and last night was awful. no sleep, weird dream with anxiety and racey heart palps. i'm always happy to see the light of a new day when i have nights like this. ugh. something is constantly contaminating me with gluten but i can't figure it out. guess that will always be a challenge. but ending this post on a positive note ... those of you struggling with insomnia, it will improve. :)

  • 5 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

for me, its been almost 14 years of dealing with insomnia. thankfully though i have noticed that i am sleeping better now a days (avoiding gluten since beginning of this year). i'm still unsure of what each night will bring (fall alseep quickly but wake up way too soon or not sleep at all or only a few restless hours). but its improving A LOT and it has taken me months to notice this difference. i waited and waited because others here reported insomnia will improve. i'm happy to say its a relief to get a good night's sleep (and more of them). :)

unfortunately though, if i eat gluten i don't sleep. i somehow came across gluten again yesterday (cc's happening quite a bit this summer!!!) and last night was awful. no sleep, weird dream with anxiety and racey heart palps. i'm always happy to see the light of a new day when i have nights like this. ugh. something is constantly contaminating me with gluten but i can't figure it out. guess that will always be a challenge. but ending this post on a positive note ... those of you struggling with insomnia, it will improve. :)

This DOES make me feel better.Thanks! I have so many horrible symptoms, but years of insomnia--especially ridiculous the past 3 --have taken their toll on me. Some nights, I only got 2 hours. Some nights, I was wide awake the entire time. I was "thrashing around" so much, with anxiety, heart racing and pounding, muscle and joint burning pain, I thought I was going mad! I feel so hopeful reading the posts that say how symptoms resolve after being diagnosed and eliminating gluten. I KNEW in my heart that it was not "just hormones" and "stress".

adab8ca Enthusiast

That is fantastic!

I too had crippling insomnia, days without sleeping. I was literally a crazy person. Dr gave me ativan to sleep and it saved my life. Don't need it now, 5 months gluten-free. I can have coffee and sleep!

Sleep is such a relief and so necessary to heal.

IrishHeart Veteran

That is fantastic!

I too had crippling insomnia, days without sleeping. I was literally a crazy person. Dr gave me ativan to sleep and it saved my life. Don't need it now, 5 months gluten-free. I can have coffee and sleep!

Sleep is such a relief and so necessary to heal.

Another positive post about insomnia improving! THANKS and hooray!! Believe it or not, I even tried ativan, lunesta, seroquel, xanax,and valium...(not all at once LOL) and they left me wide awake, in pain and jittery from the drugs...geesh...no herbal stuff worked either. I gave up.

I can say I do sleep better now, but 5 hours still just isn't enough. I look forward to sleeping better and longer!

It REALLY helps to hear these words!! You guys are great to share so much with others. Helps immensely!!:>)

  • 2 weeks later...
Igg postive Rookie

for me, its been almost 14 years of dealing with insomnia. thankfully though i have noticed that i am sleeping better now a days (avoiding gluten since beginning of this year). i'm still unsure of what each night will bring (fall alseep quickly but wake up way too soon or not sleep at all or only a few restless hours). but its improving A LOT and it has taken me months to notice this difference. i waited and waited because others here reported insomnia will improve. i'm happy to say its a relief to get a good night's sleep (and more of them). :)

unfortunately though, if i eat gluten i don't sleep. i somehow came across gluten again yesterday (cc's happening quite a bit this summer!!!) and last night was awful. no sleep, weird dream with anxiety and racey heart palps. i'm always happy to see the light of a new day when i have nights like this. ugh. something is constantly contaminating me with gluten but i can't figure it out. guess that will always be a challenge. but ending this post on a positive note ... those of you struggling with insomnia, it will improve. :)

Your post is encouraging. I have suffered from insomnia. I never related it to anything. I am waiting till it will get better for me.

  • 3 weeks later...
healinginprogress Enthusiast

Yes, your post is encouraging as I lie here awake since 5am lol But I hope you found out what was glutening you!

jackay Enthusiast

I, too, have severe insomnia issues. I can only say that I am so exhausted it hurts. I get very anxious without sleep (who doesn't). My latest pattern is my body (mind) only allowing sleep every other night. I've tried the drugs and natural remedies and saw no improvement. Some of them made me a lot worse.

I always thought the insomnia didn't get better because of first gluten and then when that was out of my diet, cross contamination. I'm still not positive it isn't. I'm having more testing done to see if anything else shows up. It would be nice to find a cause but I'm not counting on it.

The latest approach I am tring is cognitive behavioral sleep therapy. It is to retrain my brain for sleep. Don't know how successful this will be but I'm giving it a try. I know if cc or some other food intolerance is causing the insomnia, therapy isn't going to help much. However, if it helps a little, it will be worth it.

If anyone is interested in this approach look it up online for more information. This is the basics:

1. Restrict your hours of sleep. Average your sleep for a week and start with that. However, do not go under four hours per night.

2. There can be no light in the bedroom. (I actually taped tagboard over my window.)

3. If you are awake more than 15 minutes, get up and do something else for a while.

4. Always use an alarm clock to wake up.

5. If you sleep 95% of the time, increase your sleep time in 15 minute increments. If you sleep less than 80% of the time, decrease your time in 15 minute increments (not going less than four hours).

6. The designated bedroom for this can be used only for sleep and sex.

I'm just transitioning into this as I have a terrible cold and right now I feel resting in bed is better than nothing. I am getting up if I can't sleep. I gave up reading in bed. Oh now I miss that. :(

If anyone has tried this approach, let me know if it has worked for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 7 months later...
RobinsEggBlue Newbie

That is fantastic!

I too had crippling insomnia, days without sleeping. I was literally a crazy person. Dr gave me ativan to sleep and it saved my life. Don't need it now, 5 months gluten-free. I can have coffee and sleep!

Sleep is such a relief and so necessary to heal.

I was pleased to hear you no longer need the ativan! I begged and my doctor finally gave it to me. I was cautioned to only use it every now and then as it is addicting and the more I used it the sooner my body would build up a tolerance to it. I've been taking it only every third night or so but after last night I am about to go nuts. I have been lying awake until about 3 and then finally sleeping, unable to get up until 10-11. Last night all I did was toss and turn the ENTIRE night. I am 53 and have had insomnia for over 30 years. I used to take Elavil for both pain and insomnia until it stopped working. Now that I have RA pain that isn't responding to the appropriate meds it is keeping me up more and more.

I only have .25 mg tablets which I quarter!!It is enough to make me sleep within 20 minutes and for the whole night. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,796
    • Most Online (within 30 mins)
      7,748

    Maria1981
    Newest Member
    Maria1981
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Manaan2
      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...