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More Testing On Tummy Problems

skgirl

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skgirl Newbie
skgirl
Posted

So here is my coles notes story....

I have had bad tummy problems since I can remember but they got really bad at the age of 16. I was a late bloomer almost 15 when puberty hit. Originally I chalked it up to food (mostly meat intollerance) My mother and Grandmother have the same problem. Two years ago I had been getting really bad/sharp stomach pains about 15 mins after eating and it didn't matter what it was. Went to the Dr.'s whom then sent me for blood tests and a colonoscopy (for crohns & colitis) which didn't go well felt every minute of it finally told the Dr. to stop because the pain was unberrable (and I have had 3 kids 1 all natural). When the results had gotten to my GP they said they were inconclusive... hmm i wonder why??? Anyways I had about enough of being poke and prodded at so I stop testing. My friends's new gluten-free (a nurse & celiac) suggested that I go and get tested for Celiac. I went to a new Dr. (i have moved) explained to her the time length and a brief on symptoms and she ordered at wack load of tests pretty much everything on the paper and then some.

Symptoms are:

stomach cramping, diarreah, loss of appitiet, lactose intolorant, I have been anemic for who knows how long, odd menstration (I also have PCOS and a messed up petuitary gland), monster headaches.

I have been paying more attention as of late to what i am eating since there seems to be no consistancy on what causes my stomach discomfort.

I hope that these test will find something or lead to something that may be bothering me so far though if it is something i would prefer celiac to crohns or colitis as it is WAY easier to treat!! Going for my blood tests tomorrow should find out soon....I hope

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skgirl Newbie
skgirl
Posted
  • Author

Dr's got my test results today I only had the tests on Wednesday....WOW I have to go see her next week YAY maybe some answers

ravenwoodglass Mentor
ravenwoodglass
Posted

Glad they got the results so quickly for you. Did they give the results to you? One thing you do want to keep in mind is that false negatives are not uncommon. When you are done with all testing do give the diet a good strict try no matter what the results.

skgirl Newbie
skgirl
Posted
  • Author

I am going to see the Dr. tomorrow morning. I am going to ask for the numbers of the test, I was planing to try the diet even if the numbers are a negative because as I have read on here so much that the test results can be negative, more often then not. I'll post the results tomorrow when I get them.

skgirl Newbie
skgirl
Posted
  • Author

So went to the Doctor the Celiac panel isn't back yet however she told me that in the mean time to go gluten free for at 3-6 months and see how that goes. She will call me when the panel comes back to let me know what it says but she told me the same thing that I have read here in so many posts the "False negatives are extremely common" I also was diagonased with hypoglycemia which if I don't watch it will turn into Diabetes within 5 years.... just one more thing to add to the list. My fathers side is riddled with it and the celiacs would come from my moms side (so I think mom & grandma have major tummy issues) However I talked to my dad and my cousin started with hypoglycemia then turned out he has celiacs....

Dixiebell Contributor
Dixiebell
Posted

I'm sure you have read on here if you plan on having an endoscopy you should continue to eat gluten and then after the endoscopy go gluten free.

ravenwoodglass Mentor
ravenwoodglass
Posted

So went to the Doctor the Celiac panel isn't back yet however she told me that in the mean time to go gluten free for at 3-6 months and see how that goes. She will call me when the panel comes back to let me know what it says but she told me the same thing that I have read here in so many posts the "False negatives are extremely common" I also was diagonased with hypoglycemia which if I don't watch it will turn into Diabetes within 5 years.... just one more thing to add to the list. My fathers side is riddled with it and the celiacs would come from my moms side (so I think mom & grandma have major tummy issues) However I talked to my dad and my cousin started with hypoglycemia then turned out he has celiacs....

It sounds like you have a good doctor. If you have celiac in your family then your chances of having it yourself a pretty good. I hope you have good results from the diet. Ask us any questions you feel you need to. Although it sounds like your doctor is going to be willing to diagnose you based on family history and response to the diet do call and check that she isn't going to want you to have a biopsy. If you go gluten free before the biopsy they won't be able to diagnose you without a gluten challenge.

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skgirl Newbie
skgirl
Posted
  • Author

I don't beleive that she is going to bother with the biopsy...the family history is there and she told me to go ahead with the diet. I am overwhelmed by the hypoglycimia and the celiac but I have a really good book and you all to help me through this and an exremely understanding husband (most important).

Off to the post diagnosis section lol

skgirl Newbie
skgirl
Posted
  • Author

So the panel came back and she told me "two of the tree markers are there so in my opinion you have it, not going to bother with the biopsy but stay on the gluten free diet" so there I go I have been gluten free for just over a week now and feel fabulous already!!

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    • trents
      Need Advice on Doctors

      By trents · Posted

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    • Jason Hi
      Need Advice on Doctors

      By Jason Hi · Posted

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    • trents
      Need Advice on Doctors

      By trents · Posted

      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
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