Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uh Oh! Dairy Intolerance?

lischro

By lischro
in Coping with Celiac Disease

Recommended Posts

lischro Apprentice
lischro
Posted

From reading many posts on this site I have become a little more educated on the possibilities of gluten and dairy intolerance.

I never, ever thought I was dairy intolerant, but just ate ice cream (gluten free) and about 20 minutes later had "D" (which could finally be my miralax working...) but also got a horrible sore throat.

I've suffered from chronic constipation for about 3 years and have read on here that many of you who have also had constipation say that it can be due to dairy....

Also, I've been gluten free for 4 weeks....

So what are the other symptoms? Anyone think this sore throat has anything to do with it?

Oh- and are they the same thing?? lactose/dairy intolerance? (Sorry if that's a dumb question!!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

There are two things you can react to in dairy, lactose and the milk proteins. Lactose intolerance gives you the D because undigested lactose passes through your intestine carrying lots of water with it. If you have bacteria that digest the lactose you'll also get bloated and gassy.

The protein reaction is allergy or intolerance, and allergies can cause sore throats. Also fast D is sometimes allergic. In gluten-sensitive folks the problem tends to be cross-reaction to casein, the major milk protein. It's also possible to be allergic to whey.

precious831 Contributor
precious831
Posted

From reading many posts on this site I have become a little more educated on the possibilities of gluten and dairy intolerance.

I never, ever thought I was dairy intolerant, but just ate ice cream (gluten free) and about 20 minutes later had "D" (which could finally be my miralax working...) but also got a horrible sore throat.

I've suffered from chronic constipation for about 3 years and have read on here that many of you who have also had constipation say that it can be due to dairy....

Also, I've been gluten free for 4 weeks....

So what are the other symptoms? Anyone think this sore throat has anything to do with it?

Oh- and are they the same thing?? lactose/dairy intolerance? (Sorry if that's a dumb question!!)

I don't know if you saw my post about dairy but I am beginning to think I'm allergic and not intolerant. I've tried lactose-free and I have the same symptoms, I think I'm reacting to casein and whey. Over a week ago I ate some goat cheese and had severe diarrhea with lots of blood and clots. I still feel sick nearly 10 days later. Severe heartburn, sore throats, coughing, etc. Just crappy feeling, stomachaches.

I hope you figure it out. No more dairy for me. It's been months since I had a sliver to try and I wanted to see if I've gotten better but nope.

Goodluck.

julandjo Explorer
julandjo
Posted

The protein reaction is allergy or intolerance,

Question: I read here that a lot of people are able to have some or all dairy back after a period of healing on the diet. Does this go only for those with lactose intolerance? Or is it possible, even with a verrry sensitive casein intolerance? I know mine is casein because I had a horrible reaction to a capsule prescribed to me by my doctor. The only questionable ingredient was indeed casein. :angry: So, any insight as to whether I should hold out hope of ever getting my beloved dairy back? ;) FWIW, my skin allergy test for dairy was negative.

vbecton Explorer
vbecton
Posted

Question: I read here that a lot of people are able to have some or all dairy back after a period of healing on the diet. Does this go only for those with lactose intolerance? Or is it possible, even with a verrry sensitive casein intolerance? I know mine is casein because I had a horrible reaction to a capsule prescribed to me by my doctor. The only questionable ingredient was indeed casein. :angry: So, any insight as to whether I should hold out hope of ever getting my beloved dairy back? ;) FWIW, my skin allergy test for dairy was negative.

I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them.

I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can't tolerate whey or casein. *tears*

Skylark Collaborator
Skylark
Posted

I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them.

I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can't tolerate whey or casein. *tears*

There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated but it would explain why I went from being soy, dairy, and shellfish intolerant to being able to eat anything but gluten in about none months of healing.

julandjo Explorer
julandjo
Posted

There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated but it would explain why I went from being soy, dairy, and shellfish intolerant to being able to eat anything but gluten in about none months of healing.

Skylark I'm sending you a great big 'ol hug. THANK YOU. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would...
    2. MI-Hoosier
      - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy. With the condition my liver is in I am unsure moving back...
    3. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is...
    4. MI-Hoosier
      - MI-Hoosier posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Hi, I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect. During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am...
    5. Sunshine4
      - Sunshine4 replied to Sunshine4's topic in Related Issues & Disorders
      3

      Neurologic symptoms - Muscle Twitching and Hand Tremors

      Many apologies for somehow changing your first name Scott!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,253
    • Most Online (within 30 mins)
      7,748
    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By Sunshine4 · Posted

      Many apologies for somehow changing your first name Scott! 
×
×
  • Create New...