Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Soon After Getting "glutened" Do You Feel Effects?


Tidings

Recommended Posts

Tidings Explorer

Hello folks,

Would like to hear some details from those of you who have experienced a "glutened" after-effect, such as:

*How soon after you ingest gluten do you begin to feel "glutened"?

*What after-effects or reactions do you experience?

*How long do/es the "glutened" effect(s) or reaction(s) last?

Had always expected to feel "morning after" effects from ingesting gluten, but lately I've noticed that it seems to take 2-3 days before serious side-effects set in. It also seems to last longer each time it happens, and the effects (intestinal pain, congestion, swelling, etc.) seem to increase in severity.

Am wondering if the repeated exposures to gluten (whether accidental or deliberate) tend to cause increased severity and duration, the more often it occurs?

Hope the questions are clear, and I look forward to hearing some responses.

Thanks and good wishes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

*How soon after you ingest gluten do you begin to feel "glutened"?

*What after-effects or reactions do you experience?

*How long do/es the "glutened" effect(s) or reaction(s) last?

1. Anywhere from 20 minutes to two days later. It seems to vary for me.

2. If my body "catches" it with 20-30 minutes I get a headache, nausea and sometimes throw up. Then for the next 4-5 days I have bad neurological reactions-- muscle and joint pain, shaking hands, fatigue, brain fog, etc. If my body doesn't react right away and the reaction is delayed by a day or two (I don't throw up), I have C and bloating for a day or so followed by bad cramping and Bloody D. I also have the neurological effects while having the gastro effects so it's ten times worse when I have delayed reaction. Unfortunately delayed reactions seem to happen more often for me, so it's harder to track down the gluten source. I also never had the really bad gastro reactions prior to going gluten free.

3. Whether delayed or immediate I have symptoms anywhere from 4 days to a week. Usually takes me a week to feel better.

Kay DH Apprentice

For me it is variable. CC can hit in 1 hour or the next day and symptoms are D, bloating, sometimes cramps. D is generally one rather massive event (amazing how much can be stored in a GI tract. Next time I have a colonoscopy I'll just have a crouton instead of laxative) and the bloating takes 3-5 days to go away. Massive glutenization can result in the same symptoms, but also include stiff joints, brain fog, lethargy, muscle aches, and mood swings. These other symptoms can take 5-7 days to go away. I, like a lot of people, am self diagnosed for gluten intolerance. My symptoms started last fall after getting the flu, and my blood and other tests were negative but also after I was gluten-free. A really bad gluten hit can cause the area around where my rashes were to be itchy; I had probable DH for a few decades that went away 6 months after gluten-free.

brendab Contributor

Very soon after I eat I get a sharp pain in my stomach and I can feel that pain for the rest of the day or so as it travels my digestive system. Later I get gas that just won't stop and constipation. Brain fog, drugged feelings and general stupor. OH, and I quite often get anxious and sometimes RLS.

cassP Contributor

omg- i'll try to keep this short- it just depends on how much, what kind, and for how long i eat it... the norm is to feel like i have huge rocks in my stomach & intestines like even 10 min. after eating it. i dont get the "D" or floaty fatty movements unless ive been on gluten regularly. i usually get some "C" & how do i say this.... um... white mucous type stuff... (sorry tmi :( )

also, GERD, congestion, brain fog, and "hangover".

the last time i ingested gluten was right before i got my Enterolab results (one last cheat)-> got fried shrimp, after 15 minutes- had to lay on the couch with an ice pak- my heart rate shot up to like 150 bpm, and i was on the verge of throwing up :(

but as far as minute amounts of CC- im still not sure about my body- still working thru intolerances & allergies with other foods- so im not sure if im getting CC or what?

JCastro Newbie

For me, it depends on how much and what I eat but I know within about 20 min, that's when my neuro symptoms start. Then 3 days later I get a migraine and my gastro symptoms start (cramping, stomach pain, and D). I am sick and extremely tired and anxious for a few days to a week.

alissar Contributor

About 20 min after eating gluten my hands feel puffy. Thats always the first sign. Then, my stomach starts gurgling and I get really gassy. Sometimes, I start to feel like I can't see quite right and I am high or something (Brain fog?). About 2 hours later I get really bloated and it hurts. I wake up the following morning with a swollen face and swollen eyelids (its embarrassing). The swelling normally lasts 8-10 days. It normally takes 1-2 days before I get D (oddly). But, that normally sticks around for about 3 days. I seem to get glutened all the time...esp. when I go out to eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fey Rookie

- Within the first couple of hours: major C, followed by random anxiety attacks that aren't justifiable and come out of nowhere.

- First 24-48 hours: extreme moodiness, and headaches that don't go away with my trustworthy Excedrin Migraine... if 4 Excedrins don't get rid of the headache, I know I have a major gluten-triggered migraine on its way.

- Next few days: body aches (fibro flare) & nausea.

Typically I'll feel better anywhere from 2-3 days after being glutened, but it can take as long as 5 days.

Cheryl-C Enthusiast

I'm currently experience my first real glutening since going gluten-free.

For me, my symptoms seemed to start about 30, 45 minutes after eating the food. I was suddenly cramped and gassy, and ended up with one instance of really bad D. (graphic, I know, sorry lol) The remainder of the evening and night last night I had really bad pain in my stomach, like very sore, and also low energy and some emotional agitation.

Today, my stomach is still out of whack and I had to bail on going to the bar <_< I just had dinner (homemade dinner) and am still feeling cramped/gassy/sore stomach.

Ugh.

anabananakins Explorer
*How soon after you ingest gluten do you begin to feel "glutened"?

Usually two hours later, but I start feeling very tired within about 20 minutes.

*What after-effects or reactions do you experience?

Stomach ache which sends me running to the bathroom than D. Then more extreme tiredness.

*How long do/es the "glutened" effect(s) or reaction(s) last?

The worst time was cc through cooking oil and I fell asleep on the sofa that evening for about 3 hours (which was crazy, my sofa is short) and then slept another 12 hours. I just could not wake up.

Other times it's been milder - I don't know what got me - and my stomach is mostly ok the next day. I haven't been able to work out exactly what else goes wrong and that time frame, but I do feel wobbly for a few days.

Lynayah Enthusiast

For me it is variable. CC can hit in 1 hour or the next day and symptoms are D, bloating, sometimes cramps. D is generally one rather massive event (amazing how much can be stored in a GI tract. Next time I have a colonoscopy I'll just have a crouton instead of laxative) and the bloating takes 3-5 days to go away. Massive glutenization can result in the same symptoms, but also include stiff joints, brain fog, lethargy, muscle aches, and mood swings. These other symptoms can take 5-7 days to go away. I, like a lot of people, am self diagnosed for gluten intolerance. My symptoms started last fall after getting the flu, and my blood and other tests were negative but also after I was gluten-free. A really bad gluten hit can cause the area around where my rashes were to be itchy; I had probable DH for a few decades that went away 6 months after gluten-free.

"Next time I have a colonoscopy I'll just have a crouton instead of laxative" -- lauging so hard here I can hardly stand it! Great line! And yes, that crouton would indeed work wonders. Thank you for the smile.

Lynayah Enthusiast

For me, within 15-20 minutes. BAM! There is no doubt I'm having a reaction. Big D. If I'm lucky, I catch it before I have to go home and change clothes.

I'll get delayed reactions, but I'm learning that, for me, it may be from another food that I may be sensitive to, such as egg yolk or soy.

Marz Enthusiast

Usually almost instantly to 20 minutes later I'll have a sore stomach - I call it a "punched in the gut" feeling, and it usually induces a run to the loo, even if not D.

A few hours later to a day later I'll have a bad headache, one of those vice-like grip headaches, with or without back-ache. Around this time I'll also start getting random pains in my wrists, knees, legs. I also get muscle twitches/spasms/cramps.

2 days to 4 days later I'll usually have massive amount of D. Sometimes preceded by C.

So yeah, highly variable :) Oh, and I'll have at least one incident of crying over nothing, or tingling in my hands or anxiety. If I start crying over nothing even without any other issues I know I've been glutened.

Lynayah Enthusiast

Usually almost instantly to 20 minutes later I'll have a sore stomach - I call it a "punched in the gut" feeling, and it usually induces a run to the loo, even if not D.

A few hours later to a day later I'll have a bad headache, one of those vice-like grip headaches, with or without back-ache. Around this time I'll also start getting random pains in my wrists, knees, legs. I also get muscle twitches/spasms/cramps.

2 days to 4 days later I'll usually have massive amount of D. Sometimes preceded by C.

So yeah, highly variable :) Oh, and I'll have at least one incident of crying over nothing, or tingling in my hands or anxiety. If I start crying over nothing even without any other issues I know I've been glutened.

Crying, anxiety: I can so relate! My husband says he can tell if I've been glutened almost immediately afterwards.

For lack of a better term, I turn into a COMPLETE witch. Oh, how I love my husband for having put up with me.

For a couple of years (or more) before I was diagnosed, I was extremely difficult to live with-- not impossible, but (at least for me) a lot more difficult.

I had heightened sensitivity about everything. It was really tough, especially since I've always been known for being understanding, accepting, loving, caring, nuturing . . the whole bit.

Not with severe gluten symptoms, though. With my reactions to gluten, I was a different person.

When I look back on it, I can see so clearly how it was gluten.

Thank heaven, I am a different person now. Thank heaven, people around me stuck by me . . . at least most of them. Thank heaven, I found a doctor who understood and diagnosed me CORRECTLY.

I have said this on the forums here so many times, but I have to keep saying it:

It kills me to think of all the other people out there who could get to the positive side of happiness, if only they changed their diet.

It kills me to think that they do not know what their problem is.

It kills me to think they are being told they have countless other problems when it is, in fact, gluten-intolerance.

I am doing all I can to spread the word to others, and I am always looking for more ways to help.

All of us here can make a difference in the lives of so many others, if only we keep spreading the word.

Thanks for letting me rant!

  • 1 year later...
MotoMommy Newbie

I have been gluten-free since Sept. 2011 and on the 4th of July 2012 I cheated for the first time and ate some homemade cake I made for a potluck. (Not gluten-free cake.) I am soooooo regreting this! 3 days after the cake I came down with masssive back/neck pain, extreme migraine, belly bloat, blurred vision, and weakness/tiredness. It's been almost 2 weeks and I am just now seeming to come out of it! It has been horrible. The migraines have been unbearable. Does this sound familiar to anyone?

Sonja

nvsmom Community Regular

I was diagnosed celiac just 3 weeks ago, and have only been gluten-free (for sure) for about 10 days, so I'm not completely sure of my answers since I've been glutened for so long.

*How soon after you ingest gluten do you begin to feel "glutened"?

If it's on an empty stomach (pancakes for breakfast), I feel a stomach ache within 10 minutes.

*What after-effects or reactions do you experience?

I get bloated and have gas and C. I often have migraines and sore joints and back.

*How long do/es the "glutened" effect(s) or reaction(s) last?

This I don't know since I've been glutened for the last 30 years. LOL :lol::blink:

LauraB0927 Apprentice

I'm pretty sure that I was glutened Friday night after my fiance and I went on a "date" to a supposedly gluten free Asian restaurant. The next day I had horrible cramping, gas, and eventually D for the next two days. After the second day I got the extreme fatigue and have sadly fallen asleep at my desk for the past three days which is super embarrassing. To make matters worse, I'm an adolescent therapist and its not very helpful when they're talking to you about their problems and the therapist is falling asleep right in the middle of the session! I also had some mild neurological issues - tingling in my fingers, and I've been having a mild headache but nothing too severe. The worst has been the moodiness - thank god my fiance is understanding and doesn't hold it against me too much...I can become a raging you-know-what which is pretty uncharacteristic of me. Wishing you all well!!!

missingno Newbie

Hi, I'm newly diagnosed (gluten-free for 8 months) and I got 'glutened' a few days ago, my own fault for not being careful enough whilst out and about. Anyway about 45 mins after eating I felt slightly nauseous and had a bit of acid reflux. I didnt realise I had been glutened at that time. Then around 3-4 hours later I started getting stomach pains and nausea, then that evening (8hrs after ingestion) I had diarrhoea and intermittent stomach pains.

For a few days since Ive had some stomach pain, and since the diarrhoea, constipation. I am also having acid reflux and brain fog/drowsiness.

In the past when I've accidentally been 'glutened,' I've recovered in a couple of days, however I ingested quite a lot this time so I guess it's going to take longer.

Linda-lou Newbie

I was so happy to read this. I have been gluten-free for about 6 month, the 1st 2 were tricky with finding gluten in things the wrong way, or not being careful when handling G foods and then my food. I have been feeling SOOOO good. Most of the time I get a headache within an hour followed by brain fog, then exhaustion 2-3 days later, I also have bathroom issues the next day. Yesterday I ate some stuffed zuchinni, I made it using perdue ground chicken and store brand pre shredded cheese. In an hour or so I could hardly keep my thoughts together, I went to play kickball (adult league- lots of fun) and noticed there was no one at the other teams dug out.....um they were in the outfield....then more dumb moves. Today I had severe diarreah followed by dizziness while attempting Zumba, sore knees and ankles. I quit class early and forced myself through the day.

I was happy to read that others experience different reactions to gluten. It gave me comfort to know I am not the only one, and to help me determine that it was gluten that somehow got into my food.

I find that white rice is helpful with my recovery, I also had a massage once when I 1st accidentally was glutened and it seemed ot help speed up recovery, make sense as they are detoxifying. I am considering an epsom salt bath. I have heard people suggest good bacteria from suppliments as well as yogurt.

  • 2 weeks later...
Lolli Newbie

I tried a new gum, about 2 months ago, that burned my mouth immediately. Bye bye.

I've been glutened 2 times, in the last two months, I could feel it coming very soon after. But, it seems to take 4 days before I am incapacitated. That lasts for four days, too.

Cc is my biggest problem, as you all well know.

Right now, low calorie intake and constipation are plaguing me. I have to add more fiber.

I look back at my life and realize certain foods felt calm, like potatoes.

  • 1 year later...
NoGrainNoPain Newbie

The crouton part really made me laugh, too. Sadly, I just had an accidental crouton ingestion; forgot that Cesar Salad comes with croutons. Duh! Just not used to thinking abou it yet. I had picked most of the croutons out, but this fraction of a croution was hidden between the greens. When I heard the crunch I knew. If I was not eating with someone, I probably would have spit it out. I've been glutten free for approximately two months. My IGA was normal, but MD suggested a gluten-free diet, and she was further convinced when I told her my eczema went away, and my KP smoothed out. Probably I'm not aware of how it affects me entirely. For example, I see people mentioning fatigue, and that's been a problem with my accidental ingestions. The intestinal symptoms are obvious; I start out feeling feeling squirrely within an hour after, like something is not right. Sometimes it's 30 min later or sometimes 3 hours later, but I have massive soft stools, followed by massive D that looks greasy and slimy. It takes 3-5 days to get back to normal. I also get burpy, about two hours later, like food might come up, and sometimes it does. Sometimes bloating and then gas. Sometimes gas and then bloating. Non stop bouts of gas that last an hour and appear periodically throughout the day usually lasts for at least three days...I could end our energy dependency if we could harness this output. After the gas and bloating is over, I have sore guts for a day, like I got kicked in the guts. I get irritable, but maybe that's just from the general pain.

luvs2eat Collaborator

I've been gluten-free for over 10 years and can count on one hand how many times I've been glutened. The last time was my own fault ... I ate a wheat hot dog bun thinking it was gluten-free (again... my own fault). Less than 2 hours later, my body just purged itself... constant vomiting and diarrhea shooting out of me at the same time. I ended up having to strip off my clothes and sat on the john w/ a waste can in my lap. It lasted for at least 3 hours. I don't remember any symptoms the next morning... I think I was just happy to be ALIVE!! Seriously... that will NEVER happen again.

  • 4 years later...
Kelly L Newbie

I don’t feel anything immediately afterwards, but after two hours I start to feel very nauseous. Typically I will have a normal BM at that time followed by increased nausea and vomiting until there’s nothing left. After an hour or so I will have severe D. During that time and for the rest of the night I am cold, having chills, full body aches, and joint pain. The following couple of days leaves me feeling weak and shaky. 

kymbp Newbie

For micro-exsposures (generally happens when I visit gluten-full friends) I get a rosacea flare up. My cheeks are bright, bright red.

Full blown exposure (which only takes a few crumb) triggers a response after an hour or two. Gastrointestinal Distress. Cramps. Less pleasant stuff. That goes on for about 6-8 hours. Constant for the first hour or so and intermittent after that. Then I am pretty wiped out for a day or two. I can’t work or anything.

Then the real fun starts—random inflammation strikes some place in my body—usually in my feet or joints. After several cortisone shots, over several weeks,  inflammation is brought under control. It’s awful.

I have nightmares about accidentally eating gluten. I’ve woken up crying after dreaming that I glutened myself.

 

 

  • 1 year later...
Elly23 Newbie

So I've only been gluten free for about 4 months now, and before that I had GI problems that made my Dr say to go gluten free. Nothing super serious though so over the past two days I had a few moments of weakness and had a few bits of gluten here and there. BIG BOO BOO on my part. Within maybe 45 minutes to an hour I started having a gurgly tum and nausea. I had to go to the bathroom a few times and was on the verge of throwing up multiple times (gagging). Last night I had a lot of wind and very sore tum. It's still sore today. I have learnt my lesson the hard way!

Does anyone else get nausea and or dry heaving? Thanks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,059
    • Most Online (within 30 mins)
      7,748

    Lynda Huber Davis
    Newest Member
    Lynda Huber Davis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Soy has been on our safe list for nearly 30 years, it is gluten-free. Most soy sauces do include wheat, and should be avoided. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.       In general if you see "gluten-free" on a label in the USA, Canada, Europe, Australia, etc., it does mean that the food is safe for those with celiac disease, and it does NOT mean that there is 19ppm gluten in it, as some people might lead you to believe. Whenever a company detects gluten in the 5-19ppm (most tests can't accurately go below this level) in foods which they have labelled gluten-free, especially a USA-based company (lawsuits in the USA are far more common and easier to win in such cases), they will immediately seek to find and eliminate the source of the gluten contamination. There is a very common myth or misconception that companies don't care at all if their products test between 5-19ppm, but they definitely do because a product recall could be just around the corner should they hit the 20ppm or higher level. Many people, including myself, now have home test kits like Nima, and companies are definitely aware of this.  
    • trents
      Kathleen, I am not sure I agree with you that your son is asymptomatic with regard to his celiac disease. The horrible stomach pains you describe in your first post could be celiac symptoms as easily as they could be H. Pylori or viral infection symptoms. Yes, the social impact of having celiac disease is perhaps the most difficult dimension of the disorder to deal with. It requires thinking ahead and providing safe substitutes for snacks and party foods so that your son doesn't feel left out and singled out or different. Some of those feeling are unavoidable but they can be minimized. Dining at eateries is a huge challenge to celiacs as even when you order gluten free menu items they are often heavily cross contaminated back in the kitchen from being cooked together with wheat things or handled with the same utensils. You need to be bold in asking a lot of questions and requesting that your son's food be cooked in separate pots and pans. It's awkward at first but you get used to it. Speaking of CC (Cross Contamination), how careful you have to be with this will depend on the sensitivity level to gluten your son will demonstrate. This can be a challenge to get a handle on for those celiacs who are of the "silent" type. By "silent" is meant they are largely asymptomatic. It is common for sensitivity levels to increase over time when gluten is withdrawn from the diet as whatever tolerance we may have had to gluten when we were being exposed to it constantly may disappear. Whether or not that proves to be the case, it would be important for you to have his antibody levels checked at regular intervals (say every six months to a year) to check for compliance with the gluten free diet. And I would not worry about him touching wheat food products. It is highly unlikely that any significant exposure will occur transdermally. That would only be an issue for the most extremely sensitive subset of celiacs. Of course, you wouldn't want him getting wheat flour on his hands and then putting fingers in his mouth.  At school, you will need to pack his lunches and also have conversations with the school dietary staff to ensure his safety.  I know this all seems overwhelming right now but you are not the only parents who are having to go through this kind of thing. Celiac disease is not uncommon and thankfully there is much more public awareness about it than there was a generation ago. It can be done. It's the kind of thing that requires parents to be willing to find that extra gear of assertiveness in order to keep their child safe and to guard his/her psyche as much as possible. Count your blessings. It could be worse. He doesn't have cancer. This might be helpful in getting off to a good start with eating gluten free. Some of it may be overkill depending on how sensitive to minute levels of gluten your son is:  
    • trents
      Staci, take note of the forms of magnesium and zinc I recommended. With some of the vitamins and minerals, the formulation can be very important in how well they are absorbed. Many of the vitamin and mineral products on supermarket shelves are in a form that maximizes shelf life rather than bioavailability which, in your case, would seem to be a critical issue. And with magnesium, if you use the typical over the counter form (magnesium oxide) you may find it has a definite laxative effect (think, "milk of magnesia") simply because it isn't well absorbed and draws water into the colon. Spend some extra money and get quality vitamin and mineral products and research the issue of bioavailability. There are forum members who are knowledgeable in this area who may have recommendations. Do you have Costco stores where you live? Is Amazon available to you?
    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
×
×
  • Create New...