Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Better But Still Lost More Weight!

notme

By notme
in Coping with Celiac Disease

Recommended Posts

notme Experienced
notme
Posted

still feel like I have the flu but my 'guts' are behaving. I haven't got a gluten free vitamin supplement yet. just tylenol and sublingual b-12. my sense of smell (wow) seems to be coming back and today I went a very long time before I felt like I needed to have a cigarette. food is tasting awesome and I am munching gluten-free deliciousness. but I am so disappointed I have not gained but *lost* more weight in the past 2 wks. I am on this boat for the whole 3 hour tour, so any advice/experience please do tell. appreciate you all more than you could ever know!

thanx

arlene

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosyrear1 Newbie
rosyrear1
Posted

I wish I could lose weight! I found out I have Celiac disease about a year and a half ago and was already large then (250). I now weigh 320 and it just doesn't matter what diet I do. I even did the HCG diet, followed it exactly, and still gained weight. I am still eating healthy and exercising when I can but still gain weight. I have 5 young kids and I work full time. I am in the process of getting divorced, he didn't support me going gluten free so that made it very hard. That wasn't the reason for the divorce though. Even with all the stress I am eating less but still gaining and I just want to feel good about myself. I do think it sucks that I had to get the fat version of this disease. Sorry I will stop complaining. I know it is bad that you continue to lose weight. I am very willing to donate weight to you! :P

T.H. Community Regular
T.H.
Posted

Wel, first, I would really try to find the gluten-free vitamins, because if you have non gluten-free vitamins, you are still not healing all the way, ya know?

I lost weight for QUITE a while after going gluten free. The only thing that helped me some was to eat like a mad woman for a while, lots of carbs/high calorie stuff. I honestly don't know, but my assumption on what might be happening is that you are healing, but a big source of high calorie foods - all the gluten stuff - is now out of your diet. So if you haven't healed yet, but you aren't eating high calorie stuff, that might account for the weight loss. Keeping your calorie intake higher might help.

Wouldn't swear to it, but that's what made a bit of a difference to me. :-)

still feel like I have the flu but my 'guts' are behaving. I haven't got a gluten free vitamin supplement yet. just tylenol and sublingual b-12. my sense of smell (wow) seems to be coming back and today I went a very long time before I felt like I needed to have a cigarette. food is tasting awesome and I am munching gluten-free deliciousness. but I am so disappointed I have not gained but *lost* more weight in the past 2 wks. I am on this boat for the whole 3 hour tour, so any advice/experience please do tell. appreciate you all more than you could ever know!

thanx

arlene

notme Experienced
notme
Posted
  • Author

I wish I could lose weight! I found out I have Celiac disease about a year and a half ago and was already large then (250). I now weigh 320 and it just doesn't matter what diet I do. I even did the HCG diet, followed it exactly, and still gained weight. I am still eating healthy and exercising when I can but still gain weight. I have 5 young kids and I work full time. I am in the process of getting divorced, he didn't support me going gluten free so that made it very hard. That wasn't the reason for the divorce though. Even with all the stress I am eating less but still gaining and I just want to feel good about myself. I do think it sucks that I had to get the fat version of this disease. Sorry I will stop complaining. I know it is bad that you continue to lose weight. I am very willing to donate weight to you! :P

goodness you have a lot going on! 5 kids - you are one crazier than me :) we have 4 but they are grown. 2 still live here plus 2 grandbabies (6 & 2) but I always tell them 'im kicking you out and burning the house down' lol

I hope your divorce is as painless as possible - been there, done that. plus, our daughter's should be final this month so she can get on with her life :) I don't know how to act if the house is quiet :P

and I will take you up on that extra weight - put it on my boobs ! :D

notme Experienced
notme
Posted
  • Author

Wel, first, I would really try to find the gluten-free vitamins, because if you have non gluten-free vitamins, you are still not healing all the way, ya know?

I lost weight for QUITE a while after going gluten free. The only thing that helped me some was to eat like a mad woman for a while, lots of carbs/high calorie stuff. I honestly don't know, but my assumption on what might be happening is that you are healing, but a big source of high calorie foods - all the gluten stuff - is now out of your diet. So if you haven't healed yet, but you aren't eating high calorie stuff, that might account for the weight loss. Keeping your calorie intake higher might help.

Wouldn't swear to it, but that's what made a bit of a difference to me. :-)

right now I am not taking any vitamins except b-12. I thought maybe since my body was actually absorbing nutrients maybe I would get enough from a balanced diet. but, yeah, I stay away from high calorie/carbs normally (except bread!) so I am going to add a lot more and also get my hands in some gluten-free multi-vitamins. thanx :)

sahm-i-am Apprentice
sahm-i-am
Posted

I was told to gain weight when I was diagnosed with Celiac in April. It took a few months for me to gain 10 lbs. It was alot of work - I had to consume 3000 calories a day and it finally started happening. I couldn't eat like that forever and had to stop - I felt sick, not GI sick, but full-never-want-to-eat-again sick. And I didn't eat junk food - wanted to gain it the healthy way. It just takes time. I kept up with exercise too. I have since started losing the weight again, know GI doc isn't going to be happy - but maybe other things are going on. Go back to dr. next week. Just can't continue to eat so much.

Hey, maybe try eating smaller meals all day - munch through the day? I might try that, too.

Marz Enthusiast
Marz
Posted

Hi notme :) I'm in the same boat, and I'm *slooowly* gaining weight, but at least it's happening. I managed to start gaining weight about 2 weeks or so after going gluten free, but then the damage in my SI might have been light.

How long have you been gluten-free? Some people mentioned gluten causes fluid retention, so it might be the case that as you're gaining tissue weight you're losing water weight at the same time from being gluten-free? Not sure how much that would affect you.

And how are you feeling? Do you feel like you're still having GI issues? Gluten contamination? Some people have issues with soy and casein protein from milk, and in some cases that could still be damaging your intestine or stopping it from healing?

You can try get some gluten-free digestive enzymes. I read a study about kids with celiac disease - digestive enzymes helped a lot with weight gain in the first month, thereafter the benefit wasn't as pronounced, so I'd definately suggest trying this short term to see if it helps?

I snack on stuff the whole day - fruit, dried fruit, nuts, rice cakes with peanut butter or jam, rolls of ham... I pack myself a lunch box full of stuff for work, and I also take a proper "lunch" with me for noon that I heat up - usually mince/bacon, rice and veges. I tried using powder shakes, but just figured out I'm soy intolerant and the stuff makes me ill, I'm going to have to find a gluten-free, soy-free substitute. I also pack the occasional chocolate, it's not "healthy" but it contains a crap-load of sugar, and really whether it comes from a chocolate or a fruit it's still energy ;)

If you're already eating like the bomb, and not putting on weight, then it can only be damage to your intestine being slow to heal - find out if you're intolerant to any other foods, and definately try the enzymes :)

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,727
    • Most Online (within 30 mins)
      7,748
    AdamGF2023
    Newest Member
    AdamGF2023
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

      Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
    • DayaInTheSun
      Shortness Of Breath (the "sighs")?

      By DayaInTheSun · Posted

      It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.
    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
×
×
  • Create New...