Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

99 Restaurant


Shanmegjilal

Recommended Posts

Shanmegjilal Rookie

I've been going to the 99 restaurant because they have a gluten free menu.I always get the gluten free hamburger roll so I know exactly what it looks like.The other day I received a different roll and questioned it.The server said he had verified it was gluten free with the chef before he brought it out.He offered to recheck because I said it looked totally different.He checked and returned to tell me "it's good to go,it's gluten free".I figured they may be using a different vendor.It also looked different from my daughter's "regular" roll so I ate it and was ill the next morning.I emailed the restaurant and received a prompt reply by phone.The manager informed me that he was sorry this happened and didn't know what roll I received!!!He said he'd speak with the staff and send me compensation...Who cares about compensation!I feel like I've "undone" all the hard work.I've given up other social functions,not eaten at cookouts,etc.This totally undoes everything!!!How could this have been avoided?!It's so frustrating!!! I feel like I need to sit at home and never go out!I feel like EVERY time you dine out it's a HUGE risk!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mscan91 Newbie

I went to 99 when I went across country with my boyfriend for a funeral. I had heard bad things about the gluten-free menu. I didn't even bother with it haha I just ordered a salad and loaded up on gluten enzyme pills!

Cheryl-C Enthusiast
I feel like I've "undone" all the hard work.I've given up other social functions,not eaten at cookouts,etc.This totally undoes everything!!!How could this have been avoided?!It's so frustrating!!! I feel like I need to sit at home and never go out!I feel like EVERY time you dine out it's a HUGE risk!!!!!

I feel your pain, completely. It's frustrating when you go to the trouble to make sure everyone understands you have serious restrictions, and you get glutened anyway. I swear it's like they think we're just fussy, or on a fad diet. Eating out is terrifying. I got glutened today too, and am suffering for it. I'm supposed to go out for dinner on Sunday to a restaurant that is "known" for it's gluten-free items, but now I'm just feeling anxious about it.

I hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,637
    • Most Online (within 30 mins)
      7,748

    EmilyPB
    Newest Member
    EmilyPB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi Scott and Knitty! Thanks for the answers! You are very kind! Let put it this way: 1.I am now confirmed seronegative celiac. My Last push gastroscopy concluded that there is no atrophy and everything is ok in that regard. 2. From diagnostics perspective so far i have done multiple intestinal TUS, Mr Enterography, Multiple wide spectrum blood tests, Normal gastroscopy, Push gastroscopy(duodenum and jejunum)., Multiple X rays,Swallow test barium....i mean the whole package... 3. from doctors perspective i am in touch with 2-3 gastroenterologist, immunology and rheumatology doctor and general physician...and with psychiatric doctor. My problem is that i am still feeling like "s$#&" EVERY DAY even now when i am on GFD and i am still losing weight with very little energy through day. When i lay down, i do not feel pain or discomfort but during the day i feel bloated, intermitten pain in abdomen(usually upper QD and around belly), discomfort throught whole abdomen and other parts of body and with very little energy. I am trying my  best to be 100 % GFD but i am on very light mediterian food diet. I am currently on gfd  13 months (with small mistakes) Currently i am on ppi 20mg in the morning, now drinking ensure plus because of muscle and weight loss. My diagnose procedure is now lasting almost 3 years and since then i have lost 13-15kg. Please but please i am currently losing my mind...is there anybody who is going through this kind of hell like me? What more can i do? Thanks in advance, Kind regards, Matt    
    • Mnofsinger
      I appreciate the input and that would make sense to irritation/mouth sores. I'm more asking directly to the taste of the food being too salty as opposed to being irritated by salt.
    • jjiillee
      I got her results in the app but waiting for call from her doctor. Not sure what it means but maybe not celiac since villi are normal??  FINAL DIAGNOSIS: Duodenal biopsy (#1): DUODENAL MUCOSA WITH NO SIGNIFICANT ABNORMALITY. NO SIGNIFICANT VILLUS BLUNTING NOR INCREASED INTRAEPITHELIAL LYMPHOCYTES. Duodenal bulb biopsy (#2): MILD ACUTE DUODENITIS WITH FOCAL FOVEOLAR METAPLASIA. NO SIGNIFICANT VILLUS BLUNTING NOR INCREASED INTRAEPITHELIAL LYMPHOCYTES Gastric antral biopsy (#3): MILD CHRONIC FOCALLY ACTIVE GASTRITIS. PENDING IMMUNOSTAIN FOR HELICOBACTER ORGANSIMS (TO BE REORTED IN AN ADDENDUM). Gastric body biopsy (#4): GASTRIC OXYNTIC MUCOSA WITH NO SIGNIFICANT ABNORMALITY. Esophageal biopsy, distal (#5): SQUAMOUS MUCOSA WITH NO SIGNIFICANT ABNORMALITY. Esophageal biopsy, mid (#6): SQUAMOUS MUCOSA WITH NO SIGNIFICANT ABNORMALITY
    • Russ H
      I doubt very much that it contains any gluten. It works by producing an artificial blood clot, mixing 2 or more proteins found in the natural blood clotting cascade. These are refined from human blood donations. It comes in 2 vials that are mixed immediately before use and clot quickly.
    • nanny marley
      This literally happened to me today I had gluten after not eating it for over 6 months doing the elimination diet has I'm trying to get help with a diagnosis I ate gluten a few days ago and then stopped  because I went for my blood test today unfortunately it's not enough has I've now learned from some helpful people on this forum it has to be a lot longer before a test but my food today was really salty I just thout it was me because I'd deviated off my diet but I definitely tasted my  food  salty so that's a very intriguing investigation for me now thankyou for the post 
×
×
  • Create New...