Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been Mia Because I Am Sure That I Was In Hell......

looking4help

Recommended Posts

looking4help Apprentice
looking4help
Posted

Hello all! I am resurfacing again after being missing for about 2 weeks. Last I was on the boards I was signing off for a day surgery with my OBGYN to check for endometriosis. (sp) That surgery was August 3rd and here it is the 17th. Exactly two weeks later. I am convinced that I was in HELL!

During my laproscopy the OB found that my left ovary and fallopian tube was completely grown attached to my intestines. Therefore, she stopped her procedure and called in a general surgeon to separate.

Then the hysteroscopy which was supposed to be relatively pain free afterward showed that the inside of my uterus was horrible! The OB had to do what she described as an extensive D and C.

Well, all was going fine and well (of course pain meds etc.) and then POW the evil forces of hell came and drug me into a gut wrenching, floor crawling, screaming pain in my gut Friday night (3 days later). I was rushed to the ER and immediately admitted with what they thought was a perforated bowel. Later found out that it was an extreme case of diverticulitus. (3rd bought in less than 2 years!) They think that the manipulation of my intestine when being separated from the ovary and tube flared up some polyps that were in there already.

I have NEVER been in so much pain! I was begging to give birth (natural at that!) to a child in stead. And I know how hard that is because I have 4 kids (1 was completely natural!)

Anyways, I was in the hospital for 5 days which was another torture device from hell I say. My veins were collapsing and both arms are completely bruised from elbow to wrist top and bottom! They finally had to bring down someone from cardio to get a new IV in after I had blown so many out.

OH by the way the hysteroscopy was horrible as well. My uterus felt as if someone was using it to perform acrobatics inside me. It was 100 times worse than any after birth pains I have ever felt!

Now, on top of this of course my husband was an emotional wreck! When the OB had come out to update him after the original surgeries she said, "well everything went according to procedure but......" Well you can guess that his thoughts stopped there and his heart fell to the floor! She finally got him to realize I was actually alive and oh BTW you can see her in about an hour which turned out to be almost 2 hours later because of the amount of pain meds that they had to give me. Also, when he finally did get to see me I was so looped out of everything and puking into a basin. Mind you I do NOT puke in front of anyone and he knows how particular I am about that! So, he knew it was bad.

Then 3 days later while he is at work out of town he finds out that I was rushed to the ER. The poor man was an emotional wreck!

Anyways, I am finally feeling a bit better and I these events did confirm that when mama is so sick she is out of commission the house, kids and hubby actually do kinda break down!

The sad thing is that now I am only part way through my journey. I have to go back to the GI and explain everything to him and let him check off OB visit/endo check off his list. UGHHHHHHH.............. Where will I get the energy??? I just want to lay in bed and cry!

Which I did this past weekend. :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

How awful! I hope you feel better really soon!

Monklady123 Collaborator
Monklady123
Posted

Omg, how awful! :o I hope all that is the worst that you ever get, and from here on out it gets only better.

vbecton Explorer
vbecton
Posted

Oh sweet baby jesus! I was actually holding my stomach while reading your story. I'm so sorry you had to go through all of that. And why is it that our husbands are always out of town during the good stuff? ;) I know he must have been scared!

And yes, mommies don't get days off. I was in bed all weekend and when I finally decided to peep out I saw the most horrendous sight. Food packages on the living room floor, blankets drug halfway through the house, dog food littered through the pantry, the rabbit cage wide open (knowing full well my dog has been known to kill rabbits), sticky gross countertops with 2 sinks full of dishes, a dirty diaper (pee) on the floor, and so much more. There should be a special maid service for just these types of events!

I hope things are looking up for you. I really hope you find some relief!!

ravenwoodglass Mentor
ravenwoodglass
Posted

I am so very sorry you had to go through all this pain. I hope your feeling better soon. If you are still in pain and out of it do call your insurance company and see if they will cover something like a visiting nurse service or call on freinds or relatives to see if perhaps someone could help out even for a nominal fee. You need to rest and recover if you can.

Sending good and healing thoughts your way for a quick recovery.

looking4help Apprentice
looking4help
Posted
  • Author

You are all so sweet! The pain is gone. Actually GONE! And I don't mean the pain from surgery and the hospital stay but I mean the pain that has been in my left side stabbing me every single day for a year now.

I did notice that the day after surgery before I got drug to hell by the diverticulitus demons but I did not get to enjoy it long at all.

Today for the first day in a SOLID year I have NO NO NO PAIN! I mean I am very exhausted, can't hardly move my body at all but OMG the pain is gone!

I have hope. FINALLY. I truly was about to throw in the towel and was wishing a quick death in my bed Saturday night. Quite a pity party I was having, sad to say.

But you guys are so very supportive here. My BFF is so very sweet to me as is my husband but they don't "get" it. I know I can always come here for help and encouragement!

I am so very sorry you had to go through all this pain. I hope your feeling better soon. If you are still in pain and out of it do call your insurance company and see if they will cover something like a visiting nurse service or call on freinds or relatives to see if perhaps someone could help out even for a nominal fee. You need to rest and recover if you can.

Sending good and healing thoughts your way for a quick recovery.

ravenwoodglass Mentor
ravenwoodglass
Posted

You are all so sweet! The pain is gone. Actually GONE! And I don't mean the pain from surgery and the hospital stay but I mean the pain that has been in my left side stabbing me every single day for a year now.

I did notice that the day after surgery before I got drug to hell by the diverticulitus demons but I did not get to enjoy it long at all.

Today for the first day in a SOLID year I have NO NO NO PAIN! I mean I am very exhausted, can't hardly move my body at all but OMG the pain is gone!

I have hope. FINALLY. I truly was about to throw in the towel and was wishing a quick death in my bed Saturday night. Quite a pity party I was having, sad to say.

But you guys are so very supportive here. My BFF is so very sweet to me as is my husband but they don't "get" it. I know I can always come here for help and encouragement!

I am so happy for you that the adhesion removal and other procedures have finally gotten rid of that pain! It must be quite a relief to know that you didn't go through all that for nothing. Doing a 'happy dance' for you. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

What a tale. The surgery sounds beyond awful but I'm so glad to hear they found the cause of that stabbing pain. I hope it's gone for good after the ordeal you went through to be rid of it!

Aphreal Contributor
Aphreal
Posted

Oh my GOSH what a nightmare! I am so so sorry :( I am glad to see you well enough to share with us! I lift you up for a speedy recovery.

looking4help Apprentice
looking4help
Posted
  • Author

I too am happy that ordeal is over! Now, to deal with my nutrition problems and the diverticulitus. That in itself may require another surgery UGH! But, at least I am feeling a bit more hope now.

It was here on the boards that someone convinced me to move forward with the OB surgery! I am soo very glad that I had that support!

Thank you all!

What a tale. The surgery sounds beyond awful but I'm so glad to hear they found the cause of that stabbing pain. I hope it's gone for good after the ordeal you went through to be rid of it!

butterfl8 Rookie
butterfl8
Posted

((((((Hugs))))))

Not much else I can add beyond what has been said. So sorry that you had such miserable pain, but very happy to know that the miserable pain may be ending! Best wishes for you. And take good care of yourself!

-Daisy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,913
    • Most Online (within 30 mins)
      7,748
    JodyRonald
    Newest Member
    JodyRonald
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coping with celiac

      By Scott Adams · Posted

      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      3 years with Celiac, now I appear fine.

      By Scott Adams · Posted

      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
    • Scott Adams
      Bloodwork Help for my Teen

      By Scott Adams · Posted

      Your daughter's results, along with her symptoms and family history, certainly suggest further investigation for celiac disease is warranted. The low total IgA can explain why some IgA-based tests, like tTG-IgA, are negative, as there's simply not enough IgA in her system for reliable results. The weak positive tTG-IgG is notable, especially with her symptoms and the vitamin D deficiency, which is common in celiac disease due to malabsorption. I’d recommend discussing these results with her doctor or a gastroenterologist. They may suggest an endoscopy with biopsy for a definitive diagnosis or explore other potential causes for her symptoms. Meanwhile, keeping a food and symptom diary can help track patterns until a formal diagnosis is made. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.    
    • Scott Adams
      Complexities in second and third autoimmune disorders attached to ceoliac.

      By Scott Adams · Posted

      Thank you for sharing your story—it really highlights the lifelong challenges of living with celiac disease, especially during a time when gluten-free options were nearly nonexistent. It’s heartbreaking to hear about your mother’s struggles and the severe health complications she faced, and I completely agree that more research is needed into the long-term effects of celiac and its associated autoimmune disorders like Hashimoto’s. The cost and availability of healthy, truly gluten-free foods remain a huge issue, and navigating hidden gluten and cross-contamination can make social situations and even eating out incredibly stressful. I also share your frustration with the lack of understanding among some medical professionals and the difficulty in finding specialists who truly get it. Your point about the need for affordable medical treatments, food vouchers, and better resources like travel guides for celiacs is spot on. Hopefully, as awareness grows, there will be more support for people facing these challenges. Thank you for raising such important issues! You should find a new GP in the New Year, because you cannot cure celiac disease by detoxing/cleaning your gut, and there is a lot of junk science out there which makes claims like this one.
    • Scott Adams
      Cooking with Scallop Medalions

      By Scott Adams · Posted

      Welcome to the forum. Scallop medallions should be gluten-free, even if they used meat glue (transglutaminase) to make them, and not everyone who has celiac disease will react to meat glue, but some might. The likelihood of scallops containing transglutaminase is relatively low, as fresh or frozen scallops are typically sold without additives. However, some processed scallop medallions, especially those shaped or reformed, may use transglutaminase as a binding agent. It’s always a good idea to check the label or contact the manufacturer to confirm. The article below has more info.   
×
×
  • Create New...