Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity After Going Gluten Free?


williamsburg000

Recommended Posts

williamsburg000 Rookie

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again :angry:

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgirl Contributor

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again :angry:

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

I'm noticing that other issues are showing their ugly little heads. I'm looking at the blood type diet, too. I've noticed that the foods my type should stay away from, have caused problems...more allergy-type problems though...like my tongue burning. After eating at Cafe Gratitude (a gluten-free restaurant in San Francisco (fantastic btw!) other familiar allergy symptoms have popped up (never knew why before kuz nothing had gluten in it)...like my tongue burning. This was after finding out my blood type. I took the menu home and read ingredients and there are 2 things in the meal that my type should avoid. Anyway, it's something to look at.

tmbarke Apprentice

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again mad.gif

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

I get reactions from sausage - fillers and possible seasoning issues.

I make my own - try this recipe.....it's easy and delicious - I use ground pork or ground turkey - either way - it's gluten-free!!!!!!!

Homemade Italian Turkey Sausage 1 lb. lean ground turkey2 tsps. garlic powder1 1/4 tsps. fennel seed, crushed1 1/4 tsps. sugar1 tsp. salt1 tsp. dried oregano1/2 tsp. pepper Combine everything. Cover and refrigerate for at least 8 hours or overnight. Shape into patties or crumble and cook until no longer pink.

I just gave up on trusting processed meats

dilettantesteph Collaborator

I got more sensitive. First I felt great just cutting out bread and cheerios. Then more and more. Now stuff tested to 5 ppm still gets me. I do mainly whole foods. Good luck.

JBaby Enthusiast

Yes this is common. For me, I am now sensitive to High fructose corn syrup and red dye #40. Dairy is a work in progress.

Skylark Collaborator

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

I joined this board to ask exactly that same question. I have become quite a bit more sensitive on the diet. I used to be able to eat french fries and not worry about the fryer or go to places like Taco Bell and not worry about CC. Suddenly I started reacting to very small amounts of gluten and now I have to be very strict. 20 ppm foods occasionally get me if I eat a lot.

srall Contributor

Absolutely. And it's a relief to hear it's common. As of right now I have moved to a completely whole foods diet. When I first started this diet I felt great cutting out dairy and wheat. Now I feel like one slip will send me on a downward spiral for days. I avoid wheat (obviously), dairy, corn, soy, wine, and coffee and am now wondering about eggs. It is frustrating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I've been trying to see if eggs are causing my morning sneezing. I cut them out for two weeks and it seemed to get better. Then ate them again and it seemed to get worse. Now I am cutting them out again. There are so many other possible triggers, it is hard to tell.

Tazer Newbie

I'm not sure if this is exactly what you meant, but once my girlfriend stopped eating gluten she now has a severe reaction if she eats it. She's been gluten-free for about 8 months, and if she ingests a bite of gluten she will literally be in bed for 2 weeks, the first week of which she is in absolute agony. Unfortunately, she has not seen any benefits from going gluten-free - the naturopath said it would cure her chronic joint pain. I'm reading that it can even take a year or two for the body to heal from gluten, but she has literally not improved one iota - very disheartening.

anabananakins Explorer

I don't think I'm getting progressively more sensitive, but I'm definately very sensitive now. I can't believe I used to eat that stuff all the time. I'm glad though because the stomach ache and D stops me from ever chancing it. I came really close to getting noodles from the chinese take away the other night but knowing the cross contamination would destroy was incentive enough to get me to walk home and make a proper dinner.

srall Contributor

I'm not sure if this is exactly what you meant, but once my girlfriend stopped eating gluten she now has a severe reaction if she eats it. She's been gluten-free for about 8 months, and if she ingests a bite of gluten she will literally be in bed for 2 weeks, the first week of which she is in absolute agony. Unfortunately, she has not seen any benefits from going gluten-free - the naturopath said it would cure her chronic joint pain. I'm reading that it can even take a year or two for the body to heal from gluten, but she has literally not improved one iota - very disheartening.

I'm sorry your girlfriend is struggling. This reaction, including the joint pain sounds so similar to my symptoms. I'm only 5 months in. I have good days and bad days. Her intestines may have a lot more damage than mine, because I'm like the others with good days and bad days but definitely major improvement. I guess I would just reiterate whole foods, no processed. And coffee and wine also cause flare ups. I think that joint pain is just awful to deal with. I really feel for her.

williamsburg000 Rookie

Sorry for taking so long to thank everyone for their replies, my mind's only just started to get back into gear after the glutening.

Well, I guess it looks like 100% whole foods from now on then. Deep down I think I knew what may have been happening with the processed 'gluten free' stuff, but after giving up quite a few things I enjoyed eating, it was just nice to have found something I thought I could eat w/o having problems.

I'll give the sausage recipe a go TMBarke, thank-you. At least I'll know for sure that it will only contain those products I've included, no more taking a gamble even on those processed foods I thought I could trust, or at least perhaps as a treat once in a while.

sandsurfgirl Collaborator

Sorry for taking so long to thank everyone for their replies, my mind's only just started to get back into gear after the glutening.

Well, I guess it looks like 100% whole foods from now on then. Deep down I think I knew what may have been happening with the processed 'gluten free' stuff, but after giving up quite a few things I enjoyed eating, it was just nice to have found something I thought I could eat w/o having problems.

I'll give the sausage recipe a go TMBarke, thank-you. At least I'll know for sure that it will only contain those products I've included, no more taking a gamble even on those processed foods I thought I could trust, or at least perhaps as a treat once in a while.

How many months gluten free? It was 6 months for me before I felt good and could handle complex foods. You might just need more healing time. It's trial and error. I could not eat tapioca starch for the longest time. Now it's fine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to ellyelly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Biopsy results - second opinion?

    2. - ellyelly replied to ellyelly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Biopsy results - second opinion?

    3. - knitty kitty replied to ellyelly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Biopsy results - second opinion?

    4. - ellyelly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Biopsy results - second opinion?

    5. - knitty kitty replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      New Guy Here...


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,233
    • Most Online (within 30 mins)
      7,748

    tkayj
    Newest Member
    tkayj
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Because of your anemia, you may not be making sufficient antibodies.  I hope they did a total IgA as well as the tTg IgA, and DGP IgG.  I hope you will share the results with us.  If your body isn't making a large amount of antibodies, then the intestinal damage would be less as well.  The antibodies attacking our own cells is what causes the damage. Anemia, diabetes, and thiamine deficiency can cause false negatives on antibody tests.  Have you been checked for nutritional deficiencies besides the ferritin?  Several vitamins and minerals are needed to correct iron deficiency.  Have you been taking any vitamin supplements? Positive on the genes, I see.  Increases the likelihood...  Good job on ramping up on gluten for the test!
    • ellyelly
      Thanks so much for the link and for your thoughts! I have been on a gluten - containing diet and ramped up my intake in the couple of weeks leading up to the endoscopy, so I’m hopeful that the biopsy is painting an accurate picture.    I don’t quite understand what else might be causing the lymphocytosis and the inflammatory cells/ clusters of plasma cells and struggled to get clarity from the specialist. Perhaps this is common and nothing to be concerned about?!   In case relevant, my mother sister are both celiac, and I have the genes: HLA-DQA1*05:01 = Heterozygous HLA-DQB1*02:01 = Heterozygous Thanks again! 
    • knitty kitty
      Welcome to the forum, @ellyelly! How much gluten were you eating in the weeks prior to the endoscopy?  Many people with indeterminate results had cut down or eliminated gluten from their diet beforehand.  This can lower the autoimmune response and decrease the symptoms (lower antibody levels,  reduced inflammation and intestinal damage may heal).   If you weren't eating a sufficient amount of gluten per day in a minimum of two weeks prior to the endoscopy, you may want to do another gluten challenge with repeat endoscopy. Here's an article that explains, be sure to read the comments.   
    • ellyelly
      Hi all, Such valuable insights shared here - I am so grateful to be able to read along! Thank you all for sharing your wisdom.  I (37yo female) have recently had an endoscopy to screen for celiac given a strong family history and extremely low Ferritin for the past 7 years (not responsive to oral supplements). I am awaiting celiac blood panel results (completed post-endoscopy to provide another piece of the puzzle, I think was just an accidental oversight not doing earlier).  The endoscopy results are as follows: Gastroscopy:  Stomach: Mild gastritis and one 4mm benign appearing inflammatory polyp in the body.  Duodenum: Largely normal but few shallow erosions seen in the duodenal bulb. Microscopy:  1. Sections show specialised and non-specialised gastric mucosa with increased numbers of chronic inflammatory cells within the lamina propria including occasional clusters of plasma cells amounting to mild chronic inflammation. No active inflammation, intestinal metaplasia, dysplasia or malignancy is seen. Immunostains for Helicobacter organisms are negative. 2. Sections show small bowel mucosa with normal villous architecture. A mild non-specific intra-epithelial lymphocytosis is noted at the villous tips of uncertain clinical significance. The lamina propria contains a normal population of chronic inflammatory cells. No granulomas or parasites are seen. There is no dysplasia or malignancy. Conclusion 1. Gastric: Mild chronic inflammation 2. Duodemum: Mild non-specific intraepithelial lymphocytosis with preserved villous architecture.  The GI specialist, assuming blood tests come back normal, feels it is unlikely that it is celiac given the normal villous architecture. Suggested continuing on as usual and monitoring for symptoms etc, screening with blood test if required in the future.  Worth a second opinion or does this seem accurate? Anything else I should be considering? I feel a little lost as to how to best proceed! Thanks again.  
    • knitty kitty
      @TerryinCO, Are you taking a B Complex in addition to your B12?  B 12 needs the other B vitamins to function correctly.  Celiac disease and the damage to the intestines makes absorbing vitamins and minerals difficult.  Talk to your doctor and nutritionist about supplementing while you're healing.   Are you on any medication for your Gerd?  Here is often caused by too little production of digestive juices.  Supplementing with a B Complex will help.  
×
×
  • Create New...