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I Cheated , Bigggg Time!

scratch-n-eat

By scratch-n-eat
in Dermatitis Herpetiformis

Recommended Posts

scratch-n-eat Newbie
scratch-n-eat
Posted

So here goes. In 2002 I started getting painful pimples all over my scalp. I took the enterolab test that was positive, but barely. I went gluten-free, and POOF....the pimples went away. I have always been suspicious of my whole gluten-free/DH status. I didn't get the typical symptoms (itching on knees and elbows, intestinal issues, ect.) I even took a blood test at the derm for the antibody markers for celiac, but came up negative. I was gluten-free at the time of the test. Probably why.... don't know.

So here we go...I have been gluten-free (religiously, for 7 years) since 2003, and no pimples. About a month and a half ago , I said screw it... I got an extra large pizza, a six pack of beer , and went to town. Matter of fact...I have been eating gluten every day for the last 6 weeks with no probs ....UNTILL last week. I started getting the scalp pimples again.

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

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RideAllWays Enthusiast
RideAllWays
Posted

Not sure about the DH, but have you noticed any other symptoms for the past 6 weeks? Maybe you're more tired, moody, scatterbrained, sore? If you are doubting diagnosis because of you not reacting for 6 weeks, maybe stay on gluten and then get a biopsy? But if you know that the rash went away with gluten might as well stick to it and have happy skin! :)

ksymonds84 Enthusiast
ksymonds84
Posted

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

When I did the gluten challenge last year for my endoscopy it took 1 1/2 months for the symptoms to come back and they came back worse than ever!

scratch-n-eat Newbie
scratch-n-eat
Posted
  • Author

But God the beer and pizza are so good. LOL

Skylark Collaborator
Skylark
Posted

DH can take a while. Your body had to build up all those antibodies in your skin again!

Do you have a BJ's in town? They have gluten-free pizza and beer. :)

lovegrov Collaborator
lovegrov
Posted

As with so many things and with a lot of things to do with celiac, it all depends on the person. We're not all alike and we don't all react the same way, so there's no "normal" or average. My father's DH disappeared for a few years without going gluten-free and then suddenly returned again. Is that "normal?" No, not really, but that's what happened to him.

richard

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      Waiting on Blood test results…

      By ChrisSeth · Posted

      Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori  infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection? 
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