Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D

MommyL

Recommended Posts

MommyL Rookie
MommyL
Posted

I do not have celiac but I recently got my vitamin D tested through Direct labs and was 21.9.

1) How low was your vitamin D when it was tested?

2) How much vitamin D do you take?

3) How long did it take for your vitamin D to go up after supplementing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Hi. Mine was 16.7 (range 32.0-100). My Dr. put me on 50,000 units once a week for two months and then I took 4,000 units a day for about three months now I am down to 1,000 units a day. At my last visit she said I was in the normal range now.

Simona19 Collaborator
Simona19
Posted

Hi! I just got back my results yesterday.

I had: Vitamin D, 25-OH, total 31 referance range: 30 to 100

Vit D, 25-OH, D3 31

Vit D, 25-OH, 02 <4

Note: 25-OHD3 indicates both endogenous production and supplementation. 25-OHD2 is an inbdicatore of exogenous souces such as diet or supplementation. Therapy is based on measurement of total 25-OHD, with levels <20ng/mL indicative of Vitamin D deficiency, while levels between 20ng/mL and 30ng/mL suggest insufficiency. Optimal levels are > or = 30 nag/mL.

My doctor told me that I need to take Vitamin D supplement 1 000 units for the three monts, and I should be ok. He would retest me after that.

I hope that this will help you some how.

jststric Contributor
jststric
Posted

I'm thinking mine was 17. My doc simply had me start taking 4000 units/day. I haven't been retested as it was just discovered in the past month. Is this a normal symptom of being gluten-intolerant? I am also a 51 yr old woman going thru the change. I assumed it was due to that. Maybe a double-whammy? I know my mood seemed to noticeably pick up after starting to take the added D.

MommyL Rookie
MommyL
Posted
  • Author

I'm thinking mine was 17. My doc simply had me start taking 4000 units/day. I haven't been retested as it was just discovered in the past month. Is this a normal symptom of being gluten-intolerant? I am also a 51 yr old woman going thru the change. I assumed it was due to that. Maybe a double-whammy? I know my mood seemed to noticeably pick up after starting to take the added D.

Glad to hear you all have been tested. I went through Direct Labs for $69 (those of you who are intrested plus you can get 10% off if you search Direct Labs coupon). My understanding is that many people are deficient in vitamin D and it plays an important role in preventing cancers, MS, autoimmune, and osteoprosis. I think those of you who have celiac should really consider checking your vitamin D and everyone else as well as it is an important vitamin.

blissfully-unaware Rookie
blissfully-unaware
Posted

Mine is 14.4 (normal range is 30-100).

My doctor gave me a shot of vitamin D. I'll get another test done in 3 months and based on the results, he'll decide if I need another shot. He said that it'll take a long time for my vitamin D level to increase if I take oral tablets... he felt it's best to take the shot.

MommyL Rookie
MommyL
Posted
  • Author

Mine is 14.4 (normal range is 30-100).

My doctor gave me a shot of vitamin D. I'll get another test done in 3 months and based on the results, he'll decide if I need another shot. He said that it'll take a long time for my vitamin D level to increase if I take oral tablets... he felt it's best to take the shot.

Wow that is low! Glad he gave you a shot. Take care. Enjoy some sunshine :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Mine was 17 also (range 32-100) and was put on RX vitamin D 50,000 iu capsules once a week and I am still currently taking this dosage. I was retested at 3 months and it went up to the minimum range. I have had labs over the last 1 1/2 years since I started taking it and I am now at 64.2. My GI, endo and gyn all recommended me staying on it year round and like to see the level between the 50-70 range.

blissfully-unaware Rookie
blissfully-unaware
Posted

Wow that is low! Glad he gave you a shot. Take care. Enjoy some sunshine :)

Thanks :D

In fact, I have been going out in the early morning sun after seeing my results!

frieze Community Regular
frieze
Posted

Thanks :D

In fact, I have been going out in the early morning sun after seeing my results!

i dont think the early morning sun is going to do you overmuch good.....10-20 minutes of FULL sun a day, i think is the idea.....

Linda L Newbie
Linda L
Posted

I agree with Frieze, but it depends where you live. I'm in Maine, USA and I've read that you need direct sun on clean (no sunscreen) skin between 10am and 3pm. Unfortunately, it only works here between May and September (different experts give different time frames). In the winter the angle of the sun prevents the right rays from reaching us. At all. I have osteopinea, so although my Vit D test was 39.5, my PA has me taking 50,000 units weekly for 8 weeks to see if I can get my numbers up because of the relationship between Vit D and calcium absorption. (Some researchers think the "normal" range of 30 or above is too low for optimum health and we ought to be trying for 50+.)

sb2178 Enthusiast
sb2178
Posted

2007 : 15

50,000 IU/ one weekly for 12 weeks

retest: 72

daily: 1200 IU

2010: 32 (and this was when I was doing lots of mid-day gardening, too... bah!)

new dose: daily 3200 IU

blissfully-unaware Rookie
blissfully-unaware
Posted

Well, I usually go out in the sun around 8am for 10-12 minutes. I stay in Dubai where we have full sun (no clouds) for 350 days of the year!

I always thought that going out in the sun between 10am and 3pm would increase the risk of skin cancer?

jststric Contributor
jststric
Posted

Well, I usually go out in the sun around 8am for 10-12 minutes. I stay in Dubai where we have full sun (no clouds) for 350 days of the year!

I always thought that going out in the sun between 10am and 3pm would increase the risk of skin cancer?

It does. I suspect the sun in Dubai is completely different than we are used to here in the States. My doc recommended the supplements over spending time in the sun because she figured in the fact that most people use sunscreen these days (or should, which would lower the Vit. D exposure also. I have to admit I'm surprised at the amounts many people are taking here.

anabananakins Explorer
anabananakins
Posted

I do not have celiac but I recently got my vitamin D tested through Direct labs and was 21.9.

1) How low was your vitamin D when it was tested?

2) How much vitamin D do you take?

3) How long did it take for your vitamin D to go up after supplementing?

1) My result was 2. I haven't seen the hard copy so I'm not sure of the range but he said it should be a minimum of 50 and 70 was optimal. So 2 was terrible.

2) He put me on 3 x 1000 IU per day.

3) I don't know yet, haven't been re-tested. He said it takes a long time, a few months at least.

I live in Australia so even if I'm not lying in the beach, I still should be getting a fair amount of sun so I was really shocked how low mine was.

Linda L Newbie
Linda L
Posted

To blissfully unaware: I agree that where you live on the planet determines what time of day is best for getting sun. Doing a little research on the recommendations for your latitude is extra important. The options for those of us living in very northern and southern latitudes is limited to certain months and times of day. The closer you live to the equator, the bigger your "window of opportunity" would be. Certainly 8am could be the safest time of day for you to collect some natural Vitamin D, but do be careful to limit your exposure without sunscreen.

SaraKat Contributor
SaraKat
Posted

Mine is 60 and I was just dx'd with celiac by blood test 2 weeks ago. I guess that hadn't gone down yet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,175
    • Most Online (within 30 mins)
      7,748
    Janice Emmendorfer
    Newest Member
    Janice Emmendorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      I’m so confused…

      By knitty kitty · Posted

      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. 
×
×
  • Create New...