Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep, Kids, And Gluten


Chakra2

Recommended Posts

Chakra2 Contributor

My 2 yr old is in the process of trying to figure out a diagnosis (gluten sensitivity vs celiac). He has GI symptoms but the issue that really got me started looking into all this was sleep. He was still waking 4-5 times a night at 18 months. I asked my pediatrician if it could be food-related and he said no, but I felt like I was seeing a connection and started googling. Anyway, as soon as I took him gluten (and dairy) free, he slept through the night. Instantly. But my pedi still says (as recently as 2 weeks ago) that he doesn't think sleep problems are a celiac/gluten-sensitivity symptom. He's more focused on the GI stuff. So I wanted to ask -- did any of your kids have sleep troubles before they were diagnosed?

Chakra2


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I sleep better with less waking now that I am gluten-free. Don't know if it's just because I may have had stomach upsets that caused me to wake or am sleeping better.

slee Apprentice

My 2 yr old is in the process of trying to figure out a diagnosis (gluten sensitivity vs celiac). He has GI symptoms but the issue that really got me started looking into all this was sleep. He was still waking 4-5 times a night at 18 months. I asked my pediatrician if it could be food-related and he said no, but I felt like I was seeing a connection and started googling. Anyway, as soon as I took him gluten (and dairy) free, he slept through the night. Instantly. But my pedi still says (as recently as 2 weeks ago) that he doesn't think sleep problems are a celiac/gluten-sensitivity symptom. He's more focused on the GI stuff. So I wanted to ask -- did any of your kids have sleep troubles before they were diagnosed?

Chakra2

slee Apprentice

My son absolutely had trouble sleeping, waking up 8-10 times at night prior to diagnosis (18 months). After diagnosis he started waking up 3-4 times a night instead, and now sleeps through.

StephanieL Enthusiast

Food issues can 100% cause sleep issues! Yes yes yes! My DS went from up every hour (yes, around the clock) to sleeping 6-8 hours after taking out a long list of allergens!

TrickyMama Apprentice

It seems at the very least that if gluten is causing your child pain that could wake him up. The pain goes away so he stops waking up. I think your belief is completely legitimate. Just in my not so humble opinion. By he way, I've experienced the same thing with my son but he's 7 so it is easier to get an idea of what wakes him. And what hurts. Good luck with figuring it all out. It's so not easy and doctors are not always the most helpful, sadly. We moms have to do what we have to do and if we know gluten is making our kids sick, we know how to fix that. And the thing is, it's not like gluten is a superfood we are eliminating. It's quite unhealthy for even those with a healthy gut.

MacieMay Explorer

Funny, I should come across this post at 2am, after my 17 mos has been up. We are too struggling with a diagnosis. She has been on and off the gluten several times over the past couple of months. 5 days ago she went back on after, I either accidently gave her something with Gluten or she was cross-contaminated. After that incident, I decided to go back on the Gluten and watch her VERY closely. My husband does not believe that Gluten could be causing her issues, and he's an RN, go figure!! I thought if I put her back on and he could see her symptoms and how closely they are mimicking Celiac, that he would finally see it and agree. No such luck!! He is still coming up with every excuse in the book, everything I think is gluten related, he thinks is something else. It doesn't help that we've had negative celiac panel and negative biopsy. I honestly, believe that she is having an issue with gluten but getting it diagnosed at her age is going to be another story. : ( Anyway, since she has been back on the gluten this week, everynight she has been crying and whining in her sleep, like something is bothering her. She hasn't fully waken up and gone into any full-blown crying fits but she lets out these crys 2-3 times a night (I still have the baby-monitor next to my bed). I remember her doing it in the past, when she was younger and acknowleding it but not really thinking much about. We have since given up dairy too.

I hope this helps and good luck getting your answers!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brendab Contributor

Yes! When I took my child off (not thinking gluten at the time) which meant me as I was nursing him, he had been waking every 15-20 min. during the NIGHT and sleeping only for about 5 min. at a time during the day. He was 7 months old when it was removed from my diet and I started him on the gluten free (or mostly that is) diet thinking it was JUST wheat. I don't eat rye or barley itself but I know it can be in other things. We just eat a lot of homemade and whole foods so gluten at that point just wasn't a big part of our diet by nature. Every now and then he'd react but I never suspected gluten but was frustrated and wondered what was going on! Anyway, it took 5 months to get him to start sleeping through the night.

RiceGuy Collaborator

I certainly did have tremendous difficulty sleeping before going gluten-free. Just couldn't sleep, and didn't know why. There wasn't much if any reason that I could figure, though looking back, I think it was basically a neurological effect.

Anyway, since going gluten-free/dairy-free, and a few other things (and taking supplements), I have no trouble falling asleep, and there's no restlessness or tossing & turning. Sure wish I knew long ago! I didn't exhibit the "classic" Celiac symptoms, but even if I had, all the doctors I'd been to for stuff while growing up would probably still not have figured it out.

HTH

Skylark Collaborator

I'm not a kid, but an adult who suffered chronic insomnia until I went gluten-free and started getting proper nutrition.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,160
    • Most Online (within 30 mins)
      7,748

    Elaine Gilbert
    Newest Member
    Elaine Gilbert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
×
×
  • Create New...