Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible Stomach Pain

Rdv22222

By Rdv22222
in Coping with Celiac Disease

Recommended Posts

Rdv22222 Rookie
Rdv22222
Posted

Just wondering if anyone has had a sudden, severe bought of upper (middle) abdomen pain? Is this the bowel? Stomach? Other organ?

I also had bad back pain a little later, and together, they were unbearable and the ER doctor said I had GERD and back strain (lumbar). ( I had actually lifted some heavy things at work earlier in the day). Could the two be related? (back and abdominal pain?)

Also, I had been eating a lot of flax seeds, etc. prescribed by a nutritionalist? Also a lot of nuts. I discontinued both. This happened in April. Just worrying that it may be something related to celiac. I am currently being tested for celiac.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Maus Newbie
Maus
Posted

Yes, I've had the pain you describe on numerous occasions and it is HORRIBLE! I always described it as being skewered through the stomach. If I had back pain, the stomach pain over-rode it, so I can't recall. I was also tested for celiac and learned I have the gene, but not the disease yet. As gluten-sensitive, my dr told me eating gluten-free could prevent the disease and could possibly make me feel better.

It's been 2 years now and I haven't had the intense pain since I've changed my lifestyle. I pray that you don't have any issues and that perhaps the situation is just muscular. Bear in mind, the muscles around the stomach and back are interconnected, and by exercising one, you exercise the other, too.

Best of luck.

Just wondering if anyone has had a sudden, severe bought of upper (middle) abdomen pain? Is this the bowel? Stomach? Other organ?

I also had bad back pain a little later, and together, they were unbearable and the ER doctor said I had GERD and back strain (lumbar). ( I had actually lifted some heavy things at work earlier in the day). Could the two be related? (back and abdominal pain?)

Also, I had been eating a lot of flax seeds, etc. prescribed by a nutritionalist? Also a lot of nuts. I discontinued both. This happened in April. Just worrying that it may be something related to celiac. I am currently being tested for celiac.

Thank you.

brendab Contributor
brendab
Posted

I've had that intense pain before but it doesn't happen often thank goodness! I don't understand it and it lasts for hours upon hours; I can feel every inch of my intestines until it reaches the end with little to no results. No explaination either as it was at a time I was KINDA gluten-free and so there were many times I ate gluten here and there without the pain. I wonder if it's the "bucket" theory of it running over? I don't know but I do know I feel your pain, literally!

brendab Contributor
brendab
Posted

I've had that intense pain before but it doesn't happen often thank goodness! I don't understand it and it lasts for hours upon hours; I can feel every inch of my intestines until it reaches the end with little to no results. No explaination either as it was at a time I was KINDA gluten-free and so there were many times I ate gluten here and there without the pain. I wonder if it's the "bucket" theory of it running over? I don't know but I do know I feel your pain, literally!

I'm sorry for quoting myself but I have always wondered about what I posted, is this particular pain a sometimes thing or is it everytime for everybody? Is it possible to have celiac disease when the pain is only sometimes as in just a few times a YEAR?

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm sorry for quoting myself but I have always wondered about what I posted, is this particular pain a sometimes thing or is it everytime for everybody? Is it possible to have celiac disease when the pain is only sometimes as in just a few times a YEAR?

For me it was a sometimes pain prediagnosis. The first time I had it really bad my family rushed me to the ER thinking I was having a heart attack. I still get it if I get a lot of gluten or soy but that hasn't happened in a long time.

tweeks2010 Apprentice
tweeks2010
Posted

Just for info. Flax seeds can be manufactured/packaged in a facility with wheat products in it. Most of the flax seed packaged that you can by where i am say on the back..."Processed in a facility with wheat" or something rather. Also if you are buying these products in bulk (nuts/flax,ect), pay attention to what is in the other bulk bins beside them. It is very possible that whomever put them in the bulk bins didn't change gloves or tools(utensils) while doing it...so most of that could be and are mosre likely to be contaminated. This could very well be where you are getting the stomch cramps and pain from. I know it doesn't take much at all for me to react.

If you are unsure of the product being safe...call the company...they will tell you how it was processed....if it is processed around wheat/gluten containing items...they'll tell you if it is 100% gluten free or not. What I learnt so far...."better safe then sorry"

Tiffany

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,112
    • Most Online (within 30 mins)
      7,748
    aasyed
    Newest Member
    aasyed
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Soleihey
      Gluten Ataxia and Malabsorption

      By Soleihey · Posted

      I have been on supplementation for almost 11 months with no deficiencies showing up on blood work. So was just hoping to hear someone else’s story where it took longer to heal. 
    • Erain
      Orgain Protein Powder

      By Erain · Posted

      Here’s the answer from the company 😊   Hi Emily,    Thank you for reaching out to us! We can confirm the Organic Protein + 50 Superfoods Powder is gluten free. The organic barley and wheatgrasses we use are harvested prior to jointing, before the grain forms and any gluten protein is present. Rest assured appropriate measures are taken to ensure our gluten free products comply with the FDA final rule to be labeled as gluten free, as claimed on the side-panel label. Our suppliers are required to verify each ingredient and in order to ensure that our gluten free products comply with the FDA requirements, our manufacturing facilities use the ELISA test method to confirm gluten levels are less than the standard limit of <20 ppm.    If you have allergy concerns about consuming the grasses, we recommend consulting further with your healthcare provider. I hope this information helps! Please let us know if you have other questions.   
    • Erain
      Orgain Protein Powder

      By Erain · Posted

      That’s great to know. Thanks Scott
    • trents
      Postponing seeking a diagnosis?

      By trents · Posted

      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Postponing seeking a diagnosis?

      By kim-d · Posted

      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost all food there have gluten so I was going very hungry. They do offer a gluten free menu with a report though. So I decided I should try getting a diagnosis if I can, especially after reading how it was much harder to do gluten challenge after quitting gluten for a while. I was able to get an appointment for next week, and started eating around 150gr of bread per day to be sure.  First 24 hours I didn't feel any worse so I was starting to doubt myself, but then bloating hit hard. It wasn't anything unbearable, but the problem is I have finals soon and I'm now realizing this is a really bad time to do this. I can't begin studying from pain distracting me. I'm thinking of cancelling the appointment and eat low gluten until exams are over.  I worry about one thing. Before I went low gluten, I was eating a lot of bread already for over a month, which is what clued me into gluten, and I only went low gluten for around 10 days before going high gluten again. I wasn't that worried about a false negative. But if I eat low gluten until my exams are over, it means over a month of low gluten, and I would need a lot more time eating high gluten later to get a correct result.  I'm not sure which one should I do, bear it until my appointment or cancel it and try again when I'm free later. And If I choose the second one, how long would I need to do the gluten challenge for a blood test?
×
×
  • Create New...