Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Celiac Symptoms

marcar6

Recommended Posts

marcar6 Newbie
marcar6
Posted

Hello,

My son is 8 years old and weighs 41-lbs and hasn't grown for 6 months according to his doctor's reports. He is a picky eater at times. My son has always been small, so when he was 6 years old, his physician did a bone age determination resulting in a bone age of a 4 year old. He is quite active and is actually ADHD and very intelligent. Two weeks ago, he had bloodwork done and his doctor called me yesterday (Sunday) regarding his results. All bloodwork was in normal range except for the Celiac Tests. If I am remembering correctly, she said that the amounts would be in the normal range of 0-10 and his score was 70, and another score was at 79. To be honest, I know she said something about G and A,and TTT, but I didn't understand it at all, so I don't know which was which.

The Endocrinologist called me today and asked a million medical questions regarding genetics and current symptoms. My son is actually a healthy boy except for being delayed in growth. He does not get stomach problems except if he has the flu or something, which is seldom. (once every couple of years) They are going to call me with a date to get a biopsy of his intestine soon. My question is this....Are there other instances where someone would test high for celiac, but really not have it or have something else? Are there others out there with this type of symptom-free- diagnosis out there? By the way, there is no one in either family that has this disorder. I have Leinden Mutation, Pre-Ovarian Failure at 35 yrs., and my older sister has Crohn's Disease. No cancer of colon in family histories. Is there anybody that knows what could be going on here? Another thing was that the specialist asked about height and he thinks that this small stature has nothing to do with Celiac Dx. He thinks that he will grow to be at least 5'10" tall, give or take 2 inches.

Any help or concerns would be appreciated at this time as we are all a little confused and anxious.

Sincerely,

Marla

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

He actually may be symptomatic, the failure to grow and the ADHD can both be the result of undiagnosed celiac. False positives on blood work are basically unheard of but false negatives are common. Keep him on gluten until after the biopsy is done. The day the biopsy is done take him gluten free. You are in a great place to learn what you need to do to transition to the lifestyle. You should also have everyone in the family tested now even if they don't seem to be symptomatic. Silent celiac or celiac without strong GI symptoms can cause just as much damage to the body as to those who have daily D.

  • 2 weeks later...
bincongo Contributor
bincongo
Posted

He actually may be symptomatic, the failure to grow and the ADHD can both be the result of undiagnosed celiac. False positives on blood work are basically unheard of but false negatives are common. Keep him on gluten until after the biopsy is done. The day the biopsy is done take him gluten free. You are in a great place to learn what you need to do to transition to the lifestyle. You should also have everyone in the family tested now even if they don't seem to be symptomatic. Silent celiac or celiac without strong GI symptoms can cause just as much damage to the body as to those who have daily D.

I am a new Celiac. I told my daughter to ask her doctor about being tested. She was told if she didn't have any symptoms that she didn't need testing. Is this not true or is this just a doctor who doesn't know enough about Celiac. I haven't had time yet to go through this whole web site to check this out.

Skylark Collaborator
Skylark
Posted

I am a new Celiac. I told my daughter to ask her doctor about being tested. She was told if she didn't have any symptoms that she didn't need testing. Is this not true or is this just a doctor who doesn't know enough about Celiac. I haven't had time yet to go through this whole web site to check this out.

Celiac can be silent. People with silent celiac don't have GI symptoms but they are are still at high risk for vitamin deficiencies and osteoporosis. All of your first-degree relatives should be screened, whether or not they have symptoms.

GFinDC Veteran
GFinDC
Posted

Right, try a search on silent celiac or latent celiac. Symptom free people are in danger just like people with symptoms. And there are many, many symptoms besides digestive issues that are related to celiac.

bincongo Contributor
bincongo
Posted

Right, try a search on silent celiac or latent celiac. Symptom free people are in danger just like people with symptoms. And there are many, many symptoms besides digestive issues that are related to celiac.

Thanks to all you guys. I really think my daughter has Celiac because all the symptoms she has had for years but when I told her mine she said she didn't have any of those. She also had had a lot of problems getting pregnant and she was married six years before getting pregnant. Can anyone be specific about what blood tests should be ordered.

sb2178 Enthusiast
sb2178
Posted

antibody tests:

IgA and IgG AGA

IgA TTG (IgG TTG if available)

IgA EMA

total IgA

there are also DGP (deaminated gluten peptide, maybe?) antibody tests, which may or may not be available.

She absolutely must be eating significant amounts of gluten for the tests to even have a chance of being valid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,130
    • Most Online (within 30 mins)
      7,748
    Anna Poulin
    Newest Member
    Anna Poulin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      The tests outlined in the article I linked are rated according to "sensitivity" and "specificity". Sensitivity refers to how well the test does in not missing those who actually have the disease being tested for, in this case, celiac disease. The DGP-IGA test is estimated to have a sensitivity of 75% to 95%.  Specificity refers to how well the test does in not producing a positive score to medical conditions other than the one being tested for, in this case, celiac disease.  The DGP-IGA test is estimated to have a specificity of 90% to 100%. Obviously, in your case there is no issue with sensitivity. So, the only remaining question would be in relation to specificity. It is my observation from participating in this forum for many years and reading the posted test results from many, many forum contributors, that the likelihood of misdiagnosis due to a specificity issue diminishes greatly with high test score numbers. Still, there is a slight chance it could be due to something else. Think about it. If this were not so, why would your GI doc even be scheduling you for a biopsy?
    • Flosdiner
      Gluten-Free House Swaps

      By Flosdiner · Posted

      How cold is Ottawa in winter?    
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      It is interesting you mentioned that it could be other things because I asked my gastro and she literally said it means nothing else. That that value was only considered for Celiac which is kind of why I asked here because I didn't understand how a celiac only value could be high and it wasn't celiac. 
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      I did read this article and all it helped me determine was that I am too dumb lol. Plus with DGP IGA 75-95 is a huge range. I was also confused on if it meant 75-95% of people with positive dgp iga have it or if it meant that of 100% of the people that have Celiac 75-95% this value will be positive.  Most of my symptoms are GI related but the other one that stands out is inflammation. It almost felt like I had body aches and I have soreness right now that I don't have when I am on the paleo diet full time (which is gluten free when you never cheat on it, which I was occasionally). My doctor suspected Raynauds but never did a blood test for it, and then I have had ADHD which I can't remember if it was directly related or not. I have a healthy mix of a lot of stuff going on so honestly it would be a relief if it was celiac because I could at least manage that. Im a pretty healthy person exercise daily high intensity and endurance and a pretty good diet but I haven't been able to lose weight in like 7 years. 
×
×
  • Create New...