Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Night Sweats


Guest BERNESES

Do you have night sweats?  

143 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

ms-sillyak-screwed Enthusiast

Hi All!

I still get night sweats even if I don't eat gluten haven't in 5 years. I do consume sugar...

Someone mentioned antibiotics -- I did that for a infection in my gums from a broken back tooth I had no idea I had. I was on the antibiotics only a few days and I felt GREAT! I was shocked. I don't know the connection but I hadn't felt that good in years.

I'm not sure and would like to know more about H. Pylori - I have a feeling there is a connecting, but others here know more than I do. In something I read there is a connection with celiac disease but I'm not 100% sure what it was. All I know is the antibiotics made me feel great for a few months.

Anyone talk to their DOC about night sweats?

What did they say?

My doc says, "Oh I see." and writes it in my chart but offers no answers.

I blogg

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 151
  • Created
  • Last Reply
ms-sillyak-screwed Enthusiast

These night sweats are getting worse for me. It's 3:30 east coast time and I'm still up...

Has anyone asked their doctors what is causing them. Or what we can do?

I was reading in a book about autoimmune disease that people like myself that experience seizures can't take EVENING PRIMROSE it will promote or increase the potental of a seizure.

When I talk to my endo doc she writes it in my chart and tells me you look great! And she wants to girltalk with me.

Anyone have better luck getting answers???

Kristen2Denise Apprentice

Hi I went to the doctors about night sweats and my doctor is toying with the idea of candidas... I have been trying to research it and it sort of makes sense. I wish I had more advice!

ms-sillyak-screwed Enthusiast

candidas?

I was tests it was negative.

My 85 year old daddyO gets them he told me and he's a diabetic.

slpinsd Contributor

I, too, had horrible night sweats which have resolved after going gluten-free. I would wake up completely soaked, wet hair, sheets, and all. I guess that anything auto-immune (Celiac) can cause night sweats.

Guest Robbin

I had night sweats and hot flushes that started when I went gluten-free (in Jan) and just stopped suddenly I noticed last week I hadn't had any in a while. I honestly believe it is yeast die-off. That is just my guess in my own case. I just hope I don't get them back, as they are miserable. <_<

jerseyangel Proficient

Before I was gluten-free I had terrible night sweats. They were much worse when I was in my 30's. I would wake up in the middle of the night totally drenched. That was during the time I was taking lots of antibiotics and steriods. Now, I'm getting them due to menopause--and intrestingly, these are not anywhere near as bad as the ones I used to get.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sagesmama Rookie

I can't even believe that the night sweats that I've been having for 3 years are Celiac related! I haven't gone gluten-free yet because I have an endoscopy on the 31st but this is one major symptom that has been plaguing me (and my poor husband who I share a sweat soaked bed with :( ).

I love how the more that I read all of your experienced, the more "AHA! moments" (as Oprah calls them :P) I have.

Also- I have periodic insomnia... my last bout of it lasted 6 months... SIX MONTHS! And now I find out that THAT could be Celiac related? Whoa- this information is all so overwhelming and wonderful at the same time... you know what I mean?

Guest BERNESES

I know- it's crazy. It was one of my primary complaints when I first got sick. i realized that my insomnia was because of the sweats. i would be so wet and uncomfortable that I couldn't sleep anymore.

I take evenin primrose Oil even though they have died down and it really helps. Now I only get them when glutened and they are not nearly as bad.

ms-sillyak-screwed Enthusiast

I had an experience the other night that I never had before.

I get night sweats, not really bad. Not like some of you. I just get a little clamie, and sweaty. Well the other night I am trying to reintroduce rice and potatoes back into my diet. I had meatball soup. I made from scratch. I cooked the meatball in a skillet, added them to a soup pot with water, celery, grated carrots, a few spices (noting major) like basil and tarragon and I added some rice. I made the rice with a cap of olive oil and some saffron. The soup was really yummy.

In the middle of the night about 4:30 a.m. I thought I wet the bed... (I didn't) but the bed was wet. My PJ's were dripping wet. And as I stood up I was shivering cold. I got up changed the bed and my bed clothes went back to bed. Around 6:30 a.m. it happened again.

Do you think the rice caused it? Did I eat too much? Or what do you think?

I have asked this question here before, and I have also asked my thyroid doc and still no answer. Why do we get them?

Is there something we can take to stop it?

gointribal Enthusiast

oh man after I eat gluten I sweat like I've been working out(literaly driping)! I wake up cold because I am wet but I'm hot; its horrible, I'm thinking I am going to swear off gluten for life!

Guest BERNESES

Ms Silly Yaak- I have found that Evening Primrose oil helps EXCEPT wwhen I'm glutened. But even then, it's not as bad as it was. I definitely think there's a correlation between eating something you're intolerant of and night sweats.

  • 2 months later...
Guest BERNESES

Boy do i hate the fact that I'm reviving this thread, but I had to stop the Evening Primrose Oil and now my night sweats are back with an EVIL vengeance. so, I think for me, if the Evening Primrose Oil stopped them, they're probably hormonal. Ugh!

How do people cope? do you get up and shower? change your clothes?

Basically, I've been getting up, changing my clothes, having a cool drink and then laying a towel down over my wet sheets and going back to sleep with just the comforter over me. It's actually just a quilt. I can fall back to sleep most of the time, but it's still pretty disruptive. We have a ceiling fan in the bedroom which is always on.

How do other people sleep with them?

Green12 Enthusiast
Boy do i hate the fact that I'm reviving this thread, but I had to stop the Evening Primrose Oil and now my night sweats are back with an EVIL vengeance. so, I think for me, if the Evening Primrose Oil stopped them, they're probably hormonal. Ugh!

How do people cope? do you get up and shower? change your clothes?

Basically, I've been getting up, changing my clothes, having a cool drink and then laying a towel down over my wet sheets and going back to sleep with just the comforter over me. It's actually just a quilt. I can fall back to sleep most of the time, but it's still pretty disruptive. We have a ceiling fan in the bedroom which is always on.

How do other people sleep with them?

Oh no, I thought they were a thing of the past for you! So sorry Berneses.

Lauren M Explorer

OK forgive me for not reading the entire thread (I will though!) but YES I get terrible nightsweats! I'm only 24, but I think mine is hormonal (my hormones are all messed up). I've noticed also that if I eat something big before going to bed I get nightsweats. My nutrionist thought it might be my metabolism going into overdrive. Who knows.

How do I cope? Nothing original, just a lot of sheet washing, pajama washing/changing, etc. I hope mine will clear up; I got them off and on for a couple years, but the past few months they have been pretty much every night, no fail. I usually do sleep through them, as I take sleeping medication, but I wake up in the morning and I'm usually pretty well soaked.

Not much help, just letting you know you're not alone. I'll have to give that primrose oil a try.

- Lauren

PS - THANK YOU for reviving this thread, otherwise I wouldn't have ever found it!

Green12 Enthusiast
Boy do i hate the fact that I'm reviving this thread, but I had to stop the Evening Primrose Oil and now my night sweats are back with an EVIL vengeance. so, I think for me, if the Evening Primrose Oil stopped them, they're probably hormonal. Ugh!

How do people cope? do you get up and shower? change your clothes?

Basically, I've been getting up, changing my clothes, having a cool drink and then laying a towel down over my wet sheets and going back to sleep with just the comforter over me. It's actually just a quilt. I can fall back to sleep most of the time, but it's still pretty disruptive. We have a ceiling fan in the bedroom which is always on.

How do other people sleep with them?

I just thought of this Berneses,

I don't have as many night sweats as I used to. They used to be a frequent occurrence for me, now just occasional, but I started doing some detective work and they changed according to my diet. I noticed if I had more sugar and starches they would be worse. This made me think there was a blood sugar connection involved, along with the hormone cycle. As I cleared more and more out of my diet and up until more recently, I have noticed that in times of reactivity- or eating something that I am intolerant to/allergic to, the night sweats come back with a vengeance. If that makes sense?

Of course every body is different, but it made me think there is something else involved with my night sweats.

Guest BERNESES

I'm trying to figure out if there's a food connection too. I don't eat soy (except very small amounts occasionally), lactose doesn't effect them. So you found eating a lot before bed (try not to do this, but sometimes I do) and sugar and starches? What else are you allergic to or intolerant of? maybe that will help me if you don't mind sharing.

Green12 Enthusiast
I'm trying to figure out if there's a food connection too. I don't eat soy (except very small amounts occasionally), lactose doesn't effect them. So you found eating a lot before bed (try not to do this, but sometimes I do) and sugar and starches? What else are you allergic to or intolerant of? maybe that will help me if you don't mind sharing.

I don't do soy at all, that really gets my system all whacky. Grains are a problem for me, if I eat any I have to eat them in small amounts. I also try to stay away from dairy, I do have an occasional indulgence. If I have sugar in combination with grains and/or dairy this is what I notice affects if I have a night with sweating or not. I think it has a synergistic effect in my body.

In Rachel's thread "OMG.. I might be on to something" in the Post Diagnosis and Treatment category, it is interesting that several posters discuss having night sweats when they have eaten something that they are reacting to and then when they clear these things out of their diet, no night sweats. We have figured the commonality is MSG and/or corn derivatives and that it seems like a reaction and the body trying to "sweat" it out.

Again, like I said, everybody is different, and I am sure night sweats can come from all different sources, but it was an interesting connection.

dionnek Enthusiast

wow, this is a lot of information! I've been trying to get rid of these night sweats for years to no avail! I'm thinking the gluten-free diet might do it, or maybe I'll try evening primrose if that doesn't work. Anyway, the way I "cope" is to just take off my soaking wet pjs, turn on the ceiling fan, and try to go back to sleep on a wet bed, then change the sheets in the morning (my husband would not like it if I woke him up everynight to change the sheets!) :D

Guest BERNESES

Thanks julie- I'm going to sit down with my food journal and see if I can find any patterns. I hate MSG! Evil stuff.

NSG Newbie

At 42 - I am dealing with hot flashes during the day - I have always been hot at night - but never had night sweats. Thought it was hormonal, but I could be wrong... I also avoid soy and can not have HRT - the hormones cause severe migraines.

Interesting about the mold thing - we just moved into a new townhouse and our old apartment had a bad mold problem - I have slept alot better since we moved and my sinus infections have cleared up.

By teenager on the other hand has had problems with night sweats since she was a baby - I never thought to consider that she had cheated on her gluten-free diet... Something else to keep an eye on...

Good luck with everything!

Green12 Enthusiast
Thanks julie- I'm going to sit down with my food journal and see if I can find any patterns. I hate MSG! Evil stuff.

Sorry I can't be more specific and helpful Berneses! It might be a case where you just have to do some experimenting and food rotation to see if something you are eating is related to your night sweats. I know that isn't very fun, but if it would perhaps help it might be worth it.

Good luck with it all!

gfp Enthusiast
Please see your gyno, I started perimenopause at about your age and by 41 my periods had stopped. I was told it (the peri) was 'in my head', just like my IBS, fibromyalgia and incontinence. Everything has resolved in the 2 years since diagnosis and my gyno told me he sees signs my periods may start again. (at 48!) Stay gluten-free and talk to your doctor.

WOW....

Guest BERNESES

OK- This is REALLY weird. I sat down with my food journal last night and casually went through it and it looks like peanut butter might be the culprit???? I need to do a more methodical chart or something but how weird is that??

jerseyangel Proficient
OK- This is REALLY weird. I sat down with my food journal last night and casually went through it and it looks like peanut butter might be the culprit???? I need to do a more methodical chart or something but how weird is that??

Well, peanut is a legume, as is soy. I don't know if there's a connection, but it is possible....something to think about, at least :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,076
    • Most Online (within 30 mins)
      7,748

    RichelleLee
    Newest Member
    RichelleLee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
    • Wheatwacked
      Hello @MHavoc, thank you for your question and welcome to the clinic. First, has the contstipation abated with the GFD? If your are pursuing further diagnostics you must continue to eat gluten. Each lab has their own reference range for their test, but they indicate an H for high.  Typically anything above 11 is considered positive. Mild chronic inflammation (gastritis) can interfere with intrinsic factor for B12 leading to low B12 causing low MCHC (anemia). So what is causing your gastritis?  A high tTG IgA level generally indicates potential gastrointestinal problems most commonly associated with celiac disease.  Although the biopsy is the Gold Standard for diagnosis, not finding damage in the biopsy does not rule out Celiac Disease. It means they did not find damage where they looked.  The small intestine is over 20 feet long. Many here have been blood positive and biopsy negative, it just delays the diagnosis until you have enough damage to find and fit their diagnostic profile. The Ttg-iga is not only sensitive (90%) but highly specific (98%) and won’t show positive until the damage is severe.  It is estimated that 40% of first degree relatives of diagnosed Celiacs have undiagnosed Celiac Disease, so your sister is a big risk factor in whether you have it. Are You Confused About Your Celiac Disease Lab Results?  This article explains it better and is quite readable. Celiac Disease can cause deficient vitamin D.  Low vitamin D compromises the immune system.  Any other symptoms? liver enzymes?  Recent cold or flue? Celiac Disease and the malabsorption it causes through vitamin and mineral deficiencies can elicit symptoms not usually associated with Celiac Disease. Case in point maybe your gastritis and anemia.  
    • MHavoc
      As with most of the people that come here, I have questions and need perspective/info from this wonderful community.  Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work.  One of things she wanted to test for is Celiac Disease due to my sister having celiac disease since a young child. Here are my test results: MCHC = 31.4 so considered slightly low TISSUE TRANSGLUTAMINASE AB, IGA = 78.8 H So with that result, I was scheduled for an endoscope for confirmation of celiac disease, but I am very confused with the results: Diagnosis 1. Duodenum, biopsy: -No pathologic alteration. 2. Stomach, biopsy: -Mild chronic inflammation with reactive epithelial change -H. pylori not identified on immunostained section. -No intestinal metaplasia or dysplasia I am now scheduled to meet with a GI Specialist from the Celiac team, but that won't be until after the New Year.  I would appreciate thoughts about the biopsy report to understand whether it confirms the celiac disease as was indicated by the blood test results. I have been gluten free for two weeks and it is a very difficult adjustment for me as an older 50+ person.
    • Vozzyv
      Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings. 
    • cristiana
      If your son eventually becomes very symptomatic, that in itself will help keep him on the diet.  I had a friend who was diagnosed roughly the same time as me and she used to tell me a lot that she could get away with eating certain gluten containing foods.  (Not a good thing to do, but she did all the same).  In time she was unable to tolerate them anymore,  and is now very strict with her diet.   The football situation with the candy:   here in the UK at least, a lot of mainstream chocolate bars and sweets don't actually contain gluten (Bounty Bar, Snickers, Cadbury's Whirl, Crunchie etc) and you may find that that is the case where you live.      
×
×
  • Create New...