Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction To Quinoa Flakes?


MartialArtist

Recommended Posts

MartialArtist Apprentice

I had discovered Quinoa Flakes on the breakfast cereal aisle of Whole Foods a little while back (like 2-3 months ago). When I followed the package directions, it was something like an oatmeal, though with a slightly different texture, so I was pretty pleased with it. I have made it with brown sugar every time (I like sweet oatmeal...) and sometimes mixed in small chunks of banana after cooking or small chunks of apple before cooking (so they get softer) with great tasting results!

But about a week and a half ago, I ate the banana version for breakfast with my cup coffee and about 20 minutes later felt like the coffee was burning a hole in my stomach-- it hurt like drinking a very strong cup on an empty stomach sometimes can. I was sick for about half a day, with gut cramps and general feelings of malaise. Never threw up and eventually it subsided and I went on with my day. At the time, I figured it was probably a sensitive stomach reaction to the coffee for some reason. Over the next week, I ate a variety of breakfasts, always with coffee (I like 2 cups over the course of the morning) with no problems. Then exactly one week after the first incident, I decided on quinoa flakes (banana version again) for breakfast again. Half an hour later, SAME symptoms and like before, it was over by about 1 pm. So either I'm reacting to the breakfast or to Friday mornings... :)

I can eat bananas alone, so I don't think it's that, and I can drink coffee every day with no regular problems (and I make it at home with the same proportions every day so it shouldn't vary in acidity or strength). It's a bummer that I have reacted this way to quinoa b/c even wheat didn't do that to be before (I'm a silent celiac except for anemia). Is it a good assumption that I would now react this way to regular quinoa (as opposed to flakes)? Not sure it's worth the painful hours to try it out, but... Anyone else had similar issues with quinoa ever?

Oh -- and it's the same original box (I've only ever bought the one box b/c it's just me eating it), so I don't think there's any issue with contamination since it didn't cause me problems earlier and no one else in my family even opens the box!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

It could be CC that built up in your system over time. Is it the Ancient grains quinoa? If you look up their site you can verify this, but I was having trouble with all quinoa products and I decided to see if there was a risk of CC from that company. If I remember correctly all of their products were safe except the flake which could possibly be CC'd because they are made at another facility that also processes gluten grains (although they did seem to have good cleaning practices).

So, that could be it, but it could be that you have a problem with quinoa in general - I found out that I do - it always gives me stomach aches very similar to what you describe. The only thing about that is that it didn't do it to you at first, so my first thought was that the flakes may have a very low amount of CC that you started reacting to after having it several times - it could take your gut a little while to get damaged enough to have pain after not having gluten for a while.

Also, I have heard of people who were silent celiacs having reactions after going off of gluten. Which is actually not as bad as you would think, because then at least you know you are damaging your body.

Well, I don't know if any of that helped you, but I thought I would share just in case it could. B)

Sarah

mushroom Proficient

Quinoa is one of the high-lectin grains. Gliadin in wheat is a lectin. There are lectins in corn and soy and peanuts. If you happen to be lectin sensitive you can react to any or all of these things. For me it is all, plus some others. So you might just consider that you have sensitized yourself to the quinoa lectin. Or it might be something else entirely.... that is the devil in the details of food sensitivities.

  • 8 years later...
DG369 Newbie

Hi,

I noticed that these posts are almost a decade old. Nevertheless, I ate Quinoa flakes from whole foods and felt like vomiting immediately. However, I couldn't vomit so, eating this sent me to the bathroom. At the same time, I eat red quinoa and white quinoa all the time.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748

    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.