Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intolerance Testing


India

Recommended Posts

India Contributor

Does anyone have any advice on food intolerance testing? Coeliac UK told me the tests are a waste of time and money but I know people on here have used them - were they helpful? As I don't live in the US, I'm not asking for recommendations of companies but I'd love to know whether you think they produce meaningful results.

Many thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

complete food allergy testing can be really expensive! some people were happy they did it- and others on here would suggest doing an elimination diet.

if you want to do a couple of inexpensive tests that COULD help u out a bit- google: SIBO & Fructose Malabsorption. if they ring true at all for u- i THINK your doctor can run a couple of breath tests and they wouldnt be as pricey as a huge allergen panel.

?? just a thought- maybe those 2 tests could have some answers for ya.

or also a candida test.

jackay Enthusiast

Does anyone have any advice on food intolerance testing? Coeliac UK told me the tests are a waste of time and money but I know people on here have used them - were they helpful? As I don't live in the US, I'm not asking for recommendations of companies but I'd love to know whether you think they produce meaningful results.

Many thanks :)

I had it done twice, about a year and a half apart. The first time I wasn't gluten free and gluten did not show up on that test. I now know I was gluten intolerant at that time. Anyway, avoiding all of the foods that showed intolerance didn't help. I went on a four day rotation diet with the foods that tested O.K.

When I had the test done 18 months later, I was eating gluten free. I tested intolerant to so many foods it was unbelievable. I eliminated all those foods along with everything that contained gluten and I didn't notice any difference.

I then went on an elimination diet and started out with just three foods for a while (chicken, olive oil and turnips. I gradually added more foods. This worked so much better for me than avoiding the foods I tested intolerant to.

So what I am saying is that I found the testing a waste of money. They are very expensive. Luckily, my insurance covered a good share of it.

India Contributor

Thanks for your replies. I hadn't been convinced by the testing people I spoke to and this confirms my suspicions.

I'm going for a SIBO test soon but my local hospital doesn't do a fructose intolerance test, so I need to find somewhere then persuade my doctor to refer me (I love our National Health Service but it can be difficult).

I hope to never go through an elimination diet again - I nearly lost my sanity as well as most of my body fat! Would a rotation diet be easier on the body?

alchemist Rookie

Thanks for your replies. I hadn't been convinced by the testing people I spoke to and this confirms my suspicions.

I'm going for a SIBO test soon but my local hospital doesn't do a fructose intolerance test, so I need to find somewhere then persuade my doctor to refer me (I love our National Health Service but it can be difficult).

I hope to never go through an elimination diet again - I nearly lost my sanity as well as most of my body fat! Would a rotation diet be easier on the body?

Hello India I have tried the Elisa ige food allergy test and the Al-meow:) igg test....both provide lovely charts as to which foods you have highly-moderately and low sensitivities to......they are almost worthless (in my case). I react to pretty much all of the foods that both tests say were safe for me to eat.The elimination diet previously mentioned is the way to go.Its funny actually if you dig around on the Al-Meow:) website there is an article that says that the value of this type of testing is very questionable as igg antibody measurements to food do not necessarily indicate a problem.

good luck

steve

India Contributor

Thanks Steve - I'm tickled to have a reply on this from an alchemist :) There seems to be pretty much a consensus on this, so I won't waste my money. Back to the food diary...

  • 2 weeks later...
Lisa79 Enthusiast

I am the same, suffer many intolerances, to be 100% honest I struggle to know exaclty which foods I am intolerant too, one day I might get away with pinching a few chips and other days I suffer terribly. Some days I could get away with a slice of cheese.

I also bet there are many foods which may be my problem and I just don't know it.

I used to have terrible pains after a Cajun Chicken Salad, turned out to be the small pinch of paprika...

Mash potatoes it could be the milk? as I can sometimes get away with a chip or a roast potato (only sometimes).

Elimination diets are so hard and just wish there was a simple test that could tell me exactly what foods dont agree with me.

I am reading a book at the moment called it could be allergy and it could be cured. Very interesting but some examples really show you could have an allergy/intolerance to something and have no idea.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to kim-d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Postponing seeking a diagnosis?

    2. - kim-d posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Postponing seeking a diagnosis?

    3. - Scott Adams replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Orgain Protein Powder

    4. - Scott Adams replied to Celiacandme's topic in Related Issues & Disorders
      1

      Perimenopause/menopause

    5. - Erain replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Orgain Protein Powder


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,110
    • Most Online (within 30 mins)
      7,748

    Merib
    Newest Member
    Merib
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost all food there have gluten so I was going very hungry. They do offer a gluten free menu with a report though. So I decided I should try getting a diagnosis if I can, especially after reading how it was much harder to do gluten challenge after quitting gluten for a while. I was able to get an appointment for next week, and started eating around 150gr of bread per day to be sure.  First 24 hours I didn't feel any worse so I was starting to doubt myself, but then bloating hit hard. It wasn't anything unbearable, but the problem is I have finals soon and I'm now realizing this is a really bad time to do this. I can't begin studying from pain distracting me. I'm thinking of cancelling the appointment and eat low gluten until exams are over.  I worry about one thing. Before I went low gluten, I was eating a lot of bread already for over a month, which is what clued me into gluten, and I only went low gluten for around 10 days before going high gluten again. I wasn't that worried about a false negative. But if I eat low gluten until my exams are over, it means over a month of low gluten, and I would need a lot more time eating high gluten later to get a correct result.  I'm not sure which one should I do, bear it until my appointment or cancel it and try again when I'm free later. And If I choose the second one, how long would I need to do the gluten challenge for a blood test?
    • Scott Adams
      I've not tried the product, but it is definitely possible that it contains barley and wheat grass, and is gluten-free. I would imagine that they are regularly testing their product for gluten content, since they are making the claim that their product is gluten-free. I personally avoid these ingredients, but some celiacs do consume them without issues. PS - my daughter uses this product regularly, and she is very sensitive and has DH as well. She does not have issues with it.
    • Scott Adams
      Welcome back! Many celiac patients navigating perimenopause or menopause consider estrogen therapy, and there’s growing research highlighting its potential benefits. Estrogen has been shown to reduce certain health risks associated with menopause, such as cardiovascular disease, particularly in post-menopausal women. This is significant since studies suggest that women with celiac disease may already face an elevated risk of heart disease due to chronic inflammation or malabsorption issues prior to diagnosis. Estrogen therapy, whether through pills, patches, or other methods, can also help alleviate menopausal symptoms like hot flashes, mood swings, and bone loss, all of which can be exacerbated by nutrient deficiencies common in celiac patients before going gluten-free. Of course, the decision to use estrogen therapy is highly individual and depends on your health history, risk factors, and how well your body is responding to a gluten-free diet. If you're considering this route, it's a great idea to discuss it with your doctor. They can tailor a plan that aligns with your needs and monitor how the therapy affects your overall health. Hearing about others' experiences can also be helpful, so it's great you're reaching out to connect with others in the community!
    • Erain
      https://nationalceliac.org/celiac-disease-questions/do-wheat-grass-and-barley-grass-contain-gluten/ I find this helpful. I will update you on what the company says but most likely will choose one of their products without the wheat and barley grass. Overall, I think the other powders should be safe and I will try them.
×
×
  • Create New...