Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

50 Days Gluten-Free, But Problems Remain


aly25

Recommended Posts

aly25 Newbie

Hi, I am IgA deficient and exhibit symptoms of diarehha, fatigue, tension headaches, and mental fog. I have gone on a gluten-free diet prior to a biopsy and consultation with a GI and am now on day 50. Although I have noticed that my scent has changed (improved somewhat), and that my ability to breath through my nasal passage has ameloriated: I have not experienced the shock and awe of getting well. My bowel movements are still unsatisfactory, etc. I should note that my blood tests are normal, except that I am IgA deficient and have a high IgG count. A colonoscopy was negative for Crohn's, and I do not have blood in my stools. I am planning to continue the gluten-free diet for months to come, yet I am wondering what timeline folks had prior to getting better, or at least when was significant improvement noticed. I recognize that recovery proceeds on a case by case basis, but is there an average time? For example, did folks go two months without noticing much of a change and then improvement was noted by months three and four?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Have you eliminated dairy? We often need to until we heal. What are you eating? It is best to go with whole naturally gluten free foods at first. It can take some time to heal but gut issues should be improving at least a bit by now. Have you made sure your home is as gluten safe as possible? New toaster, replacing colander, not sharing condiments etc? Have you checked all OTC drugs, scripts and supplements? If not check those with the maker. Also since you are still symptomatic be sure to check your shampoos, toiletries, makeup etc.

starrytrekchic Apprentice

I had some immediate relief in symptoms--then it was back and forth for several months, gradually trending for better. New symptoms cropped up, though--around the 2-3 months mark I was exhausted for several weeks. I'd say it took about 4 months for things to really straighten out--but things were noticeably better from the very beginning.

Everyone's healing rate is different though. If I were you, I'd keep at it for six months, at least.

aly25 Newbie

Hi, thanks for the responses. Raven I will make a thorough checking of everything. Starry, I shall certain pursue gluten-free for six months or more, but was hoping to find inspiration here regarding the timeline thus far. I guess I shall require patience.

ravenwoodglass Mentor

Hi, thanks for the responses. Raven I will make a thorough checking of everything. Starry, I shall certain pursue gluten-free for six months or more, but was hoping to find inspiration here regarding the timeline thus far. I guess I shall require patience.

The timeline can vary from person to person. It can also vary system by system. Some will see gut relief fairly soon but take longer to have neuro or bone and joint issues resolve. My migraines were gone within a week and gut symptoms soon after but the other issues took much longer to resolve. Some have gut issues stop almost immediately and with others it can take a month or two. Be as strict as you can and try to avoid the most common cointolerances like the dairy and soy if you are not already.

Hope you heal soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,148
    • Most Online (within 30 mins)
      7,748

    LCookies
    Newest Member
    LCookies
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Wheatwacked
      Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine.  Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine.  A sandwich and glass of milk supplied 300 mcg a day.  In the 70's they stopped using iodine as a conditioner in the US.  Then everyone got scared of milk.  The US intake of iodine dropped 50% since 1974.  Prescriptions of Thyroxine for hypothyroid disease doubled in the same period.  I tried using iodized salt and seaweed and took an expensive thyroid supplement but it wasn't enough.  In 2014 I had a sebaceous cyst (third eye blind).  The previous 6 cysts on my face had all drained and healed with no problem back in the 1990,s.  One on my check had sugically removed. They are genetic from my mom and my brother and son also get them in the same places.  This one I did not have surgery for because I wanted a bellweather to moniter healing.  It did not start healing until I started until 10 years when I started taking 600 mcg of Liquid Iodine a year ago Nov 2023. Lot's of comment about how it was offputting and maybe cancer, it was deep, down to the bone, but I can be obstenant.  Now it is scabbing over and healing normally.  Vision is returning to my right eye (glucoma), musle tone in my chest was the first sign of improvement.  For healing, iodine breaks down defective and aging cells to make room for new growth. I take Liquid Iodine drops from Pipingrock.com but there is also Strong Iodine and Lugols Solution. 50 mcg/drop a dropper full is 12 drops, 600 mcg.,  usually I put it in a can of Red Bull, My brother, son and his family also started taking it. https://www.pipingrock.com/iodine/liquid-iodine-2-fl-oz-59-ml-dropper-bottle-14690 390 drops for $8.  They ship internationally if you can't find it locally. It the US the Safe Tolerable Upper Limit is 1000 mcg a day.  In Japan it is 3000 mcg a day.  The Japanese traditional diet has 50% less breast cancer, nicer hair, skin and nails, and in the 80's the US educational system dropped down comared to the rest of the world while Japanese kids moved up to the top.  Low iodine affects brain fog. According to most education rankings, Japan generally has a higher education rating than the United States, with Japan often ranking within the top 10 globally while the US usually places slightly lower.  In the 1960s, the United States was near the top of the world for education, especially for young people.  About why iodine was removed from medicint: The Wolff-Chaikoff Effect: Crying Wolf? About why over 40% of us are vitamin D deficient: Mayo Proceedings,  Vitamin D Is Not as Toxic as Was Once Thought:  
    • trents
      Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
    • Bebee
      Thank you for your input!  I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns.  I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
    • trents
×
×
  • Create New...