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Celiac & Lymphoma ?

cassP

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cassP Contributor
cassP
Posted

hey- i just saw this via twitter:

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ive heard Celiac linked with Lymphoma before- but i wanted to know if any of you knowledgeable members or Moderaters could clarify for me: is it only linked to a "slight increased risk" of Intestinal Lymphoma .. or ALL Lymphomas??

im curious, because i want my Dad to get tested for Celiac. i know he has at least has 1 DQ8 & skin disorders & anxiety, plus he had nonHodgekins Lymphoma... but no gut problems or intestinal cancer.

always love to hear the input on here :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes your father should be tested. If you are diagnosed all your first degree relatives need to be tested. Your brothers and sisters and both Mother and Father and your children if you have them, even if they seem to be symptom free.

cassP Contributor
cassP
Posted
  • Author

i havent been officially diagnosed because my health insurance wouldn't cover the endoscopy.

i personally, after looking over ALL my tests & symptoms & genes- think it would be absolutely stupid to go back on a diet with gluten.

plus, i think i have my first experience with a patch of DH on my stomach.

i'm going to see my GI tomorrow- to go over all this. i do NOT need a diagnosis now to eat right- BUT i would love for my family to be screened-> i want them around as long as possible!

Skylark Collaborator
Skylark
Posted

Depends on the type of non-Hodgkins lymphoma. Celiac predisposes for T-cell lymphomas, particularly EATL (enteropathy-associated T-cell lymphoma). If it's a B-cell type it's not likely to do with celiac.

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If you have DH, your family should definitely be screened.

rtc Apprentice
rtc
Posted

Depends on the type of non-Hodgkins lymphoma. Celiac predisposes for T-cell lymphomas, particularly EATL (enteropathy-associated T-cell lymphoma). If it's a B-cell type it's not likely to do with celiac.

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If you have DH, your family should definitely be screened.

rtc Apprentice
rtc
Posted

Spoke with my internist about this today.

Please take this as "one doctor's opinion"

but this guy is good and has my trust...

he said that indeed the "slight increased risk" of Intestinal

Lymphoma for us was 4 or 5 times greater than the general population

but...this was considered to be a rare type of cancer so you

are talking about 4 or 5 times 0.something to begin with,

not 4 or 5 times 2 or 3 or 4,etc.

He said that our increased rate is about or very near the

average population for other types,in other words.

Also...there is no screening as such for this.I asked

if a blood chemistry every six months would be OK;

he said "if you want to,but we are aware of this and

find the annual check to be OK".

Hope this helps...sort of.

cassP Contributor
cassP
Posted
  • Author

just saw my GI today. he said "the medical community wants the positive blood test AND biopsy", but that he's confident with all my tests & symptoms that i have Celiac. i told him i would never go back on gluten for a biopsy, but just wanted my family to get screened.

my dad is STILL brushing it off :( ( i single him out- cause he's the only one in the family who is ingesting enough to actually have an accurate blood panel-> plus both his parents had heart disease & dementia)

anyways, i asked him about the Lymphoma too- he said the increased risk is for Intestinal Lymphoma. he also said that you could make the arguement that untreated Celiac causes systemic inflammation- which could raise your risk of all lymphomas... he spent a lot of time with me and was very openminded- it was nice for a change

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ravenwoodglass Mentor
ravenwoodglass
Posted

anyways, i asked him about the Lymphoma too- he said the increased risk is for Intestinal Lymphoma. he also said that you could make the arguement that untreated Celiac causes systemic inflammation- which could raise your risk of all lymphomas... he spent a lot of time with me and was very openminded- it was nice for a change

I agree with this. The systemic inflammation could also increase the risk for a lot of other things also including heart disease and arthritis to name just a couple.

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