Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coast To Coast For Celiac


Guest BERNESES

Recommended Posts

Guest BERNESES

This may have already been posted, but even if it was, it can't hurt to post it again. A woman from Portland Maine is in the process of riding from California back to the East Coast to raise awareness about Celiac's. Portland is about an hour north of me (I'm in Portsmouth NH). You can email her to support her on her trip (she was recently injured in a hit and run in Arkansas).

Go Regina!

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

I posted it here: Open Original Shared Link , but it's still good to post here...obviously, mine wasn't as conspicuous. :lol:

cdford Contributor

Is this the same one that got hit by a truck last week and is trying to figure out how to finish the ride? I saw the article and have been praying for her ever since.

jenvan Collaborator

What an inspiring woman!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,371
    • Most Online (within 30 mins)
      7,748

    Joanne Walko
    Newest Member
    Joanne Walko
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, the TTG-IGG was positive but not the TTG-IGA.
    • Scott Adams
      For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot.  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.
    • Scott Adams
      This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well.  If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
    • Scott Adams
      Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...