Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Frustration


ilookthetype

Recommended Posts

ilookthetype Rookie

I moved out of my house 4 months ago, and realized I was gluten intolerant. Living with my roommate it fine, she has her food, I have my food, if we both have pasta I drain my rice noodles first, I make grilled cheese first, she checks EVERYTHING she buys that's communal food for Gluten. She a dream to live with :D .

I went home for the long weekend and was sick the entire time. We went out to eat and I knew we had gluten-free snacks in the car so I was going to eat on the way over and my mom forbid it :( (I'm 22 on the 12th) and so I went in and my mom ordered me food with no gluten in it (I wasn't going to eat) I ate it because it was my first time home, my grandfather was there and very concerned I wasn't eating. I got sick, small town PA diners aren't awesome at preventing CC :( . So i was sick from that.

My sister's are both also GI, my eldest figured it out first, and Patience just figured it out, they're both way less affected than I am, case in point: My family made pizza, gluten free (made it first) and then wheat. My sister's liked the toppings on the gluten pizza better so they ate the toppings off :o . And didn't get sick. My sister had eaten some of my dad's soup which had crackers in it and was fine :huh: . Now, either they aren't actually GI or they aren't affected by CC. My mom didn't understand why I was upset to see them eating toppings off of gluten pizza. If I did that I'd be locked in the bathroom for hours.

How do I help my parents realize that I am way more sensitive that my sisters. Keep in my mind, my mother said (at the dinner table with everyone) that I never complained of being sick and she never would have guessed that I was GI, and she would have thought Patience to be and she's not nearly as sensitive as me :blink:. Patience was in theater growing up, she's a bit of a drama queen. I am more reserved and just assumed that either my body was weird or it was normal to be sick after EVERY meal. Either way, I didn't want to talk to my mom about how I constantly rocked the Big D. Either way, I was pissed and a little offended and hurt that my mom pretty much made it sound like I was jumping on a fad. :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

I'm pretty point blank with people and if I have to go into gory detail about D and vomiting to get them to understand and not make me sick, then I do.

ravenwoodglass Mentor

I know you don't want to go into gory details with your Mom but if you want her to understand you really need to. If you can't bring it up in person write her a long letter explaining that although you didn't complain you were suffering. You may find her to be more understanding of your situation if you open up about it a bit.

jackay Enthusiast

My sister's are both also GI, my eldest figured it out first, and Patience just figured it out, they're both way less affected than I am, case in point: My family made pizza, gluten free (made it first) and then wheat. My sister's liked the toppings on the gluten pizza better so they ate the toppings off :o . And didn't get sick. My sister had eaten some of my dad's soup which had crackers in it and was fine :huh: . Now, either they aren't actually GI or they aren't affected by CC. My mom didn't understand why I was upset to see them eating toppings off of gluten pizza. If I did that I'd be locked in the bathroom for hours.

How do I help my parents realize that I am way more sensitive that my sisters. Keep in my mind, my mother said (at the dinner table with everyone) that I never complained of being sick and she never would have guessed that I was GI, and she would have thought Patience to be and she's not nearly as sensitive as me :blink:. Patience was in theater growing up, she's a bit of a drama queen. I am more reserved and just assumed that either my body was weird or it was normal to be sick after EVERY meal. Either way, I didn't want to talk to my mom about how I constantly rocked the Big D. Either way, I was pissed and a little offended and hurt that my mom pretty much made it sound like I was jumping on a fad. :angry:

Even though your sisters don't have GI issues from CC, they shouldn't be risking it. They may be doing other damage that won't be noticable until later. Of course, they are the ones who have to make that decision.

Just stick to your guns and eat what you need to for your well being. It does get easier after a while.

I seldom eat at a restaurant. I always take my own meals when I go to someone else's house or eat before I go. When we go away for the weekend, I always make my meals ahead of time. It was a bit trickier when we went to Alaska to visit my daughter for 10 days. She found a small stainless steel pan that she had packed away and that is what I used for my cooking. My husband even make me separate kraut and ribs in the little pan. It was nice to be able to eat what the others ate some of the time, even if it was cooked separately.

My daughter made gluten free brownies that I couldn't eat because of CC issues with her ingredients and utensils. She sure enjoyed them and it didn't bother me watching her eat them. She doesn't get the CC issue but it is hard to grasp when you don't live with it daily. I'm so fortunate that my husband finally gets it. He thought I was way off board with it until I started feeling better and then he realized that it was really an issue.

I am fortunate that most of my extended family has been supportive of my eating habits. If they don't understand it, at least they don't comment on it. I think they feel off the hook that they don't have to cater to my intolerances. I know they'd feel terrible if I got sick from CC with their cooking.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,918
    • Most Online (within 30 mins)
      7,748

    Lisa Chant
    Newest Member
    Lisa Chant
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle.  Celiac Disease causes multiple vitamin and mineral deficiencies.   Itchy palms can be a symptom of iodine deficiency.  Low iodine levels can lead to dry, flaky skin on the hands and  body due to the disruption of normal skin cell regeneration caused by a lack of thyroid hormone production, which relies on iodine. Other symptoms are   fatigue, weight gain, sensitivity to cold. I take between 600 and 1200 mcg a day Liquid Iodine. It has improved my healing.  Strong Iodine and Lugols Solution are other options.  Start low and build up over time. Between 1970 and 1988 the dietary intake of Americans dropped by 50%. Perhaps this is why some can tolerate the bread in Europe?
    • Lkg5
      Be cautious with vitamin D if you are female and post-menopausal.  I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D.  Finally relief!  I hope to keep my D level below 50 nm/l now.
    • knitty kitty
      Do you eat processed gluten free foods?  
    • Scott Adams
      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
×
×
  • Create New...