Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Minute Travel W/ Lots Of Unknowns?

Merika

Recommended Posts

Merika Contributor
Merika
Posted

Hi,

So my dh is going to San Fran for a film fest in which he stars in one of the films! He's asked if I want to go with....theoretically, of course I do!!!

Plane reservations have to be made pronto, it's just a week away. He has no place to stay - might stay last minute with other people from the film, might stay in a hotel (last minute in SF? $$$). He's not the best organizer, and could care less if the hotel has kitchen, etc.

Being celiac and vegetarian it is basically impossible to eat out. (I'm working on not being veggie anymore, but not enough to survive). We'd go via plane in the afternoon, premiere at 10pm, and leave via plane in the morning.

I am exhausted and stressed just thinking about the schedule! Nevermind, what do I pack to eat? I'd have to bring every meal with, but dh would have nothing and need to go out. It'd be a huge cooler for just an overnight, and since I don't know where we're staying, and we'd possibly be taking BART public transportation, everything would need to be compact, and refrigeration might not be possible.

Also, I'm pretty in a rut about what I eat, especially for breakfast, which I cook at home... don't know if that'd be possible in SF. If I don't eat predictable things, it can freak me out if I need to go somewhere after (like on a plane which I already hate!) and then, you know, the stress triggers all sorts of nasty intestinal feelings...

And have I mentioned I'm somewhat agoraphobic? Sometimes I'm almost fine, and sometimes just the thought of leaving the house freaks me out. I never plan anything in advance for this reason. Having a plane ticket for a particular time, and the premiere at a particular time, oh I'm already barely breathing just thinking about it :blink:

So help me out fellow celiacs, what can I do????

Some days I have energy, some I have none and feel like cr&p, and and and....

Merika

gluten-free since Feb 2004

12 years wicked symptoms before diagnosis

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

You can eat salads at restaurants and bring your own dressing.

Check to see if the local support group has a list of gluten free friendly restaurants.

Take along your gluten free snacks and don't forget the local markets.

Seems like a trip of a lifetime!

Good luck.

Laura

tarnalberry Community Regular
tarnalberry
Posted
Being celiac and vegetarian it is basically impossible to eat out. (I'm working on not being veggie anymore, but not enough to survive). We'd go via plane in the afternoon, premiere at 10pm, and leave via plane in the morning.

In SF, vegetarian will be simple. Heck, I'm sure you'll find ethnic vegan places too. gluten-free shouldn't be too hard either, and there are plenty of grocery stores that can support your needs as well.

CA is the mecca of funky foods! :-)

Guest Eloisa
Guest Eloisa
Posted

Open Original Shared Link

Here's a website I used when I went to San Francisco and it really helps. Just print up what you need and take it with you on your trip. Hope this helps you.

Merika Contributor
Merika
Posted
  • Author

Eloisa,

Thanks for the great link! Everyone here's been sooo supportive. :)

Unfortunately, I won't have time to get to a health food store. I don't know San Fran well at all (have spent more time in Oakland/Berkeley) and will compare the places listed on the site with a map. I wish I were just gluten-free. I also don't eat meat, and can't eat soy, eggs, vinegar, indian spices (and they're sooo tasty), anything hot spicy, dairy (except harder cheeses), and miriad other things. I am one of those people who did the York allergy test and came back positive for basically everything except tomatoes. (Go figure, I love tomatoes). I don't eat many salads as I don't digest raw foods well.

I am looking forward to the day I can actually digest meat, because then I can go into a restaurant and order plain steamed fish/meat, plain rice (also somewhat allergic to but I eat it anyway) and a plain steamed vegetable. Sounds delicious, eh? But at least it's a balanced meal.

Tiffany, you are right about SF and CA :P I live in Los Angeles :) SF has some of the most delicious food on the planet (speaking from pre-gluten-free days) and eating veggie there IS easy. Eating veggie without soy or Indian flavors though is I think darn near impossible there. Am I wrong? Please tell me I'm wrong!

Does anyone know places in the Castro district to eat, ones that might be able to make plain beans and rice and veggies?

Merika

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,392
    • Most Online (within 30 mins)
      7,748
    laurenM
    Newest Member
    laurenM
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • James47
      Alcohol

      By James47 · Posted

      So as some of you already know I was 47 turning 48 before my diagnosis so a lot and a lot of internal damage. I no longer obviously drink beer unless gluten-free variants of it but does anyone else really struggle when just drink any sorts of alcohol now. I'm really thinking going tea total and avoiding it completely 
    • NavyMom
      I’m terrified it’s too late for me😭

      By NavyMom · Posted

      Hi CathiJean, Wipe those tears my friend.  Finding out that you have celiac just gave you the cheat code on how to start feeling better!  It may feel like a loss right now, but honestly within 6 months you will start feeling better.  Within a year you will look back and wonder how in the world did I survive feeling like that for what feels like a lifetime?  You mentioned 15 years, that's about how long I have been really ill as well.  I had told every doctor I saw that I kept getting sick, infections, hair loss, joint pain, etc. and nobody would listen to me until I turned 45.  I went in for a colonoscopy and the doc says how often do you have bowel movements and I said usually between 10-15 times a day.  Suddenly I had someone actually listen to me and the testing began.  What I can tell you is use this forum, talk to peers, read everything you can about how to gluten-free your kitchen, encourage your family to participate in your journey (trust me they love you enough to make the effort), how to order food in restaurants, and how to avoid cross contamination.  Accept that you will make mistakes and allow yourself grace as you implement your new normal and have a clear understanding that going gluten free will begin healing your body in ways that you will not even begin to understand until you actually do it.  So, have faith that the nutrient deficiencies that you are probably experiencing right now can be corrected and you are on a bright path to feeling SO much better.  Think about how incredible your mom journey is about to become as you begin to feel better!!  Your kids are going to be amazed at your energy levels, ability to play and go do stuff...you are leveling up knowing that you have Celiac.  Knowing gives you power my friend, harness it and have gratitude that it was discovered...even if the docs missed it - you know now and keep moving forward.  You got this!! 
    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
×
×
  • Create New...