Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diabetic


shadowedsensei

Recommended Posts

shadowedsensei Newbie

Greetings to the Forum,

I'm hoping that someone out there can help me. I am the resident manager for an adult family home in western Washington state. Very recently my home received a new resident. She is a brittle diabetic (Type 1)and received a diagnosis of Celiac disease two years ago. This is my conundrum-- I can find foods that meet the gluten free diet and I can find foods that meet the diabetic diet... but I can't find foods that are BOTH. What I need is a supplier of sugar free, gluten free food stuffs! Can anyone out there help me?

ShadowedSensei


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

One of our moderators is a Type 1 diabetic with celiac. If he doesn't find this thread, you might PM him. His username is psawyer.

Remember that vegetables, nuts, beans, cheeses and meats are all naturally gluten-free and suitable for diabetics.

sb2178 Enthusiast

Small amounts of fruits and whole grains like kasha, quinoa, and millet are also acceptable when eaten with fat and protein. Tofu, eggs and dairy are also options. If you're on a budget, seeds like sunflower seeds are generally cheaper than nuts. There are a few cookbooks that address the issues if you hav eto budget to get one or even just request it from a local library.

Substitutes like sandwich bread are probably not going to be a great way to go.

psawyer Proficient

As Skylark mentioned, I am a type 1 who also has celiac disease. The two autoimmune conditions correlate, although we don't understand why. If you have either one, you are more likely to have the other. Type 1 diabetes is pretty easy to diagnose, and it has been suggested that all type 1 diabetics should be automatically screened for celiac.

Both require diet restrictions, but you must understand this: In the event of a conflict, the celiac rules must prevail over the diabetic rules. A bit of extra sugar will be gone within a few hours. The intestinal damage from some gluten can last for several WEEKS.

Many foods suitable for a diabetic diet are naturally gluten-free. Meats and vegetables are gluten-free, unless gluten is added in the preparation. If dairy is tolerated, milk and cheese are gluten-free. Plain fruit is gluten-free, although quantities have to be monitored due to sugar content.

Most of the high-sugar gluten-free products are substitutes for baked products which would be limited on a diabetic diet in any case.

Much also depends on they types of insulin being used. I use Lantus as my basal insulin, taking one injection each night before bed. My short term insulin is Humalog. It is taken on an as-needed basis, testing before meals and calculating the amount needed for the content of that particular meal. Other insulin types may allow less flexibility.

That is a start. I am sure you will have more questions, which I will be happy to tryu to answer.

Oh, and welcome to our board. :)

shadowedsensei Newbie

Thank you so much for your prompt replies! This resident presents a particular challenge because of her history... she has been non compliant on diet since she was diagnosed as a diabetic as a child. This has resulted in severe health issues including the administration of a feeding tube to help regulate her sugar levels during the sleep hours. She was released to our home after a year long hospitalization and the insertion of a feeding tube to help regulate her blood sugar levels. She has developed gastroparesis along with the Celiac disease.

I am in charge of all her dietary requirements in an effort to level out her sugar levels and minimize the damage that has been done to her body. Everything that is prepared for her is done in a sterilized kitchen, using utensils that have never been used to prepare other foods. We have made certain that the feeding supplement that she receives via the tube is gluten free (Glucerna). She gets regular meals during the day along with snacks at night. Everything that has been bought for her is gluten free (I spent hours grocery shopping before she came home.)

Her primary insulin is detemir, a long acting insulin that she receives twice daily, morning and night. She has PRN insulin, Novalog, that is used as needed during the course of a day.

In order to help her remain compliant, I'm trying to find substitutes for her favorite snack foods. (She won't eat fruit or nuts but wants cookies, candies and cakes. And state law is that I have to let her eat them). So I'm trying to find either pre-made items or even mixes that are low sugar or sugar free and still meet the gluten free requirement. Currently if she's given something as simple as one single gluten free cookie, her sugar will skyrocket into the 600 range.

missy'smom Collaborator

Here's a link that might be of interest.

Open Original Shared Link

psawyer Proficient

If she is still non-compliant with the diabetic diet, I would not hold out much hope of her keeping to the gluten-free diet. Unlike the diabetic diet, where an occasional indulgence can be overlooked, for the gluten-free diet to work, adherence must be complete.

Sigh. You can lead a horse to water.. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Carb-one looks really helpful. I found another place with gluten-free, diabetic mixes.

Open Original Shared Link

You might also use one of the gluten-free baking mixes like Arrowhead or Bob's Red Mill with Splenda, but if she's really brittle I don't know that they would work.

Open Original Shared Link

The Bob's might have a lower carb load because it's garbanzo flour but not everyone likes the flavor.

Open Original Shared Link

Good luck teaching her to stay compliant - I hope you can make a difference for her.

Jestgar Rising Star

I am in charge of all her dietary requirements in an effort to level out her sugar levels and minimize the damage that has been done to her body.

(She won't eat fruit or nuts but wants cookies, candies and cakes. And state law is that I have to let her eat them).

:blink: If she requested arsenic laced foods would state law require you to give them to her? At what point is food treated as a medical commodity and not a desired one? If she's been placed in a center to keep her healthy why aren't you allowed to keep her healthy? Sounds like a very screwed up system.

missy'smom Collaborator

You have a right to feel the way you do Jestgar. It is a system with pitfalls. God bless shadowedsensei for caring and trying. I have run into those same pitfalls with a relative in a care facility. They are not getting the medical care they should because apparently they are allowed to cancel appointments and nobody can force them to go. :(

shadowedsensei Newbie

Actually Jestgar, you raised an interesting point. IF she were to request such an item that falls under a category known as "self endangerment" and I'm legally bound to refuse to provide such a thing. Law requires me, at that point, to contact the police and Crisis Management to have her evaluated for mental disturbance. So it's a lot easier to handle such a request. When it comes to the "bad" foods that she wants, she has all the rights of anyone else to determine what she wants or doesn't want. Before my facility agreed to try to help her, we approached the CRU (complaint response unit-they handle resident rights and investigate abuse allegations) to find out exactly what we could and couldn't do. Legally we cannot restrict her diet in any fashion (that's abuse) but we can provide her with healthy alternatives to the unhealthy things to encourage her to remain compliant. So when she asks me for a cookie I can give her one that meets her dietary restrictions and everything is good, when she wants spaghetti I can give her gluten free... as long as it's the same food she requested. The only way we could "enforce" her dietary compliance would be if she had a guardian that was responsible for her... then the guardian would make all decisions regarding her food and care. It truly is a screwed up system.

Thanks for the sites, I'll check them out.

shadowedsensei Newbie

Hey just thought I'd post an update on this resident's progress. We're on week two of her residency and so far-drum roll please- she's stable! This is something that the hospital couldn't accomplish after a year! Her sugars are consistently between 110 and 140 and she's completely compliant on both diets! I also found a website that has "snack" items that she can eat and she loves them. For those of you who are interested check out www.thinkproducts.com it's gluten free and low to no sugar protein bars that really taste great! I just want to say thank you to everyone. Your help has been greatly appreciated!

missy'smom Collaborator

That's wonderful! Bless you for all your efforts for her benefit.

  • 2 weeks later...
Skylark Collaborator

I just saw this. Thanks for sharing such great news. You're a blessing to your client!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      Supplements for those Diagnosed with Celiac Disease

    2. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    3. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    4. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      Supplements for those Diagnosed with Celiac Disease

    5. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      yes i do take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.