Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Support In Washington?


SadiesMomma

Recommended Posts

SadiesMomma Apprentice

Hi there,

I am a mother to a 2 year old who may have celiac disease but may not as well. She has minor symptoms..... But I have celiac disease, my mother has celiac disease symptoms and stomach cancer, My brother also has stomach cancer but no celiac disease that he knows of, and my grandmother has celiac disease symptoms as well.... It runs only on my mothers side.

I dont speak with any of them much because they werent around when I was growing up at all till about a year and a half ago so its hard to discuss things like this to them since we arent too close.

Anyway, I have looked online but have had no luck finding a support group here in Washington. Does anyone know of any? I would love to be able to meet up with other people that have this disease so I can feel a little more normal and not so much of "that sick girl".

thanks guys!

-Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Here is what I found in your state: I hope it helps :)

Washington

Clinton - Resource:

Contact: Jennifer Shea, Dietetic Technician

6127 S Heather Dr.

Clinton, WA 98236

Tel: (360) 341-8990

Eastsound - Resource:

Contact: Priscilla Burr

P.O. Box 1477

Eastsound, WA 98245

Tel: (360) 376-3070

E-mail: paburr@pacificrim.net

Everett - Resource:

Contact: Karen Peterson

704 Waverly

Everett, WA 98201

Tel: (425) 252-9069

Port Angeles - Resource:

Contact: Joe Clemens

P.O. Box 3201

Port Angeles, WA 98362-0342

Tel: (360) 417-0307

Seattle - Support Group

Contact:

Gluten Intolerance Group of North America

15110 - 10 Ave SW, Suite A

Seattle WA 98166-1820

Tel: (206) 246-6652

Fax: 206-246-6531

E-mail: gig@gluten.net or gig@accessone.com

Tacoma - Support Group

Contact:

South Puget South Gluten Intolerance Group

15110 - 10 Ave SW, Suite A

Seattle WA 98166-1820

Tel: (206) 246-6652

Fax: 206-246-6531

E-mail: gig@gluten.net or gig@accessone.com

Tacoma - Support Group

Contact:

Tacoma Area Children's Group

15110 - 10 Ave SW, Suite A

Seattle WA 98166-1820

Tel: (206) 246-6652

Fax: 206-246-6531

E-mail: gig@gluten.net or gig@accessone.com

Yakima - Resource:

Contact: Reesa Zuber

Washington Middle School

510 S. 9th St.

Yakima, WA 98901

Tel: (509) 453-2738 or (509) 573-2307

E-mail: zuberrk@destiny.esd105.wednet.edu

SadiesMomma Apprentice

Holy Moly Stacie!!!!! :D

If I could I'd hug you!!! Actually one of the groups you found is in my city. Its on the other side of town but that is a lot better of a commute than to a large city (appx. 2 or 3 hours away). :blink:

thanks for being so helpful with everyone on here! It sincerly helps! :P

Guest jhmom

Heather, you are welcome but I cannot take all the credit, it was right here on this site :D (we need to all thank Scott for his time and research putting it all together)!!!

This website is full of so much wonderful information, I've been around a while so I knew right where to look for ya!!!! :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,712
    • Most Online (within 30 mins)
      7,748

    drwayneb
    Newest Member
    drwayneb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...