Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shouldn't Have Taken Communion This Morn


srall

Recommended Posts

srall Contributor

I've actually looked up old posts on this site to see how others deal with this issue. I'm still trying to decide. I'm Lutheran and the way our church does it is to dip a wafer in wine. So even if I provide gluten free wafers, there is still the cc issue with the wine. Not really sure how I'm going to handle it. I do know that my body can't take the wafer as my joints are aching and my stomach rumbling. Hopefully God will understand. Well...the pastor too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Perhaps your pastor would let you provide a small personal cup for the wine and use your gluten free host that should take care of the issue. Talk to the pastor about it. If not possible to do that then of course God will understand why you are not recieving communion.

srall Contributor

I was thinking that same solution. It's just another way this has impacted my life that I didn't really consider when I first stopped the gluten.

jeanne- Rookie

Hi srall,

Couldn't your pastor give you a gluten free host without dipping it in the wine first? I'm sure he would understand.

K8ling Enthusiast

just skip the wine. I am Catholic and skip the wine unless I am the first one drinking. Also, we have to use canon approved wafers but can you use gluten-free bread?

jackay Enthusiast

The church I attend will have a separate wine or grape juice glass for me. I am told I can bring whatever I want for the bread, even pretzels. However, I haven't done it yet because of cc issues. I can either bring my "host" ahead of time or bring it the day of the service.

How do I handle this? If someone else touches it, it can get cc because they are touching the wheat host. If I handle it myself, I can have cc issues after sitting in church for 45 minutes and touching the books that everyone else touches. (I do need to use the books to follow the service and the music.) And believe me, there are a lot of little ones eating gluten loaded snacks in church and then paging through the books.

I get cc issues too often the way it is so I need to hear from others how to handle this. I know a lot of you use gluten free hosts so there has to be a safe way to do it.

K8ling Enthusiast

THe catholics have something called a Pix which you put the wafer inside. It's like a little container. It keeps me from getting cc'd. When I get communion I just go to Fr. Fred who has mine (and knows it ahead of time) who hands me my pix. THen I wipe it off (because it's in the dish with all the wheat stuff) and take it. It's a lot of steps but I seem to have it under control. Maybe you can put it in a paper towel? Because I am Catholic there are canonical laws I have to stick to but maybe you can be more flexible?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

THe catholics have something called a Pix which you put the wafer inside. It's like a little container. It keeps me from getting cc'd. When I get communion I just go to Fr. Fred who has mine (and knows it ahead of time) who hands me my pix. THen I wipe it off (because it's in the dish with all the wheat stuff) and take it. It's a lot of steps but I seem to have it under control. Maybe you can put it in a paper towel? Because I am Catholic there are canonical laws I have to stick to but maybe you can be more flexible?

Does your church provide your wafer or do you provide it? If you provide it, do you bring it with you each time you have communion or do you store it in church?

Do you wipe down your Pix in front of the church or do you go back to your seat before you have your wafer?

The was told that my new church will work with me and whatever I come up with is acceptable.

Do you leave church to wash your hands before communion or use a liquid hand sanitizer such as Purell?

K8ling Enthusiast

The church ordered me a years worth of communion wafers. They provided them to me free of charge. THe pix I had to buy which was agitating because it was on backorder but once I got it, it was ok XD. Today I got my pix and took it back to my pew and wiped it down and then purell-ed my hands before taking it. I have done it up front occasionally, but only at evening masses or if it's not crowded. The woman next to me gave me an odd look and I said "Celiac Disease" and she nodded like she understood. I have been fussed at at other parishes because they were unfamiliar with Celiac disease, but mostly everyone understands.

It's kind of funny to watch me have to do all that one of my friends told me I looked like an OCD squirrel during communion HAHA.

jackay Enthusiast

The church ordered me a years worth of communion wafers. They provided them to me free of charge. THe pix I had to buy which was agitating because it was on backorder but once I got it, it was ok XD. Today I got my pix and took it back to my pew and wiped it down and then purell-ed my hands before taking it. I have done it up front occasionally, but only at evening masses or if it's not crowded. The woman next to me gave me an odd look and I said "Celiac Disease" and she nodded like she understood. I have been fussed at at other parishes because they were unfamiliar with Celiac disease, but mostly everyone understands.

It's kind of funny to watch me have to do all that one of my friends told me I looked like an OCD squirrel during communion HAHA.

K8ling

Thanks,

That helps a lot and sounds like a good approach for me.

mamaw Community Regular

I'm a Lutheran to.....our church recently received a new pastor who has family members that are celiac. Man, was I excited.Our old Pastor let me bring gluten-free bread or wafers ( I bought) & they were wrapped in foil & blessed at the service. It worked very well for awhile but then the pastor got careless & started laying my gluten-free on top of the reg. bread.So I mention that it can't happen. He wasn't very happy with me.

When intinction( dipping) occurred I got to be the very first.... but I really don't care for that method of communion, just not santitary with fingers & crumbs in the wine. Our church also offers wine or grape juice so we have a choice.

The new pastor is very careful & very understanding because he has seen what happens when someone gets glutened. Now I feel truly blessed!!!!

Please speak to your Pastor , explain in detail that the wafer or bread can't touch the reg wafer or bread.....I've been to many Lutheran churches & all have understood. Even as a visitor I always approached the Pastor or a member to direct me to the correct in charge person.

In my heart I don't believe God would want us to partake in communion & get ill from it. It is a worship to cleanse our souls & make us whole. Hope for our daily needs. Just my thought

blessings

mamaw

K8ling Enthusiast

I am so glad to help!

Googles Community Regular

My situation is different because we pass a plate, and I'm in the choir so we have our own plate since we are in the loft. My church provides the gluten-free bread. One day the pastor forgot to bring it and someone else ran out and got it. Mine is put in a ziplock bag and then I have someone open the bag for me and fold back the plastic so I can just grab it out. I hadn't thought of the problem of cc from the music/hymnals. Hopefully that wont happen.

cap6 Enthusiast

I have avoided the entire issue by not attending church since being diagnosed a few months ago - and I am not happy with myself about that at all. I just can't seem to resolve the issue and so am choosing the avoidance. Not a good choice. So.... I felt encouraged by reading all of your comments.

sandsurfgirl Collaborator

Well God certainly understands. But the pastor needs to understand and help you deal with it. In our church the juice is put in tiny little cups and you take a tiny cup as the tray is passed to you. If I forget to bring my own gluten free bread I just take the cup. But our communion is taken at our seat not up in front of every one so that makes it easier to be discreet.

i-geek Rookie

The church ordered me a years worth of communion wafers. They provided them to me free of charge. THe pix I had to buy which was agitating because it was on backorder but once I got it, it was ok XD. Today I got my pix and took it back to my pew and wiped it down and then purell-ed my hands before taking it. I have done it up front occasionally, but only at evening masses or if it's not crowded. The woman next to me gave me an odd look and I said "Celiac Disease" and she nodded like she understood. I have been fussed at at other parishes because they were unfamiliar with Celiac disease, but mostly everyone understands.

It's kind of funny to watch me have to do all that one of my friends told me I looked like an OCD squirrel during communion HAHA.

Thank you for explaining how this works. I've been receiving just the wine at my parish, since I'm lucky enough to be at a parish that consecrates enough wine for everyone. So far I haven't gotten sick doing this but maybe that's sheer dumb luck.

Our priest did offer to look into the low-gluten wafers when I approached him last winter but I decided for the time being I'd just receive the wine since I couldn't imagine how my wafers wouldn't get mixed up or cause a big hassle. I really like this idea and it would work beautifully. I think our priests would be totally fine with doing this as well.

K8ling Enthusiast

I'm glad I can help! It seems to work ok for me so far!

boysmom Explorer

I have avoided the entire issue by not attending church since being diagnosed a few months ago - and I am not happy with myself about that at all. I just can't seem to resolve the issue and so am choosing the avoidance. Not a good choice. So.... I felt encouraged by reading all of your comments.

I would encourage you to get back to church as soon as you're physically able. Celiac disease can be isolating if we allow it to, because so much of our social life centers around food. Times of stress are always challenging and that's when we need our church family all the more! I believe most churches would be understanding of your choice to prayerfully avoid communion until you (you and your church leaders) find a way to manage it that you are comfortable with. Please don't cheat yourself of the fellowship and encouragement available to you over this one aspect. I'm sure once they're aware of your concerns they'll help you find a way to work through or around it.

fran641 Contributor

I have avoided the entire issue by not attending church since being diagnosed a few months ago - and I am not happy with myself about that at all. I just can't seem to resolve the issue and so am choosing the avoidance. Not a good choice. So.... I felt encouraged by reading all of your comments.

I hope you'll go back to your worship Service soon. I buy my own hosts and the altar ladies take one out and put it on a small patten on the altar. When it comes my turn the priest just picks mine up and gives it to me. I do dip in the wine and haven't had any side effects of that. In August I had an intestinal biopsy, the first since I was diagnosed in Dec. 08 and there are no signs of celiac disease. No damaged villi......I must be doing something right. For me at least.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,574
    • Most Online (within 30 mins)
      7,748

    ArcRose
    Newest Member
    ArcRose
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you very much @trents! This is super helpful. The only time I wasn’t sick after my diagnosis was when I was ordering and eating certified gluten-free meals from a company. I did that for a few months right after being diagnosed and then I started to try to figure it out how to cool and eat gluten-free meals myself. I think I’m probably getting low levels of gluten exposure and maybe that’s what’s making me ill. Possibly other things also not helping the situation (like dairy). Anyway this gives me something to focus on to see if it helps. So thanks for that!
    • trents
      Welcome to the celiac.com, @Rejoicephd! 1. "Gluten Free" does not equate to "contains no gluten". According to FDA advertising regulations, it means it cannot contain more than 20ppm of gluten. This is a good standard for most in the celiac community but not good enough for those on the sensitive end of the spectrum. If you find the "Certified Gluten Free" symbol on a package that is even better, indicating that there is no more than 10ppm of gluten.  2. When you are choosing "gluten free" items from a restaurant, realize that it only means gluten is not an intentional ingredient. It does not rule out CC (Cross Contamination) caused by those cooking and preparing the food back in the kitchen who may be cooking it on the same surfaces or in the same pots/pans as they are gluten containing food items and handling it with the same utensils they are handling gluten-containing food. 3. About 8% of celiacs react to the protein avenin in oats as they do the protein gluten in wheat/barley/rye. In addition, some cultivars of oats actually contain the protein gluten. Many celiacs also react to the protein casein in dairy products as they do gluten or they are lactose intolerant. Eggs, soy and corn are also common "cross reactors" in the celiac community but oats and dairy are the most common.
    • Rejoicephd
      Hi everyone! I was diagnosed with celiac a year ago (they confirmed it on endoscopy following a positive TTG antibody and positive genetic test). I thought the gluten free diet thing wasn’t going to be that hard of an adjustment, but man was I wrong. I’m a year in and still having issues in terms of accidentally glutening myself and getting super sick (I’m starting to think I need to just bring my own food everywhere I go). And also even when I am eating foods that say they are gluten free, I’m still dealing with an upset stomach often. My GI doc said I should avoid dairy as well, and the internal medicine doc said my gut microbiome might be messed up from all of this. I’m just looking for some answers/ideas/tips on what additional things I can do to feel better. Do you all do avoid additional categories of foods beyond just gluten to help alleviate symptoms? Thanks! 
    • trents
      If your total IGA is low then the values for the other IGA tests cannot be trusted. They will be depressed. Celiacs who have the DQ2 gene typically are on the more sensitive side as opposed to those who only have the DQ8. But keep in mind that having either or both of those genes does not equate to having celiac disease as 40% of the general population have one or the other and only about 1% of the general population develops active celiac disease. Genetic typing can be used for ruling it out, however. Because of the low total IGA, symptoms and the possession of the DQ2 gene, my suggestion would be for you to go seriously gluten free for a few months and see if your symptoms improve. It may be the only way you can ascertain if you are gluten intolerant because of the low total IGA.
    • Cat M
      Ah ok, I just saw didn’t even post the DGP IgA at all. 😫 I started with itching and hives Jan 2024, been taking a ton of meds and on Xolair and even that is not providing total relief. The other primary symptoms: intermittent but worsening abdominal pain, diarrhea and bloating. This summer I am just exhausted. I uploaded my 23andMe data to genetic lifehacks and discovered quite a few variations, including DQ2, MTHFR, VDR and I have always had very low ferritin, vitamin D and B12. I still think that mast cell disease makes the most sense, but latest labs show I am barely in range for thiamine, zinc and vitamin A, so the GI stuff feels more important to figure out than the hives right now. I did SIBO testing this morning. TTG IGA <2   0-3 is negative TTG IGG  3   0-5 is neg DGP IGA 21    20-30 is weak positive DGP IGG 4    0-19 is negative Although total IGA is not resulted, there is a footnote stating it was low and the reason they ran IGG.  
×
×
  • Create New...