Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daycare Help


GFLife

Recommended Posts

GFLife Rookie

Hi Everyone!

Last month we found out that our 3.5 year old daughter had Celiac Disease. Things have been a whirlwind but we feel like we're slowly getting a handle on things at home.

I have one question for those of you with children in daycare centers. How did you educate the daycare center about the disease and the cross-contamination issues? We have provided the daycare center with printed information regarding Celiac Disease but I don't feel that cross-contamination was addressed properly in the information we gave the center.

If any of you have documents or websites that could assist with educating the daycare center, that would be greatly appreciated.

Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator

I took the literature in with me and not only gave them the info, but I walked thru it all with them. The preschool has a no nut policy at the school and I told them that it was as serious as a nut allergy. Even though there isn't an external reaction that they can see, there is a large and dangerous internal reaction and over time, this constant cc will eventually kill them. We went thru all the stations in the classroom. We went thru the supply book that they order from and I showed them what was OK and what had gluten. I told them that if they were going to allow playdough in the classroom, they would have to do it on days that he wasn't there. If they decided to make playdough, cupcakes, etc in the classroom and it wasn't gluten-free, they would have to remove him from the room and he wasn't allowed back into the room until every surface in the room was sanitized because it was no longer a safe environment for him. I talked to them about having one of the teachers standing at the sink after every meal and snack time to make sure every child scrubbed their hands so that crumbs wouldn't get taken back out on all the toys. Ultimately, they decided to make the classroom gluten-free (except food). All of the school supplies and activities were gluten-free products and a teacher stayed at the sink during meal times to wash hands. That alone knocked the cc episodes down to a minimum.

He's in kindergarten now, there's no issues anymore. Plus it was a private preschool and me threatening to withdraw his tuition was enough to make them step it up ;)

twohokies Newbie

We just went through this at the end of August with my 3yo. I haven't gotten overworried yet about cross-contamination, so have not stepped up the game like the previous poster. But they have looked into soap ingredients, pulled playdoh from her group and supplied gluten-free pasta & clay as alternatives so that her group can still participate in activities. Our teacher took the extra step to talk to me about lunches when they have pasta since the 3yo's apparently have a habit of playing with it and it can be thrown. I told her that so long as she's at the end of the table and someone is close by, watching her so she doesn't eat it, she should be fine; but she's also VERY cognisent of knowing that glueten hurts her tummy. My daughter is their first (and so far only) gluten-free child in their school.

When we went gluten free at the school, this is the email I sent; after having a very brief discussion of what was to come. We got the +bw, then waited for the biopsy before asking the school to go through all the extra steps. I wanted them to take me seriously and didn't want to waste their time in case it wasn't celiac disease. They treat her celiac disease just like they treat nut allergies in the school...........very seriously. They had a lot of questions at first on a handful of products, but we've been learning together :-). And I keep applesauce, pretzels and popscicles at school for her (pops for bday party treats).

Good luck and I hope this helps!

As I think you may be expecting, I am now ready to start down the path of eliminating all gluten from X's daily life. She will be a gluten-free kid :-) This includes foods as well as products that touch her skin and products that can be significantly airborne (think flour). She had her endoscopy today and the GI doctor has confirmed celiac disease (aka gluten allergy); we'll have the official biopsy results later next week. Below are my thoughts on how to start, where we go with this to make her life easier. But I will need a lot of help from you all to ensure we're getting X healed and keeping her from further allergic damage.

FOOD

  • I will have to begin providing ALL food for her, with the exception of water and milk (we are adding back in dairy to her diet). Do I need to provide the ice packs, etc. to keep things cold in a lunchbox or can you store things in a refrigerator?

  • Can I bring in larger sizes of her snacks - i.e. a bag of gluten-free pretzels or do I need to pack individually for every day?

  • If there are any upcoming birthday celebrations, could you please let me know so that I can bring her in her own cupcake or other treat. Can I bring in a few items to keep on hand in the school freezer in case there is something last minute?

  • She can not eat or touch any of the snacks in the lobby, but we should be able to control that :-)

  • Probably any other procedures you all have in place with the children with nut allergies should apply to X, though thankfully her allergy is not immediately life threatening. Her allergy damages the lining of her intestines causing stomach pain, loose bowels and most importantly the inability to absorb nutrients to help her grow and stay healthy.

  • Tables where she eats need to be well-cleaned to eliminate cross-contamination from gluten foods, though I'm sure this is no different from nut allergies.

SKIN PRODUCTS

  • I will have to bring in a list to look at the ingredients in the sunscreen, hand soap and any other products that can touch her skin. Once we go through everything, if you all swap out a product with a new type or a new manufacturer, I'll need to know so that we can check the new ingredients.

  • If necessary, I'll have to supply whatever it is as a replacement to what you have on hand.

ART SUPPLIES (this will probably be the most difficult)

  • She can not use, or be at, a table with playdoh :-(. This is going to be the absolute hardest part of this for her since she LOVES her playdoh. I understand that there is gluten-free play dough out there, Discount School Supply was mentioned, if it's necessary for you all to provide play doh in the art room while she's there. The table used with playdoh before her class should be cleaned well.

  • There are a handful of art supplies that have gluten, so I will have to work with you to go through the most used art supplies and also research a master list of the "bad" supplies

  • She can not make any macaroni or pasta projects and should not be at a table with them "just in case", unless you can provide gluten-free pasta for that project

  • She can not make any cereal projects and should not be at a table with them "just in case", unless you can provide gluten-free cereal for that project

  • She can not be in the room where flour is being used

  • She can not do paper mache or be in the room where the product for paper mache is.

  • Fingerpaint typically contains gluten.

  • Elmers & Crayola are very good about labeling their products as "wheat-free" and all but the playdoh should be gluten-free

  • If you need me to, I can do some research and provide some cereal, pasta, playdoh, etc. that is gluten-free and can be used in her classes

LINKS

I am still learning about all of this so apologize that a lot of this information may be disorganized and/or you may have a lot of questions. We will learn it together :-). And as I come across more, or updated, information that I think will be important in the school setting, I will let you know. I'm sorry for overwhelming you with so much.

Do you want to set up a time to sit down and go through things next week? Is that easiest or do you want to go through my questions and the school first and then meet?

Thanks

Beth03456 Newbie

We provide my child's preschool with homemade playdough now. We also are willing to substitute as much as possible for any pasta and cereal they use in art projects. We made up a sheet for all the teachers similar to the above list to let them know what is expected like washing everyone's hands after meals, not sharing food, no playdough, etc. I think it was helpful for them to have a list to go through.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.