Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daycare Help


GFLife

Recommended Posts

GFLife Rookie

Hi Everyone!

Last month we found out that our 3.5 year old daughter had Celiac Disease. Things have been a whirlwind but we feel like we're slowly getting a handle on things at home.

I have one question for those of you with children in daycare centers. How did you educate the daycare center about the disease and the cross-contamination issues? We have provided the daycare center with printed information regarding Celiac Disease but I don't feel that cross-contamination was addressed properly in the information we gave the center.

If any of you have documents or websites that could assist with educating the daycare center, that would be greatly appreciated.

Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator

I took the literature in with me and not only gave them the info, but I walked thru it all with them. The preschool has a no nut policy at the school and I told them that it was as serious as a nut allergy. Even though there isn't an external reaction that they can see, there is a large and dangerous internal reaction and over time, this constant cc will eventually kill them. We went thru all the stations in the classroom. We went thru the supply book that they order from and I showed them what was OK and what had gluten. I told them that if they were going to allow playdough in the classroom, they would have to do it on days that he wasn't there. If they decided to make playdough, cupcakes, etc in the classroom and it wasn't gluten-free, they would have to remove him from the room and he wasn't allowed back into the room until every surface in the room was sanitized because it was no longer a safe environment for him. I talked to them about having one of the teachers standing at the sink after every meal and snack time to make sure every child scrubbed their hands so that crumbs wouldn't get taken back out on all the toys. Ultimately, they decided to make the classroom gluten-free (except food). All of the school supplies and activities were gluten-free products and a teacher stayed at the sink during meal times to wash hands. That alone knocked the cc episodes down to a minimum.

He's in kindergarten now, there's no issues anymore. Plus it was a private preschool and me threatening to withdraw his tuition was enough to make them step it up ;)

twohokies Newbie

We just went through this at the end of August with my 3yo. I haven't gotten overworried yet about cross-contamination, so have not stepped up the game like the previous poster. But they have looked into soap ingredients, pulled playdoh from her group and supplied gluten-free pasta & clay as alternatives so that her group can still participate in activities. Our teacher took the extra step to talk to me about lunches when they have pasta since the 3yo's apparently have a habit of playing with it and it can be thrown. I told her that so long as she's at the end of the table and someone is close by, watching her so she doesn't eat it, she should be fine; but she's also VERY cognisent of knowing that glueten hurts her tummy. My daughter is their first (and so far only) gluten-free child in their school.

When we went gluten free at the school, this is the email I sent; after having a very brief discussion of what was to come. We got the +bw, then waited for the biopsy before asking the school to go through all the extra steps. I wanted them to take me seriously and didn't want to waste their time in case it wasn't celiac disease. They treat her celiac disease just like they treat nut allergies in the school...........very seriously. They had a lot of questions at first on a handful of products, but we've been learning together :-). And I keep applesauce, pretzels and popscicles at school for her (pops for bday party treats).

Good luck and I hope this helps!

As I think you may be expecting, I am now ready to start down the path of eliminating all gluten from X's daily life. She will be a gluten-free kid :-) This includes foods as well as products that touch her skin and products that can be significantly airborne (think flour). She had her endoscopy today and the GI doctor has confirmed celiac disease (aka gluten allergy); we'll have the official biopsy results later next week. Below are my thoughts on how to start, where we go with this to make her life easier. But I will need a lot of help from you all to ensure we're getting X healed and keeping her from further allergic damage.

FOOD

  • I will have to begin providing ALL food for her, with the exception of water and milk (we are adding back in dairy to her diet). Do I need to provide the ice packs, etc. to keep things cold in a lunchbox or can you store things in a refrigerator?

  • Can I bring in larger sizes of her snacks - i.e. a bag of gluten-free pretzels or do I need to pack individually for every day?

  • If there are any upcoming birthday celebrations, could you please let me know so that I can bring her in her own cupcake or other treat. Can I bring in a few items to keep on hand in the school freezer in case there is something last minute?

  • She can not eat or touch any of the snacks in the lobby, but we should be able to control that :-)

  • Probably any other procedures you all have in place with the children with nut allergies should apply to X, though thankfully her allergy is not immediately life threatening. Her allergy damages the lining of her intestines causing stomach pain, loose bowels and most importantly the inability to absorb nutrients to help her grow and stay healthy.

  • Tables where she eats need to be well-cleaned to eliminate cross-contamination from gluten foods, though I'm sure this is no different from nut allergies.

SKIN PRODUCTS

  • I will have to bring in a list to look at the ingredients in the sunscreen, hand soap and any other products that can touch her skin. Once we go through everything, if you all swap out a product with a new type or a new manufacturer, I'll need to know so that we can check the new ingredients.

  • If necessary, I'll have to supply whatever it is as a replacement to what you have on hand.

ART SUPPLIES (this will probably be the most difficult)

  • She can not use, or be at, a table with playdoh :-(. This is going to be the absolute hardest part of this for her since she LOVES her playdoh. I understand that there is gluten-free play dough out there, Discount School Supply was mentioned, if it's necessary for you all to provide play doh in the art room while she's there. The table used with playdoh before her class should be cleaned well.

  • There are a handful of art supplies that have gluten, so I will have to work with you to go through the most used art supplies and also research a master list of the "bad" supplies

  • She can not make any macaroni or pasta projects and should not be at a table with them "just in case", unless you can provide gluten-free pasta for that project

  • She can not make any cereal projects and should not be at a table with them "just in case", unless you can provide gluten-free cereal for that project

  • She can not be in the room where flour is being used

  • She can not do paper mache or be in the room where the product for paper mache is.

  • Fingerpaint typically contains gluten.

  • Elmers & Crayola are very good about labeling their products as "wheat-free" and all but the playdoh should be gluten-free

  • If you need me to, I can do some research and provide some cereal, pasta, playdoh, etc. that is gluten-free and can be used in her classes

LINKS

I am still learning about all of this so apologize that a lot of this information may be disorganized and/or you may have a lot of questions. We will learn it together :-). And as I come across more, or updated, information that I think will be important in the school setting, I will let you know. I'm sorry for overwhelming you with so much.

Do you want to set up a time to sit down and go through things next week? Is that easiest or do you want to go through my questions and the school first and then meet?

Thanks

Beth03456 Newbie

We provide my child's preschool with homemade playdough now. We also are willing to substitute as much as possible for any pasta and cereal they use in art projects. We made up a sheet for all the teachers similar to the above list to let them know what is expected like washing everyone's hands after meals, not sharing food, no playdough, etc. I think it was helpful for them to have a list to go through.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    2. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    3. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,000
    • Most Online (within 30 mins)
      7,748

    Klutziblonde
    Newest Member
    Klutziblonde
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.