Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Have Problems With Gelatin?


Tidings

Recommended Posts

Tidings Explorer

Gelatin seems to be another substance that causes all kinds of side-effects and problems for me. Wondering if anybody else with gluten intolerance/celiac has problems with gelatin?

(Wonder, too, why so many vitamins & supplements have to use gelatin when it causes problems for many people? Guess it is a cheap binder...)

One evening we ate out at an expensive restaurant and the next morning I woke with the usual headache, swollen face/eyes, rapid heartbeat, vision problems, "poisoned" feeling and I KNEW I had been toxified with gelatin. I called and asked the Chef if anything in the dinner I ate the night before had GELATIN in it, and he said "ABSOLUTELY NOT!" I pushed further and said "ARE YOU SURE? Because I'm deathly allergic [a little melodrama never hurts] to gelatin and I'm feeling very poisoned today?"; and he finally admitted, "Well, I did use CHICKEN FEET in the reduction sauce!" UGH!!! I didn't know which was more sickening--consuming gelatin or the idea of eating CHICKEN FEET!??? Blecchhhh!

At any rate, that little encounter made me doubly-confident that I can TRUST my intuition and body reactions; our bodies KNOW when we've been unintentionally "poisoned" with one of our allergen-substances. (P.S. Have not gone back to that particular restaurant since!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

I have not noticed issues with gelatin....yet, lol. I've learned to never say never. I wonder if it could gave been a simple case if cross contamination with pans or something? And chicken feet??? Really??? Hard to get past THAT visual!

TrillumHunter Enthusiast

Gelatin is a natural substance that forms when animal bones are boiled. Every time you eat a pot roast, roasted chicken or even anything made with broth, you are consuming gelatin in varying quantities.

I'm not saying there isn't something bothering you, but I wouldn't be too quick to point to gelatin.

Chicken feet, by the way, made the richest, most flavorful broth imaginable. They are tasty on their own as well, as millions of Chinese people will testify.

cassP Contributor

you were at a restaurant- and was your meal gluten free??? its more likely IMHO that you either ingested gluten, dairy, MSG, or some kind of starch added to a dish... than had an issue with gelatin.

for example- i was in quite a bit of abdominal stress after a gluten free meal at Pei Wei- and i narrowed it down to the Potato Starch that they coated the chicken with. i could eat a couple of fries and be fine- but this potato starch was gelatinous and processed- it was gross. i asked if they could just sautee the chicken next time

Tidings Explorer

Gelatin is a natural substance that forms when animal bones are boiled. Every time you eat a pot roast, roasted chicken or even anything made with broth, you are consuming gelatin in varying quantities.

I'm not saying there isn't something bothering you, but I wouldn't be too quick to point to gelatin.

Chicken feet, by the way, made the richest, most flavorful broth imaginable. They are tasty on their own as well, as millions of Chinese people will testify.

Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL!

By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

and so on...

And here's a few gross shots of chicken feet:

Open Original Shared Link

Tidings Explorer

you were at a restaurant- and was your meal gluten free??? its more likely IMHO that you either ingested gluten, dairy, MSG, or some kind of starch added to a dish... than had an issue with gelatin.

for example- i was in quite a bit of abdominal stress after a gluten free meal at Pei Wei- and i narrowed it down to the Potato Starch that they coated the chicken with. i could eat a couple of fries and be fine- but this potato starch was gelatinous and processed- it was gross. i asked if they could just sautee the chicken next time

Hi cassP,

I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL)

cassP Contributor

Hi cassP,

I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL)

ya it was gross. i also think there is something to this overprocessed "frankenstein" food.

i had a NIGHTMARISH episode the other day with High Maltose Corn Syrup!!! lots of debate over the internet over if it hurts celiacs or not.... but basically this one article said that the HMCS is "Relatively New" to human consumption- and that the effects on the human body may not be known yet.

great...... it's like we're part of an experiment


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast

Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL!

By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

and so on...

And here's a few gross shots of chicken feet:

Open Original Shared Link

Very interesting. Every time I made a homemade pizza crust using unflavored gelatin, I always reacted. Didn't know why but stopped using the gelatin. All the other ingredients in the pizza I am fine with.

Tidings Explorer

Very interesting. Every time I made a homemade pizza crust using unflavored gelatin, I always reacted. Didn't know why but stopped using the gelatin. All the other ingredients in the pizza I am fine with.

Hi Kathy,

Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume.

What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency, like GELATIN, WHEY, CARRAGEENAN, PECTIN. I wish I had studied chemistry or molecular biology or something that would assist me in comprehending WHY these substances cause similar "poisoned" effects in me! Remember, too, that GLUTEN contains a "gluey" substance. Maybe the operative word in all these problems foodstuffs is GLUE!! I remember as a kid using WHITE FLOUR as a PASTE SUBSTITUTE for little-kid-art-projects. I figure the "GLUE" in the gluten is "shellacking" our guts and making them nonfunctional. But do the other STICKY, GLUEY substances like WHEY, CARRAGEENAN, PECTIN, GELATIN, etc. do a similar thing to our insides? It would sure be nice if somebody would research it and let us know!

:-D

Tidings Explorer

ya it was gross. i also think there is something to this overprocessed "frankenstein" food.

i had a NIGHTMARISH episode the other day with High Maltose Corn Syrup!!! lots of debate over the internet over if it hurts celiacs or not.... but basically this one article said that the HMCS is "Relatively New" to human consumption- and that the effects on the human body may not be known yet.

great...... it's like we're part of an experiment

"Frankinstein food" is a good way to describe some of this stuff! Recall in the old monster movies there often was a creature/being/monster that took the form of a GELATINOUS SUBSTANCE! UGHHHH. !

ksymonds84 Enthusiast

Hi Kathy,

Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume.

What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency, like GELATIN, WHEY, CARRAGEENAN, PECTIN. I wish I had studied chemistry or molecular biology or something that would assist me in comprehending WHY these substances cause similar "poisoned" effects in me! Remember, too, that GLUTEN contains a "gluey" substance. Maybe the operative word in all these problems foodstuffs is GLUE!! I remember as a kid using WHITE FLOUR as a PASTE SUBSTITUTE for little-kid-art-projects. I figure the "GLUE" in the gluten is "shellacking" our guts and making them nonfunctional. But do the other STICKY, GLUEY substances like WHEY, CARRAGEENAN, PECTIN, GELATIN, etc. do a similar thing to our insides? It would sure be nice if somebody would research it and let us know!

:-D

You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will make us worse. Anything too fermented such as sauerkraut also will do numbers on our g.i. Its part of the low fodmap diet that many with FM follow.

I've also heard that Gelatin is a natural source for sulphites and some that react to sulphites will react to Gelatin. I only know that red wine will make me look like rudolph and I blame the higher sulphites in red wine for that. Also cheap wines no matter what the varietal, will get me glowing :)

mbrookes Community Regular

Life is too short to drink bad wine. Stick with the good stuff. It isn't all expensive. Check out the reccommended ones in Wine Spectator magazine (I read it free at the library) Some of the highly rated ones are under $20 a bottle.

RiceGuy Collaborator

I use agar agar in place of gelatin. Works quite well.

As for supplements, Country Life and NOW Foods make many which use vegetarian capsules made from plant cellulose, not gelatin.

Chicken feet...yuck! I don't even want to contemplate all the disgusting things those chickens walk on in those chicken coops.

Tidings Explorer

Chicken feet...yuck! I don't even want to contemplate all the disgusting things those chickens walk on in those chicken coops.

EXACTLY!!! LOL!

By the way, when they say vegetarian cellulose, you don't suppose there's a chance they could be talking about a gluten-containing grain (is grain a vegetable?), do you? Have noticed a lot of products specify plant cellulose, but not sure what exactly their source is. ??

ksymonds84 Enthusiast

Life is too short to drink bad wine. Stick with the good stuff. It isn't all expensive. Check out the reccommended ones in Wine Spectator magazine (I read it free at the library) Some of the highly rated ones are under $20 a bottle.

I know what you mean. I should have been more clear in my original post. The fine dining restaurant that my hubby and I own has been awarded the Wine Spectator award for 5 years in a row now. It happens when we have to go to awful political events ect and they serve us nasty wine :(

You are correct about finding decent wine for less.

Tidings Explorer

You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will make us worse. Anything too fermented such as sauerkraut also will do numbers on our g.i. Its part of the low fodmap diet that many with FM follow.

I've also heard that Gelatin is a natural source for sulphites and some that react to sulphites will react to Gelatin. I only know that red wine will make me look like rudolph and I blame the higher sulphites in red wine for that. Also cheap wines no matter what the varietal, will get me glowing :)

This stuff about sulphites is very interesting. Had not really considered sulphites as a problem, but when I look at the list on the following link, I do see several foods/substances that are known to provoke a reaction in my system:

Open Original Shared Link

Substances like gelatin, pectin, chocolate (sometimes)... Not sure if it's the sulphites themselves that cause me problems or something else. What's interesting is that for several months earlier this year, I was taking a couple eyedrops for glaucoma that contained sulphites... I had a LOT of systemic problems during those months... Maybe a connection...

Open Original Shared Link

It is also interesting that adrenaline/epinephrine (which causes heart palpitations and irregular heartbeat when I have it) is one of the things used to counteract a severe sulfite reaction! (Maybe the old "hair of the dog" remedy at play?)

  • 1 year later...
runnergirl88 Newbie

I have the same problem! You are not alone!

I notice that if I eat jell-o or even vitamins/meds that contain gelatin I don't feel well. Same reaction with the headache, joint pain, puffy eyes, and sleeping problems. Also, my lymph nodes seem swollen my underarms heart and groin...People keep telling me I'm crazy and its "impossible" nope...anything's possible. You're not alone trust me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,057
    • Most Online (within 30 mins)
      7,748

    Glutard007
    Newest Member
    Glutard007
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...