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Celiac Disease Strikes Some Late In Life - NPR (blog)

Scott Adams

By Scott Adams
in Publications & Publicity

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NPR (blog)

There's been an increase in people with celiac disease — particularly in the elderly, says a study published online by the Annals ...

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    • Scott Adams
      Status Update...

      By Scott Adams · Posted

      So the way it should be used is to take it before possible gluten exposure, so right before a meal at a restaurant take 1-2 capsules. Unfortunately taking it 1 hour or more after an exposure is too late.
    • Scott Adams
      Do I really need to get a biopsy?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for now, especially given your current commitments to culinary classes. You could consider working with a knowledgeable dietitian or a gastroenterologist who specializes in food intolerances and celiac disease to explore potential intolerances or other conditions without immediately reintroducing gluten. If confirming celiac disease is important for your long-term health management, you could plan for an endoscopy during a less busy period, ensuring you follow the gluten challenge protocol beforehand. In the meantime, prioritizing your well-being and avoiding known triggers seems like a practical step. Always advocate for yourself with doctors, and seek second opinions if needed—your health concerns are valid. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • trents
      Do I really need to get a biopsy?

      By trents · Posted

      Welcome to the forum, @Ryangf! If you don't have celiac disease you could still have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but NCGS does not damage the lining of the small bowel as does celiac disease. Some experts feel NCGS can be a precursor to the development of celiac disease. NCGS is 10x more common than celiac disease. There is no test for it. A diagnosis of NCGS is arrived at by first ruling out celiac disease by formal testing. At the end of the day the antidote for both is the same, namely, life-long abstinence from gluten. Yes, corn is a common cross-reactor with gluten for some celiacs. So are oats, soy, eggs and dairy.  I have concern with your possible exposure to wheat flour dust during your culinary training. It gets in the air, you breathe it in, it gets trapped in the mucous of your mouth and airway and winds up in your gut. If you decide to go forward wit the "gluten challenge" for formal celiac disease testing, aim for the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for four weeks leading up to the day of either the blood draw or the endoscopy/biopsy.
    • Scott Adams
      Less than 10 parts per billion issues

      By Scott Adams · Posted

      I just want to mention that with gluten we're talking about ppm, or "parts per million," and not parts per billion.  Sticking to whole foods and home cooking is the safest way to go, without necessarily replacing all gluten products you might normally eat with gluten-free ones. If you do eat gluten replacements, for example gluten-free bagels or breads, it's probably best to take @trents advice and seek out certified gluten-free brands.
    • Wheatwacked
      Do I really need to get a biopsy?

      By Wheatwacked · Posted

      Welcome to the forum @Ryangf. You don't need permission to not eat anything that makes you feel bad; including wheat, barley or rye products. Wheat flour has an omega 6:3 ratio of 22:1.  Our bodies do best at less than 3:1.  Omega 6 fatty acids are generally inflammatory. There is really no point in more testing.  For some it takes 10 years to finally get a positive.  Once you start eating gluten free why bother going back?  Peer pressure.  Some countries have financial benefits with Diagnosis.  The only treatment for both Celiac Disease and Non Celiac Gluten Sensitivity is no contact with Gluten.  And you already know the answer, just in a stage of denial.  Some go through a mourning period.  You are losing a friend.  And there's the anger.  Also, gluten has addictive properties, it activates the opiod receptors. While healing you will experience new intolerance for foods that never bothered you before.  Partially blame it on the opiod receptors, they were numbing you.  And people may taunt you. One aspect of recovering from Celiac and NCGS is vitamin and mineral deficiencies.  Celiac causes malabsorption from small intestine villi damage. Some of your symptoms will go away with the gluten but others are caused by deficiencies in the western diet and your particular food choices. Vitamin B1, B2, B3, B5 are essential for producing ATP energy for the cells.  Vitamin D deficiency is virtually ubiquitous in Celiac Disease and the other autoimmune diseases.  That, I believe is why many have multiple autoimmune diseases.  A blood level of 200 nmol/L or 80 ng/ml is the normal that gives the most immune system, bone health, mental health. Other common deficiencies in the western diet are iodine, choline, potassium. To replenish them you need a much higher intake than the minimum RDA.  
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