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Diagnosed Last Night

AWebb85

By AWebb85
in Meet Up Room

Recommended Posts

AWebb85 Newbie
AWebb85
Posted

Hey everyone, I'm Aaron. I am 25 and live in Glendale AZ. I am new to the Celiac Family. Today was difficult looking in my fridge and pantry and realizing I can't eat almost anything in either. Happy to have a place where I can connect with similar people.

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Dixiebell Contributor
Dixiebell
Posted

Welcome to the forum! It is hard to start with but it will be second nature soon. Ask any questions you need. there are some very smart people here.

Emilushka Contributor
Emilushka
Posted

Hi! I'm also a relatively new member of the group. I got my results back on 9/10, and I've been gluten-free ever since. Almost a whole month.

My fiance eats gluten still. My strategy has been to separate our food out in the kitchen so that his food will not get crumbs on my food and I will have my own areas to maintain and stock. This means that I can easily see what I can and cannot eat, or what can and cannot go into something I am cooking. I find this really helpful.

If you're living with others who eat gluten, make sure you're not sharing nonstick pans, nonstick utensils, or wooden utensils. It's wise to invest in a rice cooker, your own toaster oven, and a good cast iron skillet (that will forever be gluten free).

My biggest recommendation: learn to cook WELL. If you can keep making tasty foods you like to eat, it'll feel like you're giving up a lot less. My sad days are when I think of what I can't have. My happy days are when I realize I just made something delicious that incidentally had no gluten - and it makes my body feel great to have the good stuff.

lucia Enthusiast
lucia
Posted

It's true what they say - the diet will fall into place for you after awhile. I went through the exact same process that you describe - going through my cupboards and ending up discouraged. I'd encourage you to take a look at the recipe section on the site and also maybe to search for "ideas for breakfast," "ideas for lunch," etc. It's helpful to draw on other people's experience when planning meals. Honestly, after a few months, I think the hardest thing about the gluten-free diet is eating outside of the house, but that's a whole other hurdle for you. Welcome!

AWebb85 Newbie
AWebb85
Posted
  • Author

Thanks for the kind words and information. I am starting to see just how many gluten free options there really are out there. My fiance is being very considerate and is going to try to only eat gluten free, at least at home. I am feeling a lot better about the whole idea and am excited to finally start feeling better!

  • 2 weeks later...
Foxx Newbie
Foxx
Posted

Thanks for the kind words and information. I am starting to see just how many gluten free options there really are out there. My fiance is being very considerate and is going to try to only eat gluten free, at least at home. I am feeling a lot better about the whole idea and am excited to finally start feeling better!

Welcome and, I am new here as well.

Wal-Mart has a list (on their site) that details all of the Gluten Free products they carry. Watch your mouthwash as well - Equate (by Wal-Mart) are processed on a line shared by gluten-based products; cross contamination is definitely a serous problem. Be sure to call the Mfg and ask for a product specialist.

Good Luck and keep your head up

  • 2 weeks later...
Rocknroll Celiac Newbie
Rocknroll Celiac
Posted

Hey everyone, I'm Aaron. I am 25 and live in Glendale AZ. I am new to the Celiac Family. Today was difficult looking in my fridge and pantry and realizing I can't eat almost anything in either. Happy to have a place where I can connect with similar people.

Yo man, i found out i was celiac when i was 25 as well. It's pretty tough at the start, especially having to explain to people who are offering to have you over for dinner that you're allergic to basically everything. If you know how to cook, it starts becoming pretty cool to throw your own dinners and thanksgivings and things. What's really interesting is how much you'll find out that you have to cook ALL THE TIME. It's kind of time consuming, makes you wonder what life used to be like before fast foods!

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  • 5 weeks later...
dwillia75 Newbie
dwillia75
Posted

Hi and welcome! I was diagnosed when I was 50 after years and years of seeing specialists, having surgeries, and taking a LOT of medications. I never dreamed that the dreaded colonoscopy and endoscopy would have a benefit like this. I was in total shock (didn't know what gluten was) and had much to learn. Thanks to the Internet and some good books, I adjusted pretty easily. I almost immediately felt like a new and improved person once I quit eating gluten-foods. The health aspect outweighs my cravings for foods that I'll never eat again. Yes, I miss an occasional doughnut or biscuit, but Chebe, Open Original Shared Link and AllergyGrocer.com offer good gluten-free bread/pasta/homemade soup alternatives. I am going to take, after the holidays, a gluten-free cooking class at Viking Cooking School. I realize that I'm eating more fresh fruits and vegetables and not many gluten-free processed foods. They cost too much!

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    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

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    • Scott Adams
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    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
    • pdm1981
      Vaccines

      By pdm1981 · Posted

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