Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

But, I Wasn't Glutened!


curiousgirl

Recommended Posts

curiousgirl Contributor

Monday night had a massage with some sandlewood essential oil added to massage oil (my biotone has never been a problem). Post nasal drip began, then constantly had to clear my throat...ridiculously constant.

Tuesday cold symptoms (sneezing, runny nose, sore throat) but didn't really feel physically too tired.

Wednesday continued with Tuesday symptoms, but a deep chest cough and sick to stomach in the evening (thought I was gonna lose it) which is unuual (only had baked salmon, brown rice, and sugar snap peas). The only change for today was adding some oregano supplements my naturopath gave me to help with sinus.

Thursday chest cough and feel exhausted...stuffy nose, weak, achey, tired, blah. It's 3:30 pm and now a little sick at stomach.

The cold symptoms can typically be reaction for me...but never this bad, nor for this long, and seems to get worse each day. What will tomorrow bring??

Any suggestions please? Is this a glutening...from sandlewood essential oil? I only used a tiny bit in a 4 oz bottle of biotone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Could you possibly have a bona fide virus. I blame everything on food, forgetting that I might actually be sick in real life.

Hope you feel better soon.

tarnalberry Community Regular

I would think you have a cold, given the cold symptoms. (Post nasal drip can cause stomach upset quite commonly.)

K8ling Enthusiast

I do believe you are sick my dear.

curiousgirl Contributor

I do believe you are sick my dear.

...didn't want to admit it. Hmmmmm, I know what you mean though by blaming it all on food.

Thanks for your replies.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,203
    • Most Online (within 30 mins)
      7,748

    Barbara 1981
    Newest Member
    Barbara 1981
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...