Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had A Great Day Today

Marilyn R

By Marilyn R
in Coping with Celiac Disease

Recommended Posts

Marilyn R Community Regular
Marilyn R
Posted

The first five months of this has been full of ups and downs. Feeling better, feeling worse, finding out that something else makes my autoimmune system go into overdrive. The figuring it out part is the pits. I've experienced every emotion that you can find words to describe over the past five months, both good and bad. But even the worst of the bad is better than the months that preceeded these past five months.

And today was a good day. I went fishing and did't catch a thing, but had fun trying. I went to the produce market and left spending $20 and ended up with more produce than I could carry out by myself! Tomorrow's lunch is already prepared and we had a fabulous dinner tonight with grilled corn, grilled baby potatoes, fresh steamed green beans and a protein. I've shared some of my bounty from the produce stand with a neighbor...we had a nice visit.

For the first time in well over a year (maybe two?), I cleaned my refrigerator out. OMG, it was bad! I just couldn't care or do anything about it before. My dear boyfriend said, "I think you're coming back!" when I was down on my knees cleaning the refrigerator.

Just wanted to share for those of you new to the diagnosis and/or forum that it takes awhile to get back to "normal" ... and maybe provide a walk down memory lane for those of you that have been down that road. This is the best day I've had in two years, and I'm celebrating it with the only people that understand!

I'm really freaking happy that I even care that I have a clean refrigerator! Yay!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted
:lol::P, I know what you mean about the refrigerator! It's even better at a year and a half!
K8ling Enthusiast
K8ling
Posted

Awesome!! I hope there are MANY more days like this one :D

mbrookes Community Regular
mbrookes
Posted

Hi

From one Marilyn to another:

It is all good! I have been gluten free for almost three years, and life gets better and better. The diet gets easier to follow as you get more used to it, friends and family accept that that is "just the way it is", restaurants recognize you and know what you need, and best of all, YOU FEEL SOOOO GOOD!

I am really happy for you!

Another Marilyn

Marilyn R Community Regular
Marilyn R
Posted
  • Author

Thank you, gluten-free sistas! It is great to know that even better days lie aheaad... :D:D:D

Emilushka Contributor
Emilushka
Posted

Currently healing up from my first awful relapse. I needed to hear this. Thank you.

rustycat Rookie
rustycat
Posted

Thanks, I needed to hear that. I've been strictly gluten free for just over a month (I was gluten light before that) and I kept hearing that many people have quick recoveries. Mine has been up and down and I wasn't sure what was happening. It's inspiring to hear that it can keep getting better over a long period of time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wheeleezdryver Community Regular
wheeleezdryver
Posted

YAY for great days!!

Here's hoping tomorrow is a good day as well! :)

and i'm glad to hear I'm not the only one who goes months on end w/ o cleaning the fridge... usually for me it's not quite that long (somewhere around 3- 6 months....and it's due for a cleaning NOW!) (and I'm sure you all can understnad why cleaning th fridge 9esp when it gets that bad) is my least favorite household chore!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,288
    • Most Online (within 30 mins)
      7,748
    Lee Galloway
    Newest Member
    Lee Galloway
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Positive blood test

      By trents · Posted

      Welcome to the forum, @Pinkwells19! Can you be more specific about what the name of the test was that scored a 13? There are a number of blood antibody tests that can be run to test for celiac disease. Also, can you give the range that was used for positive vs. negative on the blood test. There are no industry standards for these tests so we need both the test score and the ranges. Was there only one blood test ordered? Please list all tests that were ordered. So, after the blood test they did an endoscopy with biopsy of the small bowel lining which was negative. Correct?  Has your daughter begun the gluten free diet yet?
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      Thank you both... yes it's a big mystery and seems so inconclusive. However the biopsy is a huge piece and my history of symptoms. I agree too, that the on and off of eating gluten-free probably messes with the tests. I recently had IGA SERUM (147) and TTG IGA ANTIBODY (>1.23) and had been eating gluten-free for about 6 days. Prior to that a low gluten diet that didn't seem to give symptoms when before, even a low gluten diet did. SO odd. Got a msg from the GI Dr that I should try a gluten challenge and I am concerned with feeling awful. I wish there was a definitive diagnostic test that just told me yes or no. I just don't want to eat gluten if I am damaging my insides without even...
    • Pinkwells19
      Positive blood test

      By Pinkwells19 · Posted

      My daughters blood work was positive  it was a 13 we done a biopsy last yr said had a ulcer in the stomach and looked very irritated and started to bleed she said most likely it will come back positive, but it came back negative. My daughter loves red sauce and does not eat the best. She is eight years old so we cut back on red sauces and chocolates year later we do same bloodwork everything stayed the same never got better never got worse symptoms is nauseous headaches stomach aches once in a while has ear infections numbness of hands n feet my question is should I redo a biopsy what do others think she did test positive for one genetic test and negative for one 
    • trents
      diagnostic testing variance

      By trents · Posted

      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue...
×
×
  • Create New...