Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Back On Gluten Diet


navyguitar

Recommended Posts

navyguitar Newbie

I have never been diagnosed with gluten related issues. I had an upper respiratory infection 3 years ago and have never been the same since. My symptoms include:

Chronic rhinitis (3 years)

Brain Fog (cognitive issues)

Lethargy

Fatigue

Visual snow

Inability to have dreams

I just haven't been the same. I make mistakes all of the time. Some of which include simple math mistakes (adding tips up wrong, bank deposits, etc.). This is concerning to me as I graduated with a math based degree. I've been to three different doctors, and they say it is allergy related. The only allergy symptom I have is a congested nose. I can live with that; it is the cognitive issues that are so bothersome. My family has even noticed an extreme difference in me. I just scheduled an appointment with a new doctor, and I plan on being more aggressive.

I have been trying a gluten free diet for about a month. I wasn't 100 percent gluten free the first two weeks, as I wasn't aware of how many things contained wheat. The past two weeks I have been very strict. Basically, eating chicken and rice and items that specifically state gluten free on them. I haven't had any change in my symptoms. I regret going on the diet now, as it may give me a false negative if a celiac panel is ordered. I'm planning on going back on a gluten diet today or tomorrow. How long should I stay on this diet before getting my blood work?

Also, do my symptoms relate to gluten issues? I do not have any bowel issues other than minor constipation. I used to be very regular and go every morning. Now, I go every other day. Sometimes I will go on the third day. I read that this is normal. I do not have any pain. I do remember seeing mucous type stool which could have been fat in my stool. Should I even pursue the gluten avenue with my doctor? What else could be causing my issues? I have heard depression/anxiety or lyme disease.

Thank you for your time


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

if you're going to get tested- you need to be eating at least 4 slices of bread worth of gluten a day (or more) for at least 6 weeks (or more). my doc put me on only a 2 week challenge- and most of my tests were "inconclusive".

recent studies report ONLY 1 in 6 Celiacs have Gut symptoms. many of us on here & many not on here have additional neurological issues from gluten. some Celiacs or people with gluten sensitivities ONLY have neurological effects. so, yes- your issues COULD be related to gluten of course- or not related too.

a lot of us also get "C" from gluten as opposed to the "D".

good luck with your decisions & testing.

ps- OH and YES- rhinitis could also be related to gluten! as many of us have experienced. &/or dairy &/or thyroid issues. (and of course dairy & thyroid issues often go hand in hand with gluten intolerance.

ravenwoodglass Mentor

recent studies report ONLY 1 in 6 Celiacs have Gut symptoms. many of us on here & many not on here have additional neurological issues from gluten. some Celiacs or people with gluten sensitivities ONLY have neurological effects. so, yes- your issues COULD be related to gluten of course- or not related too.

Yes and if you don't have gut symptoms the tests may come back a false negative. After you are done with testing give the diet a good 2 or 3 months to see if it helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,151
    • Most Online (within 30 mins)
      7,748

    dancingmom
    Newest Member
    dancingmom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi Guys, i did repeat biopsy after marsh3b (without erosion) and results are now: normal villi without atrtophy, 25/100 iel and moderate mononuclear inflamation in lamia propria, with occesional granulocytes. Doc says the he saw little erosion on duodenum. Is this good ? I mean is this progress? Please help!
    • Scott Adams
      In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Wheatwacked
      Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine.  Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine.  A sandwich and glass of milk supplied 300 mcg a day.  In the 70's they stopped using iodine as a conditioner in the US.  Then everyone got scared of milk.  The US intake of iodine dropped 50% since 1974.  Prescriptions of Thyroxine for hypothyroid disease doubled in the same period.  I tried using iodized salt and seaweed and took an expensive thyroid supplement but it wasn't enough.  In 2014 I had a sebaceous cyst (third eye blind).  The previous 6 cysts on my face had all drained and healed with no problem back in the 1990,s.  One on my check had sugically removed. They are genetic from my mom and my brother and son also get them in the same places.  This one I did not have surgery for because I wanted a bellweather to moniter healing.  It did not start healing until I started until 10 years when I started taking 600 mcg of Liquid Iodine a year ago Nov 2023. Lot's of comment about how it was offputting and maybe cancer, it was deep, down to the bone, but I can be obstenant.  Now it is scabbing over and healing normally.  Vision is returning to my right eye (glucoma), musle tone in my chest was the first sign of improvement.  For healing, iodine breaks down defective and aging cells to make room for new growth. I take Liquid Iodine drops from Pipingrock.com but there is also Strong Iodine and Lugols Solution. 50 mcg/drop a dropper full is 12 drops, 600 mcg.,  usually I put it in a can of Red Bull, My brother, son and his family also started taking it. https://www.pipingrock.com/iodine/liquid-iodine-2-fl-oz-59-ml-dropper-bottle-14690 390 drops for $8.  They ship internationally if you can't find it locally. It the US the Safe Tolerable Upper Limit is 1000 mcg a day.  In Japan it is 3000 mcg a day.  The Japanese traditional diet has 50% less breast cancer, nicer hair, skin and nails, and in the 80's the US educational system dropped down comared to the rest of the world while Japanese kids moved up to the top.  Low iodine affects brain fog. According to most education rankings, Japan generally has a higher education rating than the United States, with Japan often ranking within the top 10 globally while the US usually places slightly lower.  In the 1960s, the United States was near the top of the world for education, especially for young people.  About why iodine was removed from medicint: The Wolff-Chaikoff Effect: Crying Wolf? About why over 40% of us are vitamin D deficient: Mayo Proceedings,  Vitamin D Is Not as Toxic as Was Once Thought:  
    • trents
      Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
    • Bebee
      Thank you for your input!  I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns.  I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
×
×
  • Create New...