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What Do I Do If Want To Give One Individual My Home Email Address?


Loey

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Loey Rising Star

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Thanks for everything you are doing here. Finding this forum couldn't have come at a better time. I'm in the midst of a flare and I've already learned so much and gotten so much support from the other members.

Loey

P.S. Why do some threads list me a a new community member and others as an advanced one?


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Lisa Mentor

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Thanks for everything you are doing here. Finding this forum couldn't have come at a better time. I'm in the midst of a flare and I've already learned so much and gotten so much support from the other members.

Loey

P.S. Why do some threads list me a a new community member and others as an advanced one?

Loey:

You can click on that person's name and it will take you to their profile. There you will see options to send a personal message that is private between the two of you.

Members status is based on the number of posts that are made.

sa1937 Community Regular

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Loey

Personally I've given my email addy to a couple of forum members. You can get a feel from the posts they've made. Life is full of taking chances...heck, as celiacs every time we put something in our mouths, we take chances. If I found someone who lived closed to me with shared interests, I'd go for it...that does not mean that I indiscriminately give out personal info.

Rowena Rising Star

Another thing you can do is set up an email for solely people from this site, (or any other site you join) and that can be listed for people to send you things. This is what I do for this and another forum I am a part of.

But personally, I like Private Messaging people, quick and easy, and I can do it while I am signed on and I don't have to look at two different screens while doin so.

Loey Rising Star

Personally I've given my email addy to a couple of forum members. You can get a feel from the posts they've made. Life is full of taking chances...heck, as celiacs every time we put something in our mouths, we take chances. If I found someone who lived closed to me with shared interests, I'd go for it...that does not mean that I indiscriminately give out personal info.

Thank you for the helpful advice. I wasn't sure how you went about setting it up. I've made contact and am looking forward to meeting someone who lives here. She's offered to take me to the Support Group when it resumes it's meetings.

I agree with you that we take a chance every time we put something into our mouths. As a newcomer to this disease I'm still trying to find my triggers and I think I'm going to just stick to rice, protein and fresh vegetables and see how that goes. I'm in the middle of a terrible flare and am in pain constantly. I'm waiting to hear if my insurance company approved my capsule endoscopy for Monday. Before I moved my GI made all of my testing a priority because I was bedridden for 6 weeks and needed to have results to bring with me. Initially I was feeling better but feel like I'm back at square one. My new GI says that I must be eating something that has gluten in it but I've been extremely careful. I'm planning on eliminating dairy for now as well. I just want to feel better.

You've answered my posts before and I really appreciate the support I've gotten from you and everyone else here. Hopefully I'll be able to help others.

Loey

Lisa Mentor

Dairy yes...it can mimic the gluten effect. And try to keep a food diary. It can help you pinpoint an issue.

sa1937 Community Regular

Thank you for the helpful advice. I wasn't sure how you went about setting it up. I've made contact and am looking forward to meeting someone who lives here. She's offered to take me to the Support Group when it resumes it's meetings.

I agree with you that we take a chance every time we put something into our mouths. As a newcomer to this disease I'm still trying to find my triggers and I think I'm going to just stick to rice, protein and fresh vegetables and see how that goes. I'm in the middle of a terrible flare and am in pain constantly. I'm waiting to hear if my insurance company approved my capsule endoscopy for Monday. Before I moved my GI made all of my testing a priority because I was bedridden for 6 weeks and needed to have results to bring with me. Initially I was feeling better but feel like I'm back at square one. My new GI says that I must be eating something that has gluten in it but I've been extremely careful. I'm planning on eliminating dairy for now as well. I just want to feel better.

You've answered my posts before and I really appreciate the support I've gotten from you and everyone else here. Hopefully I'll be able to help others.

Loey

You're welcome, Loey! That's what makes this forum so great! Very helpful people here, some of whom have been gluten free for years and they know a whole lot more than I do. I don't know of any local support groups around here...I'm sure you'll meet a lot of nice people and learn a lot.

I think Lisa has a great idea...keep a food diary. I never did and sometimes it's really hard to pinpoint what's bothering us. If you were bedridden for six weeks at diagnosis, no doubt in my mind that you were terribly ill and dairy should be given up and eat really clean by eliminating processed foods. Also, in my mind you might want to pretty well give up eating out for awhile as the risk of cross contamination is so great. You might also have other intolerances that you don't even know about yet.

We have to remember that we didn't get this way over night and it's just going to take time to heal. Easier said than done as we all want instant results. I hope your insurance company approves the capsule endoscopy for you!


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      Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂 
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      Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc . The steroids seem to be working and everything is functioning as it should however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.      
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      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
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      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
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