Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spots On Hands


Matilda

Recommended Posts

Matilda Enthusiast

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

I have DH on my elbows, knees, ankles, lower back, hips, sometimes face, sometimes scalp and hands. However I have something on my fingers and occasionally my palms that looks just like one of the pictures in that link you posted. I suspect that I have that too.

About your infections, have you been on anti-biotics yet? If not, get thee to a physician post haste. I used to get boils all the time too, so I feel your pain.

anerissara Enthusiast

Wow, that sounds exactly like what's on my hands!!! Awhile ago a dr. told me it was dh, however he did not do a biopsy and was a general md rather than a dermatolagist so in retrospect I wonder how he came up with that.

Besides the hand rash, I also get the red bumps (much bigger) on my legs, arms, and sometimes on my scalp (I've got a bunch along the back of my hairline on my neck right now). I just assumed that the little blisters on my hands were dh of a different type...now I'm wondering if the other rash is dh or something else too? Right now, my finger is so covered with blisters I can't bend it and every time I try the skin cracks at the knuckles. Ouch!

I understand about being unsure. I felt soooooo much better the first 3 weeks, now I'd have to say I feel *worse*. Although I guess I dont' feel worse than I did at my worst, which was about 6 months ago.

How are you doing today? It sounds like antibiotics might be in order for the infected cut. Hope you're doing much better soon!

frenchiemama Collaborator

Right now, my finger is so covered with blisters I can't bend it and every time I try the skin cracks at the knuckles. Ouch!

See, that's what I have too. The blisters on my fingers and knuckles (also on my palms occasionally) are different than the ones that I have elsewhere. The skin on my knuckles cracks and is very painful, and I get clusters of these tiny little blisters on the sides of my fingers. Just like the picture on the upper left of that website that was posted.

Matilda Enthusiast

I'm much better today, thank you. Immune systems's finally bucked itself up!

Matilda

  • 2 weeks later...
vera Newbie

This is weirding me out... I had no idea so many people with DH also had dyshidrosis... me too... I get it mostly on my feet. Ack. Hydrogen peroxide helps.

There is a yahoogroup on the topic, if you want to join another forum! :unsure:

  • 3 weeks later...
artistlady Newbie
I'd been thinking the itchy, blistery spots on my hands might be a mild version of DH - mild in that they're just on my hands and not like the awful pictures you see if you google DH pics.

Well, I read all through the DH section here  Blimey, loads of people have spots on their hands! The linked pictures of spots on the palm looked just like mine. Also I have exposure to iodine skin wash at work so thought maybe that would make it come out on my hands only. Also I thought it got worse when I took non-steroidals.

I'd seen dermatologists before, so went back to my current one to ask for a biopsy. I thought that might be a good way to bypass the gluten-free/duodenal biopsy problem. I'd had a bad outbreak recently and had a few recent spots for her to look at. She said, " That would be ridiculous. That's not DH. That's pompholyx!"

So I looked that up and it does sound and look very much like my spots.

Open Original Shared Link

It's also common. It's a type of eczema, affecting hands and feet, also known as dyshyditic (sp?) eczema. I thinks it was Stephanie who wrote about "tapioca pearls" and that's exactly how it was described in one of the google sites I read, but basically clusters of blisters and spots, very common in people with nickel allergy.

Anyway, I told the dermatologist that the strong steroid cream didn't work so she gave me samples of some new stuff called Protopic ( generic tacrolimus). I think dermatologists get quite excited at having a drug other than steroids to use. I used it 3 or 4 times before I looked up the data sheet and decided I didn't want it - warnings about immunosupprssion, lymphoma etc. I decided I'd rather carry on tackling things with diet change rather than add in a new complication.

This week I've lapsed though. I'm waiting for Enterolab results and I think that's made me feel a bit unsure about  what I'm doing. Maybe I'm about to find out there's no problem with gluten and I've imagined the whole thing, so twice this week I've eaten food I hven't been sure of because I wasn't confident enough to refuse! And I'm feeling relly crappy.

I'm feeling so run-down, I don't know if this is what's causing the problem, or whether it's the new ointment. Now I've got a nail-bed infection, 2 tiny cooking-cuts have turned into big p%$#@# things, and I've got a horrible boil-type thing on my fingetr, that's swelled up like a banana, and now it's spreading onto my palm. Honestly, if it's any worse tomorrow I think I'm going to have to go to the ER.

I'm sorry, I don't know if this is celiac related. Thanks for reading anyway.

Matilda

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



artistlady Newbie

I have those pearl like spot on my hand and feet, the creams work for a while but didn't get rid of them totally. As soon as I went on gluten free diet for 3 months my spots on my feet,hands,and elbows went away. Also, my face clear up and became super clear. People ask if I am wearing make-up and i am wearing no make-up. Before my face would breakout seasonal. so would me hands,feet and elbow. I am convince that I have celiac disease, but I have not tested, because lack of health insurance. :)

mouse Enthusiast

I have had the blisters on my fingers and palms, on and off, my whole life (age 63). I remember that my Dad had it so bad that his hands would crack and bleed. I used to think it was nerves. When I got the Celiac diagnosis, my GP thought it was DH, but after my other diagnosis with Scleroderma, the skin specialist said it was not DH, but something else. I was so relieved that I only had Morphea Scleroderma and not the Systemic that I was originally told, that I was bawling so bad, that I have no idea what he called the hand thing. I do know that since I have been gluten-free for a year and a half that I have had only one very minor outbreak of blisters on one finger only. So, I am assuming that Gluten aggrevates the problem. I do know that my GP diagnosed one woman with celiac disease because her hands were just covered with blisters. He thought of my hands and then tested her. She had no other symptoms.

Armetta

  • 2 weeks later...
Luka Newbie
I'd been thinking the itchy, blistery spots on my hands might be a mild version of DH - mild in that they're just on my hands and not like the awful pictures you see if you google DH pics.

Well, I read all through the DH section here  Blimey, loads of people have spots on their hands! The linked pictures of spots on the palm looked just like mine. Also I have exposure to iodine skin wash at work so thought maybe that would make it come out on my hands only. Also I thought it got worse when I took non-steroidals.

I'd seen dermatologists before, so went back to my current one to ask for a biopsy. I thought that might be a good way to bypass the gluten-free/duodenal biopsy problem. I'd had a bad outbreak recently and had a few recent spots for her to look at. She said, " That would be ridiculous. That's not DH. That's pompholyx!"

So I looked that up and it does sound and look very much like my spots.

Open Original Shared Link

It's also common. It's a type of eczema, affecting hands and feet, also known as dyshyditic (sp?) eczema. I thinks it was Stephanie who wrote about "tapioca pearls" and that's exactly how it was described in one of the google sites I read, but basically clusters of blisters and spots, very common in people with nickel allergy.

Anyway, I told the dermatologist that the strong steroid cream didn't work so she gave me samples of some new stuff called Protopic ( generic tacrolimus). I think dermatologists get quite excited at having a drug other than steroids to use. I used it 3 or 4 times before I looked up the data sheet and decided I didn't want it - warnings about immunosupprssion, lymphoma etc. I decided I'd rather carry on tackling things with diet change rather than add in a new complication.

This week I've lapsed though. I'm waiting for Enterolab results and I think that's made me feel a bit unsure about  what I'm doing. Maybe I'm about to find out there's no problem with gluten and I've imagined the whole thing, so twice this week I've eaten food I hven't been sure of because I wasn't confident enough to refuse! And I'm feeling relly crappy.

I'm feeling so run-down, I don't know if this is what's causing the problem, or whether it's the new ointment. Now I've got a nail-bed infection, 2 tiny cooking-cuts have turned into big p%$#@# things, and I've got a horrible boil-type thing on my fingetr, that's swelled up like a banana, and now it's spreading onto my palm. Honestly, if it's any worse tomorrow I think I'm going to have to go to the ER.

I'm sorry, I don't know if this is celiac related. Thanks for reading anyway.

Matilda

<{POST_SNAPBACK}>

Luka Newbie

I have had the same spots on my hands and around my fingernails also once on my shin since I was a kid (36) It's awful! maybe it is celiac related.

  • 1 month later...
GFManiac Rookie

I had this on my hands too, it persisted even after going off gluten. It has been done for good (I HOPE) since I gave up all dairy products too. I've read that both caseins and gluten can cause or irritate eczema.

nettiebeads Apprentice

Oh wow!!! I just love this forum. I've had those itchy bumps for years on my fingers, fortunately they were just irritating but not painful. Just like on the upper left hand pic. on your link. THANKS!! My dr. said the bumps were probably because I handle paper all the time. He said that the copy paper is coated to help it slide through the copiers and printers and that the coating can be an irritant. I didn't really think so since I would occaisionally get them on my feet, mostly my heels. Learn something new every day.

BTW, boils are nothing to fool with - get thee to some medical help!!!

  • 1 year later...
likegiants83 Newbie

I, too, have Dyshidrotic Dermatitis--aka Pompholyx, Vesicular palmoplantar eczema--on my fingers, which seems to pop up or worsen with stress. I seriously doubt it has anything to do with excess sweat during periods of stress like many articles suggest, since I hardly sweat at all to begin with.

I also think, from my experience, that it gets worse and/or I have outbreaks of it when I am exposed to gluten. If I break down and consume something or ingest it unwittingly, the little bubbles seem to pop up on my fingers. I hadn't had an outbreak of them for a while, but all of a sudden lately it's been bad, with several on one finger and on other parts of my hand all at once.

I've also noticed two other possibly related skin problems on my hands lately---1) intense itching below the skin at the skin fold of the top knuckle on both my index fingers. It feels as if there is a layer of skin beneath the top layer that is itching, and it's near impossible to resist the urge to scratch and pick at it to get rid of the top layer. There's no real visible problem, but the skin feels sort of tougher, thicker, and coarser than the rest of my skin. And 2) the skin seems to be peeling back along the edges my fingertips. Anyone else ever have either of these issues?

--- like-giants

jesse Newbie

ive had erosions on my fingers like one of the top two pics, left and middle, for months maybe a year. is there anything i can do to get rid of them?

amen they arent painful, but they aren't something i care to see anymore either.

hope to hear from someone,

jdog

p.s.: can someone help get a pic of me posted? it says talk to a board administrator though i dont know how to get a hold of one. please lmk.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,208
    • Most Online (within 30 mins)
      7,748

    Emily H
    Newest Member
    Emily H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...