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Celiac Causing Neuropathy?

rose-thorn98

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rose-thorn98 Rookie
rose-thorn98
Posted

My Dr. thinks that my small fiber neuropathy may be caused by Celiac. I was positive on blood test (IGA) and am awaiting a biopsy appointment. Anyone else here with Celiac caused neuropathy?

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T.H. Community Regular
T.H.
Posted

Possibly. They thought it was caused by something else - partially herniated disc in my neck affecting the nerves down my arms.

However, since going gluten free, I don't get those symptoms any more at all, and I don't think I've healed up a partially herniated disc, so I'm thinking yes.

Also had vertigo (possibly vestibular ataxia?) that clears up as well when I'm off gluten.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had severe neuropathy along with partial paralysis that resolved on the diet. It is not uncommon with us. For some it is due to our bodies not being able to utilize B12 from our food or swallowed supplements and for others it is part of the autoimmune reaction stemming from the antibodies action on the nervous system. After all testing is done do give the diet a try no matter what the results.

adab8ca Enthusiast
adab8ca
Posted

Yup.

Exactly, small fiber neuropathy (my sig. has more details).

It can take a long time to resolve unfortunately and depends on the cause. I have been gluten-free about 6 weeks and I don't think it is getting worse.

Good luck and keep us posted! (and actually even if the tests come out negative, I would probably give the gluten-free a try. Apparently there is some stat that indicates that approx 15% of small fiber neuropathies without any obvious cause are from celiac)

ada

  • 2 weeks later...
strausserc Rookie
strausserc
Posted

Hello everyone....

I also have neuropathy...my numbness runs from my left breast down to my groin but only on the left side. My entire stomach area is numb. It does not cross the midline. Also part of my back is numb on the same side. I had an MRI to check for a tumor and other horrible things but nothing.....and it is still numb !! It has been almost 2 weeks and no answers. I have an appointment on November 12th with a neurologist but until then I am going crazy. My son is a diagnosed Celiac but I have no "official" diagnosis. I have many of the common symptoms but my blood work came back negative because much of what I already eat is gluten-free because of my son. Does anyone have any info on numbness on the torso? I know the usual numbness with Celiac is on the hands and feet. I would appreciate any info anyone might have.

Thank you !

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