Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency

glutengal

By glutengal
in Related Issues & Disorders

Recommended Posts

glutengal Contributor
glutengal
Posted

My daughter has been gluten free for a year and a half now. She tested negative for celiac by blood and biopsy. Being gluten free has helped tremendously with the headache and stomach pains however, she was diagnosed 3 months ago with eosinophilic esophagitis. Her GI has said to eliminate the eight major food allergens (gluten/wheat,dairy, soy, eggs, peanuts/tree nuts, fish/shellfish) and has put her on Flovent. My questions is how does she get the proper amount of Vitamin D in her diet when she can't eat eggs, dairy or fish? I have asked the Dr. but don't get any answer but supplements and am not sure how much to even give her. Are supplements the only option? She is 26 years old. She is hypothyroid and has a history of brain tumor.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eeyore Collaborator
eeyore
Posted

Supplements do work (I know because I was extremely deficient in Vitamin D and now I'm in the lower-normal range), but spending time in the sunshine helps produce Vitamin D as well. One problem you may have is that most if not all Vitamin D supplements are made from fish oil, so I think that her best option is spending time outside. Hope this helps!

BRUMI1968 Collaborator
BRUMI1968
Posted

Hi. Most vitamin D does not come from food for us, it comes from the sun. I don't know where you live but I assume it's in the northern hemisphere, which means we're getting out of the sunny season.

Supplements are practically mandatory for everyone in North America - and D2 is the supplement you want, NOT D3. It is also important to have Vit. A to absorb properly the Vit. D.

When sunshine comes back, don't use sunscreen for at least part of the day, and get at least enough sun to get your skin barely pink. Once your skin is pink, you are no longer absorbing the D.

D is so important - they actually say it is not really a vitamin but a hormone. Anyway, I would definitely supplement with Vitamin D2. Check out mercola.com about Vitamin D. He has a lot to say about it. You certainly don't have to buy his Vitamin D supplement, but there's lots of good info on Vitamin D on his site.

Good luck.

glutengal Contributor
glutengal
Posted
  • Author

Hi. Most vitamin D does not come from food for us, it comes from the sun. I don't know where you live but I assume it's in the northern hemisphere, which means we're getting out of the sunny season.

Supplements are practically mandatory for everyone in North America - and D2 is the supplement you want, NOT D3. It is also important to have Vit. A to absorb properly the Vit. D.

When sunshine comes back, don't use sunscreen for at least part of the day, and get at least enough sun to get your skin barely pink. Once your skin is pink, you are no longer absorbing the D.

D is so important - they actually say it is not really a vitamin but a hormone. Anyway, I would definitely supplement with Vitamin D2. Check out mercola.com about Vitamin D. He has a lot to say about it. You certainly don't have to buy his Vitamin D supplement, but there's lots of good info on Vitamin D on his site.

Good luck.

Why is it vitamin d2 and not d3. Both of my parents are deficient and were told by their doctor to supplement with d3. What is the difference?

ravenwoodglass Mentor
ravenwoodglass
Posted

Supplements are practically mandatory for everyone in North America - and D2 is the supplement you want, NOT D3. It is also important to have Vit. A to absorb properly the Vit. D.

Good luck.

D2 is made in a lab while D3 is a natural form often derived from fish oil. I have to respectfully disagree with 'Dr Mercola' that D2 is preferred. Perhaps it is his preference because that is the form he sells. D3 is the one that is most advised for us to take.

ravenwoodglass Mentor
ravenwoodglass
Posted

Why is it vitamin d2 and not d3. Both of my parents are deficient and were told by their doctor to supplement with d3. What is the difference?

IMHO your doctor was giving you the right advice. Go with the natural D3 he advised rather than the lab made D2.

RiceGuy Collaborator
RiceGuy
Posted

There's research showing that exposing certain types of mushrooms to just seconds of UV light magnifies the amount of vitamin D quite a lot. I agree that D3 is the one most often recommended. It does not have to come from fish however. Some use sheep's lanolin.

Here's a video on the subject of vitamin D, which I think has a lot of good info, including which test to ask for, as not all vitamin D deficiency tests are accurate:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BRUMI1968 Collaborator
BRUMI1968
Posted

IMHO your doctor was giving you the right advice. Go with the natural D3 he advised rather than the lab made D2.

OH MY GOSH I'M SO SORRY ..DYSLEXIA ATTACK. It is D3 that is the natural one that is the better one to take. I'm so sorry. That is also the one Dr. Mercola talks about - and why you should choose it over D2.

Good luck.

ravenwoodglass Mentor
ravenwoodglass
Posted

OH MY GOSH I'M SO SORRY ..DYSLEXIA ATTACK. It is D3 that is the natural one that is the better one to take. I'm so sorry. That is also the one Dr. Mercola talks about - and why you should choose it over D2.

Good luck.

I get those also, I call them brain farts. :D

glutengal Contributor
glutengal
Posted
  • Author

I get those also, I call them brain farts. :D

Thanks so much to all of you who replied. Is all D3 supplements derived from fish oil as my DD cannot have fish. thought the one i bought her at whole foods said no fish ingredients. She does not live at home with me so I will have to check the bottle next time I go see her. She cannot read so I can't have her check it. Hope the one I bought is ok.

RiceGuy Collaborator
RiceGuy
Posted

There are vegetarian forms of D3. NOW Foods makes some, and there are a few others too, in varying potencies. Some combined with vitamin K2 or other nutrients as well.

missy'smom Collaborator
missy'smom
Posted

I didn't read the whole thread from the beginning but Carlson's makes a D3 supplement that is liquid drops. No fish. It is extracted from lanolin-sheep skin/wool. I couldn't do fish so called the manufacturer to verify. It is available in 1,000 or 2,000 units per drop so you can adjust depending on your needs. I've also used Healthy Origins D3 in a 2,400 IU softgel that is derived from olive oil.

missy'smom Collaborator
missy'smom
Posted

OK, I read back to the beginning. I was concerned about D so got tested through my primary care Doc. I am dairy-free due to allergy and mostly egg-free, very rarely get any egg and am free of most sources of D. I do eat salmon but have had to avoid many other fish for a year now. Anyway, labs came back with good circulating D but stores getting low so Doc recommended 2,000 IU D3. I had been supplementing with that much through the winter but stopped with warm weather and got 15 min unprotected sun per day as often as I could. Got labs done mid-summer. Hope that helps with perspective.

glutengal Contributor
glutengal
Posted
  • Author

I didn't read the whole thread from the beginning but Carlson's makes a D3 supplement that is liquid drops. No fish. It is extracted from lanolin-sheep skin/wool. I couldn't do fish so called the manufacturer to verify. It is available in 1,000 or 2,000 units per drop so you can adjust depending on your needs. I've also used Healthy Origins D3 in a 2,400 IU softgel that is derived from olive oil.

Thank you I will check into these.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,182
    • Most Online (within 30 mins)
      7,748
    Jazbrown
    Newest Member
    Jazbrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Alpine Brand Spiced Cider

      By WednesdayAddams13 · Posted

      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      Family education

      By trents · Posted

      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Family education

      By Rogol72 · Posted

      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Supplements for those Diagnosed with Celiac Disease

      By peg · Posted

      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Cycle of dermatitis herpetiformis

      By Hopeful1950 · Posted

      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...