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Newbie Looking For Help!

Jennirube

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Jennirube Newbie
Jennirube
Posted

I was wondering if anyone else had been told they were at moderate risk for Celiac after having the Celiac Genetic test done. My new GI ran the test and wants me to stay on Gluten free diet since I feel better on it. They still don't know if I have it or not but that I may have a gluten sensitivity though. I have had all the tests done for celiac and they have come back negative. they told me then it was Gerd but the meds never helped I was still suffering and bloated all the time. When I finally did the gluten free diet is when I finally felt at my best. I also have vitamin D and b-12 deficiency along with Pernicious anemia. Anyone else have problems like this?

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Jecka Newbie
Jecka
Posted

Ditto...been back and forth feeling god to bad to worse to maybe better not sure and vitamin deficient. My mother has celiac and feels with my symptoms I do as well. I had a negative blood test no endo done but a possible DNA link of "that I may be susceptible to a gluten intolerance" I went gluten-free once before for about a month, excema cleared up, felt lighter and clearer, allergies were better. Went back to eating gluten so I could have accurate tests done...nothing confirmed so I went back to doing gluten-free diet. It's been over a week and I've been really good about it but this time I feel Awful!!! Wondering if some of the gluten-free bread and gluten-free products are causing a new reaction. I eat mostly veggies, not a big pasta or sandwich person but I feel awful, hope it doesn't last!

I was diagnosed with IBS and having GERD years ago which neither EVER bothered me, thought it was just a diagnosis to tell me something... but tI feel like now I have the GERD as I keep burping, feel like something is stuck in my throat or clogging behind my breastbone and I feel short of breath. I'm 36 and an active runner and yoga enthusiast. I feel like I'm a 100 with the way I feel. Was thinking of going back on gluten as this sucks just as much! Anything I've read thus far n here has been mostly about folks getting "glutened" and I'm certain that's not it as I've been perfectly careful but I do feel awful. I can only pin it all down to stress....

Dixiebell Contributor
Dixiebell
Posted

Maybe you are having withdrawl symptoms.

Skylark Collaborator
Skylark
Posted

I was wondering if anyone else had been told they were at moderate risk for Celiac after having the Celiac Genetic test done. My new GI ran the test and wants me to stay on Gluten free diet since I feel better on it. They still don't know if I have it or not but that I may have a gluten sensitivity though. I have had all the tests done for celiac and they have come back negative. they told me then it was Gerd but the meds never helped I was still suffering and bloated all the time. When I finally did the gluten free diet is when I finally felt at my best. I also have vitamin D and b-12 deficiency along with Pernicious anemia. Anyone else have problems like this?

Feeling healthy on the gluten-free diet and sick eating gluten is pretty much the definition of non-celiac gluten intolerance. As your doctor says, if it makes you sick, don't eat it! I wish most doctors had that much common sense to offer their patients.

Jecka - Try to stick to unprocessed whole foods. You might be into a gluten withdrawal, or you might be sensitive to the gums and unusual flours in gluten-free foods. I hope things settle down for you.

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