Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hope This Is Right Place To Post.

phrcmary

By phrcmary
in Coping with Celiac Disease

Recommended Posts

phrcmary Newbie
phrcmary
Posted

Heres on thing I'm not sure about. I tested high for Rice, Flax, Garbonxo beans and some other things. For gluten I tested "very low". The doctor says I have to not eat anything that showed up in color (VL is green, High is red and there is yellow and peach color in between). My question is, if "cheat" and eat some pasta, or a piece of bread will that totally screw me up, should I just try it and see, its REALLY hard when I'm traveling like right now. I am SICK SICK SICK of hamburger patty with no bun. Yuck.

Its only been a week since my labs came back. Because I don't have Celiac its hard to stick to this diet when my labs say I test very low for gluten interolance. My doctor just says its on there so you can't eat it. In the meantime, trying to go gluten-free and Rice Free I have never felt more exhausted in my entire life. Its to the point where its almost dangerous to drive. Is that normal?

Any response would be greatly appreciated. I don't have anyone to ask around here. Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Did you have celiac blood tests or allergy testing? Celiac disease is different from an allergy to foods.

phrcmary Newbie
phrcmary
Posted
  • Author

Did you have celiac blood tests or allergy testing? Celiac disease is different from an allergy to foods.

I had blood work done by Geneva Diagnostics. They tested for Food sensitivies, Food allergies, allergies to environmentals such as molds, dander, weeds, etc and also specifically for Celiac. The Celiac came back negative.

The gluten came back Very Low. I test highest for Flax, bean sprouts, garbonzo beans, rice. Until that day I had flax and rice daily and garbonzo beans often. I don't mind doing away with those, but as you know, Gluten is alot more difficult and it I tested very low I'm confused as to if I really HAVE to go Gluten-Free or can I just cut down?

I'll be off line the rest of the day too, so I apologize in advance for not thanking anyone in a timely manner.

Skylark Collaborator
Skylark
Posted

Allergy blood tests for food allergies are notoriously inaccurate. Is there any way you can take your Geneva results to an allergist?

phrcmary Newbie
phrcmary
Posted
  • Author

Allergy blood tests for food allergies are notoriously inaccurate. Is there any way you can take your Geneva results to an allergist?

I can do that. I wasn't sure who to get a second opinion from. I thought of Naturopath and Nutritionist, but hadn't thought of an Allergist. Thank you.

Skylark Collaborator
Skylark
Posted

I can do that. I wasn't sure who to get a second opinion from. I thought of Naturopath and Nutritionist, but hadn't thought of an Allergist. Thank you.

Good luck with it! I hope you get some answers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,232
    • Most Online (within 30 mins)
      7,748
    ethan710
    Newest Member
    ethan710
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Scott Adams · Posted

      As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
    • Scott Adams
      Abscesses on legs

      By Scott Adams · Posted

      By the way, have you been diagnosed with celiac disease, and if so, are you on a 100% gluten-free diet?
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Abscesses on legs

      By plumbago · Posted

      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
    • LookingForAnswers101
      Abscesses on legs

      By LookingForAnswers101 · Posted

      @plumbago They appear as boils. They are big, like the size of a nickel--quarter, and they hurt when I touch them. I have gone to the same derm for them over and over and she thinks my body is colonized by a bacteria, but even after using hibiclens all over my body they come back.
×
×
  • Create New...