Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Symptoms

shelbymartin93

By shelbymartin93
in Meet Up Room

Recommended Posts

shelbymartin93 Newbie
shelbymartin93
Posted

So i'm 17 and I found out two weeks ago that I have celiacs. The adjustment hasn't been that bad but I'm still having symptoms. I have been very careful about not putting any gluten in my body but I'm still not feeling that great. I've only been on the diet for two weeks. Right now I'm still having a lot of bloating and abdominal cramping as well as a lot of gas and burping. Is this normal? I was told it might take a while for the inflamation to die down. I feel really frustrated because I really want to feel better and no one I talk to seems to understand because they think I should already feel better. If you could give me some help I would REALLY appreciate it :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Two weeks is not very long. Do make sure you are not sharing things like a toaster, scratched non-stick pans, wood spoons and cutting boards, jars of peanut butter, mayo and the like with gluten eaters because you could be getting cross contaimination. You also might want to stop your dairy consumption for now and see if that helps.

shelbymartin93 Newbie
shelbymartin93
Posted
  • Author

Two weeks is not very long. Do make sure you are not sharing things like a toaster, scratched non-stick pans, wood spoons and cutting boards, jars of peanut butter, mayo and the like with gluten eaters because you could be getting cross contaimination. You also might want to stop your dairy consumption for now and see if that helps.

Does this include eggs? And about how long till your symptoms were eliminated?

psawyer Proficient
psawyer
Posted

Does this include eggs? And about how long till your symptoms were eliminated?

Dairy means milk products, and does not include eggs.

Hamster101 Rookie
Hamster101
Posted

I would recommend stopping dairy for a little while. I found when I stopped eating gluten that my stomach was still sensitive to dairy for a week after, at least, before I could eat low levels of it again.

I would also recommend, while you're beginning to heal, to eat things that are easily digestible: Fruit, veg, fish and as little red meat as possible. I am still particularly sensitive to pork, something notoriously hard to digest, but have found I can happily each chicken and lamb just a few weeks into the diet.

If it continues after a few more weeks, it would suggest you are either being cross contaminated or you have another food allergy as well. a few elimination diet runs should solve that.

shelbymartin93 Newbie
shelbymartin93
Posted
  • Author

I would recommend stopping dairy for a little while. I found when I stopped eating gluten that my stomach was still sensitive to dairy for a week after, at least, before I could eat low levels of it again.

I would also recommend, while you're beginning to heal, to eat things that are easily digestible: Fruit, veg, fish and as little red meat as possible. I am still particularly sensitive to pork, something notoriously hard to digest, but have found I can happily each chicken and lamb just a few weeks into the diet.

If it continues after a few more weeks, it would suggest you are either being cross contaminated or you have another food allergy as well. a few elimination diet runs should solve that.

What about the Gas? I am still very gassy and it happens very frequently and doesn't have the greatest odor. Is that a symptom?

Skylark Collaborator
Skylark
Posted

What about the Gas? I am still very gassy and it happens very frequently and doesn't have the greatest odor. Is that a symptom?

Gas can be from lactose intolerance. A lot of celiacs are lactose intolerant until their intestines heal, since lactase is made at the tips of the villi.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shelbymartin93 Newbie
shelbymartin93
Posted
  • Author

Gas can be from lactose intolerance. A lot of celiacs are lactose intolerant until their intestines heal, since lactase is made at the tips of the villi.

That's what I thought as well, but I haven pretty much cut out all dairy as well. Could my intenstines still just be healing?

psawyer Proficient
psawyer
Posted

Yes, you could indeed be temporarily intolerant to lactose until your small intestine heals. Lactose is the sugar in cow's milk. To digest it, your system needs the enzyme lactase, which is produced in the villi of the small intestine. If you have celiac damage to your villi, then you may be lactase deficient which will cause you to be lactose intolerant. Gas is a common symptom of lactose intolerance.

GFreeMO Proficient
GFreeMO
Posted

Yes, you could indeed be temporarily intolerant to lactose until your small intestine heals. Lactose is the sugar in cow's milk. To digest it, your system needs the enzyme lactase, which is produced in the villi of the small intestine. If you have celiac damage to your villi, then you may be lactase deficient which will cause you to be lactose intolerant. Gas is a common symptom of lactose intolerance.

You could try using Lactaid brand milk.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. BIg Nodge
      - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information. I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS...
    2. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too. I was supposed to do testing to find out metal's I was allergic to because I can't wear jewelry of any kind. Mayo felt I had other allergies also.
    3. Scott Adams
      - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based...
    4. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      Mayo is great and yes I had the same experience. They take you seriously and they check everything. I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.
    5. pdm1981
      - pdm1981 replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,851
    • Most Online (within 30 mins)
      7,748
    Roselle
    Newest Member
    Roselle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
    • pdm1981
      Vaccines

      By pdm1981 · Posted

      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5 days. It was unbelievable. I had what would've been 4 years of testing back home done in 5 days. I went home at the end of 5 days and got my results a week later on a zoom call. EPI and rapid gastric emptying syndrome. I do have celiac disease but that wasn't the cause of my continued symptoms. Those people up there are great. Wouldn't that be amazing if all medical care was like that?  That's weird that the antibodies are that high. Hopefully it's not refractory celiac disease. Good luck.
×
×
  • Create New...